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Testing for Picks/FTD?

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Lyria90

Well-known member
Joined
Jan 30, 2017
Messages
70
I've been reading up about said topic and have read conflicting things. Is picks disease/FTD hereditary? Are there genetic tests that can be done for family members?
 
exyz

exyz

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Joined
Jun 14, 2017
Messages
2,773
hi there Lyria, you are right, it is confusing:scratcheshead:

All I can find on different sites is to ask your doctor for a genetics referral and they are USA sites.

The only thing I can suggest is if you email Dementia UK and ask them for advice. They at least are a reliable source I would think.

Here is the link. Dementia UK

All the best to you :hug1:
 
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Lyria90

Well-known member
Joined
Jan 30, 2017
Messages
70
Thank you for the link. I'm just a wreck worrying about if there's a chance I'll get it or not
 
exyz

exyz

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Joined
Jun 14, 2017
Messages
2,773
I understand totally. I have a neurological condition and no one will ever tell me if my chances of developing a form of dementia are increased.
I think if you contact them tell them how you are feeling and get some support.
It is really lonely worrying about stuff like that . I know it is all very well someone saying that anything could happen to any of us at any time etc. Which is true. It still doesn't stop the worry.

What I would say though, is that there is lots of info on the internet but there is nothing showing up that says it is a strong chance. It's all a bit of a fudge. I think.

Talk to your doctor too, ( if you can get an appointment:unsure:). Although probably the likes of Dementia Uk might have more of an idea of things and how to move forward.

Sorry they are not about till Monday, but nowt to stop you sending an email in the meantime.

Take care you. If you need to chat at all I'm always lurking about and will get back to you.:hug1:
 
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Lyria90

Well-known member
Joined
Jan 30, 2017
Messages
70
Thanks for taking the time to respond to me. I've felt very alone since dad got ill so it's nice to know other people have the same worries. I get sick of people telling me not to worry about these things, when I obsess over every little thought. Most just don't understand
 
exyz

exyz

Well-known member
Joined
Jun 14, 2017
Messages
2,773
Hey, my privilege:)

I'm so sorry I haven't followed your story. Sometimes I get a bit wrapped up in my own stuff:redface:
I won't say don't worry because it is natural to worry. I think when you are alone so much then you do dwell on things.
It's a lot to manage on your own this. I've lost a Nan, and three uncles to dementia. I'm a bit ancient myself so a bit of a thing with me.

I'm sorry about Dad, it must be very difficult for you. You must look after yourself as much as possible, eat properly for starters:)

Definitely contact Dementia UK too. :hug1:

Talk away as much as it helps. It is a bit slow on here sometimes for a response but I will be sure to keep looking in. :)
 
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