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  • Safety Notice: This section on Psychiatric Drugs/Medications enables people to share their personal experiences of using such drugs/medications. Always seek the advice of your doctor, psychiatrist or other qualified health professional before making any changes to your medications or with any questions you may have regarding drugs/medications. In considering coming off psychiatric drugs it is very important that you are aware that most psychiatric drugs can cause withdrawal reactions, sometimes including life-threatening emotional and physical withdrawal problems. In short, it is not only dangerous to start taking psychiatric drugs, it can also be dangerous to stop them. Withdrawal from psychiatric drugs should only be done carefully under experienced clinical supervision.

What are the pros/cons of being on Clozapine?

V

Viktoria

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Pros/cons?
I'm on 550mg, is that a high dose? A friend of mine is on 50mg.
Side effects for me are half an hour after I've taken it it's like I've had a bottle of whisky and I wee in my bed sometimes and I dribble.

Anyone else's experience?
 
Passionflower

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The max dose of Clozapine is 900mg. Sorry I haven't had any experience with it as I refuse to take it.
 
V

Viktoria

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clozapine

Thanks for the reply. I knew 900mg was the max but read usually 200-450mg.
Anyone else?
I refuse too but it's forced, if I don't take it they inject.
Why do you refuse?
 
Passionflower

Passionflower

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I refuse because of side effects.It just comes with too many that I couldn't cope with.
 
V

Viktoria

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clozapine

I agree and I hate taking them. I want to quit as soon as I'm out of here.
 
Per Ardua Ad Astra

Per Ardua Ad Astra

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I was on clozapine for four months in the 1990's.

My psych doc at the time told me I had treatment resistant schizophrenia, and that there was no point rotating me through any more anti-psychotics. The choice was either clozapine or ECT, so I chose clozapine.

It's hailed as a wonder drug for difficult-to-treat patients, but I found it horrendous. I was very severely constipated, dribbled and drooled a lot, and had terrible night sweats (my Mum had to wash the bed linen every day, and bought a special cover for my mattress). I also experienced a rare side-effect of the drug, where speech is effected. When I spoke, it was just gobblegook that came out. My speech was virtually incomprehensible to everyone, and I had to repeat myself over and over, to be understood. I developed a weakness in one of my legs as well, and I would sometimes just jolt and stumble suddenly, and I would shout out when this happened. Sometimes my legs would just go from under me, and I would fall to the floor. This happened at home at my folks, and a couple of times outside, once in hospital grounds.

I hated going for the blood test too. A very rare side effect of clozapine, is that it can lead to the blood cells that sustain the immune system to cease producing. So a weekly blood test is essential, before the pills are prescribed. Only a consultant psych doc can prescribe them, and only a hospital pharmacist can make up the prescription.

I can't remember the dose I was on on, but it was middling to high. I remember the tablets were huge, and my Mum woke me every morning to give them to me, before I fell back to sleep zonked out again until Midday. I can't remember if I was on divided doses or not. I know I was with a later drug, Quetiapine.

My psych doc wanted me to carry on with them for at least six months. No way was I doing that. I went back onto Thioridazine.

There were no pros for me with clozapine, only cons. I detested the stuff, big time :confused:

I'm sorry to hear you are having to take this, Viktoria. Some of the people on the ward and on discharge seemed to do okay on it, so it might go okay for you.

I wish you well. Let us know how you get on, and take care :)
 
Kerome

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I agree and I hate taking them. I want to quit as soon as I'm out of here.
Hmm don't you think you should wait to see how you feel then? You seem to be pretty ill at the moment, maybe you will decide that you need the drugs to stay sane and away from Becky and the other voices?

Clozapine does sound like a pretty heavyweight drug though. Which is not ideal.
 
V

Viktoria

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clozapine

Thanks for your in depth answer per ardua, it's helpful. You definitely have more side effects than me. I drool a lot and half an hour after I've taken it it's like I've had five bottles of whisky so I take it when I go to bed. Then I wee in my bed which really annoys me.

I know you believe I'm ill kerome but I feel different as you know. I feel spiritual. I want to be med free. My forced meds thing lasts another six weeks I don't know if there gonna go back to the judge to lengthen it with another three months.

If I come out of this place alive then I'll probably leave on a cto and still get regular blood tests to check I still take it and they could put me back in hospital if I stop taking them.

She's also considering adding another anti psychotic because this isn't working at quite a high dose but I think they can give me whatever it's not gonna take away a spiritual world. But I digress.

Conclusion, I hate meds...
 
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