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Tics are driving me crazy

S

soulblazer

Member
Joined
Jan 6, 2015
Messages
20
Location
Costa Rica
My tics are driving me crazy, for instance, they annoyed me DAY LONG today... Also, I hate presentations (you know, Power Point, Prezi, etc...); the teachers would see me "squirming", moving like I'm "short-circuiting", doing weird sounds, or something during the presentation... so they take points off my score since I'm doing the presentation "wrong", their "logic" being I'm "way too nervous so it must be I didn't prepare myself for the presentation". I have tics even when I'm not nervous, I can even get tics when I'm calmly reading a real book or e-book or playing a videogame, so it's no just "nervousness / lack of control" that causes them.

I have an important presentation coming in two weeks, my dad just tells me to "not to whine and control it, or stop attending classes at all". In this country, most people don't know anything about tics ("stop looking for atenttion" blablabla), even psychiatrists don't know much... There's this doctor, who is an expert on tics, he even has degrees from Harvard and has years of experience, problem is... his consult = $$$$. Okay, there's also a non-profit organization where he attends people, who can't pay for his treatment, for free; but he doesn't have the time to attend everyone from the organization, since he also has to take care of his clinic (I mean, he has to eat and his own family, I undestand).

So, he attends several people around the year and, of course, there's a mile long waiting list (I also understand there's people worst off than me). I've been waiting for 4 years and I'm sick of waiting, I want to be attended ASAP, but my dad refuses because it's too expensive (at least for us), I told him to go talk to some relatives (who got cash and there's no way in hell they would say no since it's MY HEALTH), but he keeps saying no, that it would be "freeloadering and rude" to ask that kind of money, even if it's for my tics. So, what? No help until I get called (who the hell knows when) or until I have a job so I could pay for it myself?

And I can't get a job either... once, during an interview, everything was going fine, it really looked like they were going to have me hired (they were impressed with me), but a notorious tic came along and their impression towards me turned into "don't call us, we'll call you". My tics are even causing me to lose opportunities to get my first job and my dad keeps saying no to somehow (ANYHOW) get the money for the consults (this is not like some whiny spoiled brats crying like self-entilted little b****es about a Iphone or a brand new car and saying they "hate their parents, that their life is soooooo unfair", this is actually something that is keeping me from getting jobs). Why can I do to get him to stop being so FREAKING PROUD?
Once, he even said that "I should stop throwing money away at education (I was paying my major with my grandmother's inheritance and can't take it to anything else or it won't be enough for the remaining classes), that even tough I get the degree, no one is hiring me anyway, since the tics will scare them off"
 
R

Rose19602

Guest
Hey,
Hi Soulblazer.....I can relate to so much of this post. I'm a parent of children who had tics.

So much of what you say I can validate.
Yes, you are right that they don't just come on when you are nervous...although this can be a trigger. They can come on when watching tv, reading quietly .... in fact, I found that once a cycle of tics commenced, they came on pretty much anytime at all.

Tics, for us anyway, came on in cycles. Often there was a trigger, but every 3-4 months they would start with or without a trigger. They would start in a subtle way, then peak mid cycle before waning again. They were at their worst and most frequent around puberty and then gradually got better in my family, but always responding to anxiety around times like exams. Interviews and presentations would be incredibly hard....I empathise.

Your parents and school sound unsupportive and more importantly, not terribly well informed. I suggest that you put this website in front of your parents: Tourettes Action There are downloadable resources for parents, teenagers, adults, teachers....if they'll listen.

My sister had tics too, and she's my age now (50's). When she went through it the tics were referred to as "bad habits" by my Mum who was embarrassed by them. The GP referred to "an immature neurological system" and all in all it crippled her self confidence as she had severe motor tics and no one helped her or understood. She was treated in very much the same way as you. I empathise enormously.

We can support you through this on here...although specialist groups would also be helpful to you.
Check out that website and see if they have any international contacts, or email for verification of the expertise that your local doctor has perhaps?

