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Severe O.C.D episode

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terry1234

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Joined
Aug 9, 2021
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1
Location
Bexhill on sea
My son has Asperger's. Over the past few days he has stopped drinking and eating because he feels everything is contaminated. He also thinks he has a disease and doesn't want to pass it on. Example' I just sat in the floor is that ok because I may pass on diseases ' I feel like there is something in me ' .Any help would be appreciated I'm new to this so sorry if I made any mistakes.
 
Tawny

Tawny

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Nov 10, 2019
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England
Hi Terry1234,

I think the best place to go for professional support is his GP or any other doctor than your son has.

There are members on the forum who have OCD and some who have Aspergers, but i wonder if you would be better off asking his GP for a referral to any support groups or specialist places.

I will see what i can find out for you.

My basic understanding is that Aspergers and anxiety go hand in hand, and that OCD is also anxiety. When someone has anxiety, again my basic understanding is that life needs to be much more simple, calm, and also matter of fact. So if you are confident about everything, sensible, rational, but never harsh or abrupt, then your son should follow your lead and become more confident and less anxious. I don't know, but it is what i would do.

With any type of anxiety, it is important to push a person slightly out of their comfort zone often, in order to make progress.
 
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riley564

Member
Joined
Aug 21, 2021
Messages
19
Location
UK
My son has Asperger's. Over the past few days he has stopped drinking and eating because he feels everything is contaminated. He also thinks he has a disease and doesn't want to pass it on. Example' I just sat in the floor is that ok because I may pass on diseases ' I feel like there is something in me ' .Any help would be appreciated I'm new to this so sorry if I made any mistakes.
Hi Terry,

Can I ask how you and your son are getting on? Just read this thread and can relate- I’m an adult awaiting diagnosis for ASD (and suspect bipolar so could be related to this too, not sure). I have similar bouts of what you are describing, although seems on a milder level. I took therapy for quite a while and I found a few things helpful:

1. People close to me would say don’t read things. But for me, researching facts helped. I memorise and take in facts like a sponge. They are comforting to me and, unlike people, not confusing! Percentages help massively (ok there’s SOME chance I can get x but only 0.0004%, for example) I’m not sure how old your son is but could you put together some information for him? NOT at all to “show him he’s wrong”. But what I mean is listen and understand his worry, and help him check the facts. What do the books say? Can you get disease from the floor, and why not? What do we pick up from food, and what happens? What are the symptoms of having x disease, I know I don’t have disease x because... Understanding this stuff in really simple terms helped me. Maybe that would help him too. Even maybe put together a little book type thing.

2. Have routine. Have a safe anchor to fall back on. Can you establish one food that’s safe? That he always has for breakfast, in the same bowl, same place? (That the info from #1 confirmed is safe). This is something I did. I also took food out with me. (Some days I would be out and would refuse to eat, get angry, get sick, have to go home, and to try and get people to understand why I couldn’t eat it was the hardest part. I felt like I was on another planet. My mind was so focused on the one thing it would trigger a meltdown, bc everything else became overwhelming). So just to be that one person who is listening and taking him seriously and going “ok, let’s figure this out together” is massive.

3. There’s a great OCD handout the CBT therapist gave me. Basically you start with small steps and work up a “ladder”. So, like above, you’d start with one tiny thing. I dunno for you guys like maybe your son sits on a cushion on the floor. Then, he learns no disease happened. Then, you work up to bigger things, learning to sit with the feeling of anxiety (with OCD there’s something that’s always done to “make thing go away”. Does your son have something he does? So he would learn to sit first with that tiny bit of anxiety withOUT doing that compulsive thing.). Or is it more autism-related? As in, not a compulsive OCD reaction but a struggle with the fixation? How is he reacting?

4. Again, don’t know how old your son is. But there’s something called an Emotional Toolbox that’s awesome too. It’s a set of coping skills for those on the spectrum who find managing emotions difficult. I’m in my thirties and helps me. I’m an artist, so I made myself a little illustrated version to turn to when I need. It’s basically 5 tools to pull out when your head’s in a fix and you can’t overcome a feeling. One of the tools is turning to the logical facts, another is special interest, positive social support, calming, physical, etc. Each’ll be specific to the person.
So, when your son has something happen and asks you, you can have a game plan to turn to. “Ok, let’s... check our facts/ do x to calm down/ etc”


Sorry if this all sounds obvious or isn’t much help. I really just wanted to offer any helpful info up. And I’m wondering how you guys are doing? Did you learn any helpful techniques?

And sorry for the long post. I read this and I just really felt for your son. It’s a tough feeling being in a place where you genuinely believe something will make you sick and everyone around you doesn’t get why. Wouldn’t wish it on anyone. Still struggle with it myself. It’s incredibly incredibly tough. Hope you guys can work through it if you haven’t already. Best of luck.
 
P

Percy23

New member
Joined
Oct 15, 2021
Messages
1
Location
Arizona
Did this ever resolve? The sudden onset of this sounds like PANS or PANDAS. He probably had an infection that caused the brain inflammation leading to these thoughts. My son has Aspergers/ASD and PANS. They seem to go hand in hand. He had a fever/headache last week and this week has a whole new OCD like I’ve never seen in him before. It’s sad to watch. Can’t wait to get into his doctor on a Wednesday. I hope your son is doing better.
 
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