• Share. Be Supported. Recover.

    We are a friendly, safe community supporting each other's mental health. We are open 24 hours a day, 365 days a year.

Wondering if this is a link?

M

mindbodysoul

Active member
Joined
Mar 30, 2021
Messages
29
Location
US

CMT, also known as hereditary motor and sensory neuropathy, is one of the most common inherited neurological disorders, affecting an estimated 126,000 individuals in the United States and 2.6 million people worldwide. Nearly all cases are inherited. It is possible to have two or more types of CMT, which happens when the person has mutations in two or more genes, each of which causes a form of the disease. CMT is a heterogenous genetic disease, meaning mutations in different genes can produce similar clinical symptoms. CMT is named for the three physicians who described it in 1886.
There is currently no cure for CMT but it can be managed with supportive therapy. CMT isn’t usually life-threatening and rarely affects muscles involved in vital functions like breathing. People with most forms of CMT have a normal life expectancy.

“A demyelinating disease is any condition that results in damage to the protective covering (myelin sheath) that surrounds nerve fibers in your brain, optic nerves and spinal cord. When the myelin sheath is damaged, nerve impulses slow or even stop, causing neurological problems.”

I have type 1A CMT. I have always wondered about a possible link to it causing the stress that made me diagnosed with chronic schizophrenia and others have said bipolar...often the psychiatrists are confused by how to treat it because I dont exhibit symptoms or they assume the medication is treating it...three years ago I was diagnosed with Bipolar with a good prognosis and I was taking Hydroxizine which is an anti-histamine and I was not taking Abilify or any anti-psychotics for over one year with no relapse.

CMT causes the wirings within the neurons that control synapses to deteriorate over time. Im not saying I think Charcot Marie Tooth is the direct cause of all people with schizophrenia, but that it could likely be the cause of my mom's and mine. One link says Multiple Scerosis can be a link to neurological disorders, so Im thinking its possible that stress and issue with the brain impulses caused it in me.

This is actually giving me hope though, because thats just one cause a duplicate PMP22 Gene affecting and pronouncing stress levels...I think some of these findings are new so not from 10 years ago and people know more about treatments.

which also makes sense because if your nerves were already stressed or blocked maybe thats why it helps?




Screenshot 2021-09-15 003247
Screenshot 2021-09-15 0032471761×757 80.8 KB



Dad just told me at dinner that a psychologist at Johns Hopkins told him it wasn't likely that Myelin deterioration over time caused my “schizophrenia” and that there is no myelin in the brain…but there definitely is and he only talked to that one person 10 years ago I remember it. Johns Hopkins was founded by someone who "owned" four slaves.

Cement Answers

Is there myelin in the brain? - Cement Answers
Is there myelin in the brain? In the central nervous system (CNS) — the brain and spinal cord — cells called oligodendrocytes wrap their branch-like



Psychology Today

Brain Regeneration
Myelin repair is one of the most robust ways the brain can regenerate.



Mayo Clinic

Find out more about demylinating disease like multiple sclerosis
Understanding the causes and types of demyelinating disease, like multiple sclerosis, can help guide treatment decisions and manage symptoms.



“A demyelinating disease is any condition that results in damage to the protective covering (myelin sheath) that surrounds nerve fibers in your brain, optic nerves and spinal cord. When the myelin sheath is damaged, nerve impulses slow or even stop, causing neurological problems.”



My parents have asked one psychologist from Johns Hopkins about it who shrugged off a possible link. I plan to see a neurologist and explore this further as I am unsatisifed with my current treatment. I went back the psychiatrist for an addiction and ended up being pathologized once again about the label I had previously had of schizophrenia. It hasn't helped with the pandemic and not being able to leave the house much. Losing my car, ability to drive for work, etc.
 

Similar threads

Top