I would be wary of seeing any doctor who is not an expert, and I would also be wary of many of the meds....but that's my opinion. Your father may be right that seeing a doctor could be a waste of money ironically. Doctors can understand, diagnose and offer meds that "might or might not work"....but nothing more. There is no cure. I think you need the validation and support though....but if this comes at a cost your father may feel that this alone is not enough for his money. Sorry...but that's the truth.

I'm not sure that anyone has been able to control this condition with drugs effectively and IMO the drugs offered come with many undesirable side effects. Behavioural control is your best bet, although it doesn't always work and we never managed it. More import perhaps is psychological support and recognition of the impact that the tics have on your life.

Not sure how old you are? ... but the tics in our family disappeared late teens. Not everyone is so fortunate, but I wish you luck and please keep posting. I will happily support you.
x
 
Last edited by a moderator:
S

soulblazer

Member
Joined
Jan 6, 2015
Messages
20
Location
Costa Rica
Hey,
Hi Soulblazer.....I can relate to so much of this post. I'm a parent of children who had tics.

So much of what you say I can validate.
Yes, you are right that they don't just come on when you are nervous...although this can be a trigger. They can come on when watching tv, reading quietly .... in fact, I found that once a cycle of tics commenced, they came on pretty much anytime at all.

Tics, for us anyway, came on in cycles. Often there was a trigger, but every 3-4 months they would start with or without a trigger. They would start in a subtle way, then peak mid cycle before waning again. They were at their worst and most frequent around puberty and then gradually got better in my family, but always responding to anxiety around times like exams. Interviews and presentations would be incredibly hard....I empathise.

Your parents and school sound unsupportive and more importantly, not terribly well informed. I suggest that you put this website in front of your parents: Tourettes Action There are downloadable resources for parents, teenagers, adults, teachers....if they'll listen.

My sister had tics too, and she's my age now (50's). When she went through it the tics were referred to as "bad habits" by my Mum who was embarrassed by them. The GP referred to "an immature neurological system" and all in all it crippled her self confidence as she had severe motor tics and no one helped her or understood. She was treated in very much the same way as you. I empathise enormously.

We can support you through this on here...although specialist groups would also be helpful to you.
Check out that website and see if they have any international contacts, or email for verification of the expertise that your local doctor has perhaps?

I would be wary of seeing any doctor who is not an expert, and I would also be wary of many of the meds....but that's my opinion. Your father may be right that seeing a doctor could be a waste of money ironically. Doctors can understand, diagnose and offer meds that "might or might not work"....but nothing more. There is no cure. I think you need the validation and support though....but if this comes at a cost your father may feel that this alone is not enough for his money. Sorry...but that's the truth.

I'm not sure that anyone has been able to control this condition with drugs effectively and IMO the drugs offered come with many undesirable side effects. Behavioural control is your best bet, although it doesn't always work and we never managed it. More import perhaps is psychological support and recognition of the impact that the tics have on your life.

Not sure how old you are? ... but the tics in our family disappeared late teens. Not everyone is so fortunate, but I wish you luck and please keep posting. I will happily support you.
x
I'm 24 years old, they started at age 10, but it was barely noticeable (it was one tilting head tic), then when I was 14 the tilting tic became more noticeable but everyone thought nothing of it. Then at age 18, more complex tics started to show up, I took a lot of meds which made the worst tics to disappear, but I had to get rid to meds when they gave horrible side effects (the worst tics never came back, though). Now it just a tic that causes to saying "no" with my head, another that causes me to move my shoulders, a combination of the "no" one and the shoulder one and some vocal tics like made up work and screaming, the worst tics ("pfffft!" and very complex moving tics) have gone.

