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They have changed my venlafaxine brand and now getting serious side effects

M

megirl

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#1
They have changed my venlafaxine brand and now getting serious side effects

I have been on effexor for many years, I was on the venlafaxine capsule. Since ?May this year they have changed effexor to enlafax its in a capsule form also but it has 3 large beads inside, whereas effexor has minute beads.
Anyway i have been noticing that in my bowel motion is the whole capsule still intact when i have inspected the capsule its is completely full of white powder.
Also since the change of brand of the venlafaxine i have had an increase in traumatic nightmares and at times night terrors. I also wake in the night my bed is soaked in sweat. This is getting worse. The other night my pj's were saturated my bedding even my top sheet and top blanket.
I have been to the gp in regards to the sweats i have had all the blood tests they could have been done they came back fine.
I found even when I first started on venlafaxine if i missed a dose or too it later than i normally would i got the sweats and nightmares, which had stopped for a long times now.
I told my mentalhealth support worker about the capsule not being broken down he wasnt very interested.
I am positive this is the cause
Has anyone else had a similiar experience
 
N

natalie

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#2
It seems it's a very grey area polictically - when I was experiencing worse side effect for me, serious, and my brand was changed to generic, now, I'm not under cmht, and the chemist recommended that I see the GP, and ask them to reamend the prescript to read the original that's no problem, they can get that. So this we did.

In your case, and your mental health support worker didn't want to know, i would either a) try the pshychartrist doctor directly, and asking them to go back to the original, brand, and they should be able to reamend the prescription, or, if you'll prefer, contact the crisis, team, and they can then reassess, and point you further in the right direction,

I hope either of these might work, or if that fails, go back, to your GP, and ask them for the form to be reamended, to read the original, and not the generic.


Best Wishes,

Natalie.
 
M

megirl

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#3
Yay got some where. Doctors (especially) psych doctors often just brush of any side effects from their prescribed meds.
Anyway thought may as well ask the pharmacist when i went to get my meds. I told her what has been happening that I have noticed that quite regularly the enlafax capsules passing through me still intact. She said that she has had a few customers who take the drug notice the same. She said to open the capsule and take the beads out and take them like that. I have been really tired since i have been taking them like this, but waking up drenched in sweat part of the night well that would be exhusting for anyone. Also my body is having to adjust to actually getting the meds that i need. I have not had any night sweats sine i have started taking them like this.
Also pharmacists I would think have a lot of training around medications whereas doctors dont have such speacialist knowledge in this area
 
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natalie

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#4
Hi Megirl,

I'm so pleased that you managed to get somewhere, with your med problem, and that you weren't you discovered the only one.

Actually, the thought of chemist did cross my mind, I didn't like to confuse you to early on, following on from a couple or a few of my suggestions.

I am glad, that your night sweats, now seemed to have been stopped, since you have been taking them like this.


I hope that eventually, doing the method that they advised, you'll settle down better.


Kind Regards,


Natalie.
 
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natalie

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#5
HI Megirl,


I've just quarter of an hour back, in London, heard on the news on the radio, about the sweltering heatwave, that you as a country are experirencing at the present time. I h ope it is not affecting you, too badly, and that youi have taken appropriate measures tob e in cool atmospheres.


Try to be well,



Natalie.
 
M

megirl

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#6
Yes it has been un-usually hot here very dry and hot.
Been too hot at times to even walk the dog. Our summer normally is a few hot days then normally not very often maybe a really hot day then cooler days in between. we never get weeks of hot weather at a time. Generally during summer i may wear a dress or shorts a couple of times. But been living in them
 
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megirl

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#7
Went and picked up my meds this morning and once again spoke to the pharmacist and told her since taking my venlafaxine out of the capsule have had no further side effects, she told me that they put a capsule in water and compaired to other capsules they dont easily dissolve. She said please make sure you tell your doctor
 
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Iamme

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#8
Hi megirl, I had been on Effexor-XR for approx 10 year's before being given Enlafax without any warning it was changing back in May 2017. I took it for three weeks and completely went downhill in that time (I had been very stable for quite a while prior to this), I worked out that it was the change in the brand of medication - I asked on a Facebook post on "The Nutter's Club" page - and within a short space of time comment's came pouring in - load's of people had issues with it. I had multiple over-doses after this, went back on Effexor and had to increase from 225mg up to 375mg and am only just starting to feel how I was pre the change over some eight month's ago. Very few people knew this was changing - Dr's/pharmacist's/psychiatrists etc didn't know until after it happened.
With the effexor-XR I have issues with excessive sweating and have to take another medication to manage it :-(.
 
