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The NHS denied me the truth for 15 years.

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Happychappy

Well-known member
Joined
Jun 21, 2009
Messages
45
For 15 years I have repeatedly questions why anyone thinks I have bi-polar and for 15 years the NHS has just blow smoke in my face. Just got in writing this was all a mistake ! I was put on Lithium to deal with depression, and they lost all my records. They then assumed I must have bi-polar from that point on. It was the expert patients of this forum that helped point out I may not have it.

When I asked GP’s why I don’t have it here’s a flavour of some of the responses; “Not everyone with bi-polar exhibits bi-polar symptoms”; “Well our treatment must be working really well.”, “You’ve not studied medicine for 7 years so what do you know ?”

So does anyone have any experience in litigation against the NHS. They owe me 15 years and some. I did call a no win no fee once, and boy to they hound with high pressure tactics. So I qualify for the no win no fee, but anyone got any experience it would help. In return, I’ll be campaigning against the clear prejudice I came up against once labelled with Bi-Polar. “Treat the behaviour not the label” is just lip service from the NHS. Their approach to me made a major U turn once I got the label.

I have since come of Lithium – no problems so far. Having paid privately for Cognitive Behavioural Therapy getting better for the first time in 15 year. F*ing NHS – bunch of vampires.
 
Anime-Alchemy

Anime-Alchemy

Well-known member
Joined
Oct 21, 2013
Messages
4,507
Location
On a comet
I'm soo sorry to hear about that :sorry: I'm sure the other forum members can best advise you. Best of luck.
 
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simon7319

Well-known member
Joined
Apr 25, 2015
Messages
48
Have you try PALS NHS they are not on no one side and work for a solution to the problem and its free and you can ask them for help.

Ask for a complaint form which is posted back to the director of the NHS hospital you went to. He/she has to then investigate the neglect and has to write to you in person don’t take phone call as you will need it in black and white.

If no joy try CAB in your local area

Still no joy you have your right to ask for your medical records which can be viewed in private they can only refused if they think you are going to be a danger to your health. The NHS can not say no under the data protection you have the right to see them

You can request to have a meeting with the person in charge of your case

Waste of time asking MP he/she will not listen and do not care

failing this you can seek legal advice although if you take the NHS to court and loose you end up paying the cost and be a black mark on your list.

No win no fee you still have to have hard good evidence after all these are only agents and not solicitors who get involve at the ending part and then again if you take the NHS to court you will need a barrister and solicitor. Only when you gone down the full road and done everything humanly possible you should turn for legal advice

Hope this helps

I know its little comfort but it will give you some idea what you can do and i hope you find my suggestions to be of comfort and beneficial for you.
 
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Happychappy

Well-known member
Joined
Jun 21, 2009
Messages
45
PALS has not teeth.

So I guess no one else has had a similar experience ? Problem with being told you have an illness you don't is that you're always expecting any day now to get those ailments. I also felt there was huge prejudice, in that NHS staff would treat me as if I was a completely different person. They would ask really derogatory questions and act as if I was someone completely different - rather than showing respect based on how I actually behaved. Because I'm normally very polite and non confrontational, they used that to just fob me off, and refer me around in circles. Ironically I actually worked within the NHS PALS, so I'm afraid to say the impartiality is a front. Senior consultants (white coats) rule the roost, PALS ain't go no teeth. You need your local MP or a lawyer to get the NHS to take notice. Sickens me to see how the NHS blames A&E waiting times on the patients who "are abusing it " or the goverment who should give them more money. The NHS avoides responsibility like the plague, which is why it doesn't change. It doesn't need to.
 
Kerome

Kerome

Well-known member
Joined
Sep 29, 2013
Messages
12,751
Location
Europe
I can understand how you would be upset, and it's a good thing you've done something about it. But I'm afraid in mental health it is not uncommon for people to go through a series of diagnoses in their time as a patient, getting just one consistent diagnosis across a decade of contact with the NHS mental health service is the exception, not the rule.

Honestly I think you have to accept that as a mental health patient you have to remain to a certain extent in control of your story, your symptoms and your medication. Ultimately the label they give you is just a shortcut to a set of recommended treatments and meds, and your personal story is a more important description of how you came to feel the way you do and its causes. Your symptoms are what you are trying to treat, how you feel determines how ill you are. Your medication is what is meant to treat your symptoms. What you think and feel are important, no one should get railroaded by their pdoc into medications or a diagnosis that you disagree with.

If you don't agree with it, you should get into discussion with your pdoc. If you show yourself to be knowledgeable and insightful they will often agree with medicine reduction attempts, and if that goes well coming off meds altogether.
 
R

ramboghettouk

Well-known member
Founding Member
Joined
Jan 7, 2008
Messages
15,527
Location
london
one friend who tried to take the nhs to court said the defence is it was the state of the art at the time, i'd like to take council social services to court but in those days courts again and again acccepted lack of resources as a defence when they broke the law, said to my neighbour who shoplifted if they catch you say it's lack of resources thats making you break the law like that social services office down the road

Maybe i could argue misdiagnosis but now i need a nasty diagnosis for the benefits though peoples reaction to it isn't nice
 
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