I'm pissed because no one takes me seriously. I could start talking to them, they would think I'm smart or some other "flattering" adjetive and then, in a matter of seconds, I'm a "weirdo" screaming things and moving around. And during interview is like "Hmmm... we have two impressive candidates, but one shakes and moves around... she must be insecure and nervous, let's call the other one instead." There was this time, when I had just turn 18, I was asking a job at a cafeteria, the guy was interviewing me at one of his cafeteria's tables, this annoying female friend of his comes along and asks him if I'm his 12 year old daughter (he really had one, she thought it was me). He told him I was looking for a job and she said "She's just adorable!" (sigh...) and decided to "join" the interview, I was thinking "Stop nosing around and leave...!" but, for obvious reasons, couldn't say anything. She didn't leave, kept staring at me like I was some cute little doll she could have exhibited at her house and I got a tic... I didn't get called.

I understand the lack of money, I just want my dad to understand that with an actual diagnosis, I could have proof to defend myself in case they were to choose someone over me because of the tics (it would be no use to go to the Costa Rican government agency that deals with injustice / discrimination in the laboral environment if you don't have proof to back up you actually have something) because the ignorant doctor that attended me (assigned by Costa Rica's Social Security) stupidly wrote on my folder that I had "anxiety, insecurity, blablabla". What employer is gonna think it's not just about "insecurity" if they read the doctor's biased writings?
 
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Rose19602

Guest
I see why you want to see a doctor now, especially if you need an explanation and validation. It matters doesn't it, that people take it seriously. I understand that.

Which meds did you take that worked? I'd be interested to know, and who prescribed them? If they were prescribed by your doctor for tics could you not get a letter from him verifying that you suffer from them? Does it have to be a specialist ? Even if he doesn't state that it's Tourettes he must have witnessed the tics if he medicated them? You could at least get that from him....it would be a start with your claim.

Do you get the tics all the time or do they come in cycles like in my family? We used to have a few months at a time without anything and although tics came on with anxiety, they usually started after the "anxiety causing event" and would then start in earnest for at least a couple of weeks.

Don't know if it would help if you could talk to employers about your condition. Some employers will be open minded.....difficult though I know.

Hope that's some help?
x
 
S

soulblazer

Member
Joined
Jan 6, 2015
Messages
20
Location
Costa Rica
I see why you want to see a doctor now, especially if you need an explanation and validation. It matters doesn't it, that people take it seriously. I understand that.

Which meds did you take that worked? I'd be interested to know, and who prescribed them? If they were prescribed by your doctor for tics could you not get a letter from him verifying that you suffer from them? Does it have to be a specialist ? Even if he doesn't state that it's Tourettes he must have witnessed the tics if he medicated them? You could at least get that from him....it would be a start with your claim.

Do you get the tics all the time or do they come in cycles like in my family? We used to have a few months at a time without anything and although tics came on with anxiety, they usually started after the "anxiety causing event" and would then start in earnest for at least a couple of weeks.

Don't know if it would help if you could talk to employers about your condition. Some employers will be open minded.....difficult though I know.

Hope that's some help?
x
1) I went to a clinic, asking for my folder to be refered to a hospital (I was hoping for a neurologist or something), but the general doctor send me to a psychiatrist.
The psychiatrist is a her, but she didn't witness any tic... I didn't have any tics during consults and she even said something along of lines of "I see you fine". After I kept telling I have it, the only thing she did was prescribe drug after drug (Prozac, Clonazepam, Haloperidol) which caused side effects (I told her about it and she gave me a new drug to see what would happened to me now, yay!).

2) The stupid psychiatrist didn't even write "tics", she wrote it as "anxiety, nervousness, social awdkardness, possible obsessive compulsive disorder". That makes me look like an incompotent social reject and that fact the psychiatrist knows I like stuff that people thinks that fall into the "nerd" stereotype (Star Wars, superheroes, anime, and stuff, which I like even before tics, so it's bull it's related in any way) does not help my case.

3) Yes, they come and go.

The most frustating thing is if I go to her to ask her some signed letter it would say "anxiety, blablabla" instead of "tics", also the folder says I took anxiety / OCD medication and that she gave them to me for my "stated" tics, which makes it sound like I was making it up or that the "anxiety / OCD / shyness / social awkwardness" were the cause), no matter how much I tell her... she even says: "I see you fine" or "I don't see any of those tics of yours right now" or "Do a tic, then" (WTF?)
 
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