M

megirl

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#9
Yes they changed the effexor without mentioning the change. Well since opening the capsule and taking the beads that way am feeling fine with the enlafax. The thing is theres only 3 tablet/bead things in a capsule so therefore why put them in a capsule?? expose us to what ever the capsule shell is made of?? so wouldnt it be better to just put them in the tablet form?? how hard is it
 
schizolanza

schizolanza

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#10
Hi. Venlafaxine withdrawal is absolute hell. If I miss a dose or even just take it a bit late I'm in the shit.
 
M

megirl

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#11
Yeh I certainly know what thats like. Bloody horrible. If I take it even 2 hours late (which I think I did today) I have had major sweats. Its hot today but as soon as I do any activity at all the sweat actually drips off me!! I never sweat like that but when i do well its always due to taking the venlafaxine late.
 
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Iamme

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#12
Yeah I totally don't understand why they did that, surely even just having the "tablet's" within the Enlafax compared to the beads in the Effexor there has to be a major difference for how it is absorbed in people.
The psychiatrist told me that Effexor would be phased out here and I will have to go back on Enlafax again - I said no way in hell I will go back on that after what I have been through in 2017.
 
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Iamme

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#13
Hey Natalie,
The only problem with this is that Effexor is no longer funded since Enlafax has taken over. A lot of pharmacies no longer stock Effexor, and if one goes into hospital be ready for a fight to try and stay on it :-(. I have been very thankful the pharmacy I go to have been absolutely amazing and got me in a year's worth of Effexor AND paid for a few months of it for me.
 
M

megirl

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#14
I think the medication brands can differ from different district health boards (different hospitals that are rum separately and funded under different areas) So when i was under the care of a different area I was given a tablet brand but in tablet form ..no issues, so yeh its often the best/cheaper (most likely cheaper brand that the certain health boards are willng to buy) I have researched this myself under different websites, ingetc and there are a number of people well quite a few that are having this issue. I actually found out because i started to notice in my bowel motions a baked bean looking something so after noticing this a number of times put on a glove well only because i had one and fished it out. Broke it open to find a wet powder inside. So after many times realised that is what it was. It does bother me there has to be many people with this issue feeling unwell because of this happening to them and they are probably unaware of whats going on
 
M

megirl

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#15
yes you reminded me i will ring my support worker in the morning, have already told him he almost like ignored me tosser but anyway I will follow this up. Actually my GP will take note as he respects me as a registered nurse and listens which is great. Whereas the psych workers at times just brush things off. So indeed keep posting will let you know how i get on x
 
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Iamme

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#16
I have been an RN - well was prior to getting chronic pain and then severe depression so I know too much which sometimes isn't a good thing. After reading some other people's stories about this and what they have gone through I have not finished fighting this as yet.
I also submitted a report to CARM (Centre for Adverse Reactions and Monitoring) about what happened when I took it and they put a warning on my file and sent me a letter to advise they had seen an increase in reporting since the change-over of this medication and would continue to monitor it.
 
M

megirl

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#17
Well it may seem a bit weird looking through your poo's but realistically well if you saw blood or lots of mucous you would hopefully do something about it. Really its not weird to actually check whats going on every now and again, its being self aware and we all should take note with whats going on with our bodies, and if you think its nothing but continues then its a good idea to get it checked out. I wasnt too worried felt a little bit like whatever but when it kept happening was glad i worked it out.

I think maybe if i hadnt been a nurse i may have not thought much about it but even that i find quite concerning as there maybe a number of people having this issue but being unaware
 
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megirl

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#18
Iamme,
sorry i totally missed your last post.
Yes i was also an RN
Yes thats very interesting, it does bother me. I know if i speak to my GP he will do something to follow this up, as he is one of the board members or whatever the psych people may not give a toss however i will push for answers

Like you yes we do need to push for answers as there will be many people that are suffering because there bodies cant process this form of venlafaxine
 
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megirl

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#19
Well...finally they took notice and there seems to be a few people this is happening too where i live so only a few thousand people in our township there will be so many more. It does bother me up. as people that are depressed may have been getting positive results with venlafaxine brand effexor. Then once the change was made to enlafax well at rings alarm bells surely. So yes i will keep seeing how the local pharmacist is getting on with the drug company and my psychdoc. Indeed following it. So i will continue on enlafax knowing that once the capsule is opened i can take the small beads/tablets out and take them that way which is fine.
I have to say that within the capsule depending on the dose there are only 2 or 3 beads so why bother putting them in a capsule. As long as the contents arent crushed then thats fine.
Even my husbands like well isnt that good? if you dont have to put the plastic from the capsule in your body then why should we have too? Anyway feel like ringing the drug company myself lol
 
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megirl

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#20
two days ago took my meds forgetting to open the capsule up of the enlafax. That night woke up in a bed of sweat. The whole bed was saturated and for most of the day i was anxious and feeling a bit spaced out scary stuff really