• Hi. It’s great to see you. Welcome!

    Our forum members are people, maybe like yourself, who experience mental health difficulties or who have had them at some point in their life. Amongst our membership there is a wealth of expertise that has been developed through having to deal with mental health issues.

    We are an actively moderated forum with a team of experienced moderators. We also have a specialist safety team that works extra hard to keep the forum safe for visitors and members.

    Register now to access many more features and forums!

  • Safety Notice: This section on Psychiatric Drugs/Medications enables people to share their personal experiences of using such drugs/medications. Always seek the advice of your doctor, psychiatrist or other qualified health professional before making any changes to your medications or with any questions you may have regarding drugs/medications. In considering coming off psychiatric drugs it is very important that you are aware that most psychiatric drugs can cause withdrawal reactions, sometimes including life-threatening emotional and physical withdrawal problems. In short, it is not only dangerous to start taking psychiatric drugs, it can also be dangerous to stop them. Withdrawal from psychiatric drugs should only be done carefully under experienced clinical supervision.

Quetiapine withdrawal - how long to get through it?

J

JustARide

Active member
Joined
Nov 7, 2019
Messages
30
Location
York
I am feeling so physically ill. I know it's my fault for stopping the medication but I just cant take it anymore. I've taken quetiapine for 8 years and I'm so worried about what it's doing to my physical health long term. I didnt plan on stopping it but something wasnt right with the last strip of pills, I know It wasnt really quetiapine. I told the nurse who was doing my assessment and she said I should take them to the pharmacy and ask them about it. I couldn't take them to the pharmacy or they would know that I know they've swapped them. Anyway then I got thinking about why I take them anyway and how harmful they really are so stopped taking anything. I knew I'd feel ill from it but If i can just get through the withdrawals I'm hoping I'll be alright. I'm scared though of things going wrong with no medication but at least if it's all out of my system I can see how I really am and start again. 8 years is a long time. And I wasnt even given a diagnosis.

I got a letter last week following assessment with EIP and it said historical diagnosis "depression and paranoid personality disorder" - no one has ever ever mentioned me having a personality disorder! This must have been on my records for at least 8 years... but I've never been told. I'm feeling very resentful of this.

But I need to focus on getting physically well. The withdrawals make me more concerned for how much damage medication has done to me physically. Its affecting every part of my physical health right now. Even the taste in my mouth.

I'm hoping i will be through it in another week. Does anyone have any experience of this? Is that a realistic hope?

Thank you
 
daffy

daffy

Well-known member
Moderator
Founding Member
Joined
Dec 16, 2007
Messages
6,992
Location
hiding behind the sofa
  • Safety Notice: This section on Psychiatric Drugs/Medications enables people to share their personal experiences of using such drugs/medications. Always seek the advice of your doctor, psychiatrist or other qualified health professional before making any changes to your medications or with any questions you may have regarding drugs/medications. In considering coming off psychiatric drugs it is very important that you are aware that most psychiatric drugs can cause withdrawal reactions, sometimes including life-threatening emotional and physical withdrawal problems. In short, it is not only dangerous to start taking psychiatric drugs, it can also be dangerous to stop them. Withdrawal from psychiatric drugs should only be done carefully under experienced clinical supervision.
 
daffy

daffy

Well-known member
Moderator
Founding Member
Joined
Dec 16, 2007
Messages
6,992
Location
hiding behind the sofa
Can i ask you what dose you were on because it’s extremely dangerous to stop this or any medication suddenly and can have very serious side effects.
I was on 650 mg of quetiapine and it took me 18 months to come safely off it. And even then i suffered a quite bad depression a couple of months after stopping the last dose .
If you’ve stopped suddenly it could send you into a psychotic episode. Please tell your nurse what you have done.
 
J

JustARide

Active member
Joined
Nov 7, 2019
Messages
30
Location
York
Hi daffy,

Thanks for replying.

I've been on 100mg for 8 years. Have just been referred to CMHT so I'll talk to them or my gp about it, whichever I see first. I know it's a really bad thing to do but I honestly believe the tablets I've been taking for the week before I stopped arnt really quetiapine. I stopped altogether 5 days ago but dont think I'd had any for a week before that. I'd spoken to the nurse who did my assessment so she was aware of my concerns but at that point I hadnt decided to stop. Its the physical withdrawals that are so awful. If I can just get through these then I can hopefully start from scratch with cmht and be prescribed something less harmful. I loved quetiapine for years, it saved me but now I feel like its poisoning my system. I thought about calling my gp today to tell her I've stopped but I dont want anyone to try to make me go back on it after getting through a week of being really ill. I just need to get through it 🤷‍♂️.
 
T

thisisnotmylife

Well-known member
Joined
Nov 13, 2019
Messages
57
Location
UK
what made you think that the pills weren't really quietiapine? I had a similar thought during my last episode. I had previously dropped them from 300mg to 200mg after 6years of being well. at first I didn't think it affected me. I really wished I hadn't dropped the dose because my episode may never have happened.
I went cold turkey once only because I ran out during new year. I paid full prescription price just for one dose the withdrawal was that bad. I do not recommend stopping quietiapine ...really do not. you could be getting paranoid about the pills due to stopping them. see the early warning signs of relapse as this may be the case, best of luck.
 
J

JustARide

Active member
Joined
Nov 7, 2019
Messages
30
Location
York
Thanks thisisnotmylife...

More context... I've been seeing my gp weekly for a few months as been getting more unwell since august. She kept telling me to ring the crisis team but I said I didnt need to. 2 weeks ago she phoned the crisis team while I was there and I had an assessment the following day. They referred me to EIP and 2 days later I had an assessment with them. My gp was on holiday last week so I havnt had any contact with her since the day she phoned crisis.

Regarding the tablets, for at least 5 days before i had the EIP assessment I knew the tablets weren't right - when i take quetiapine I can feel it in my system, but these ones weren't switching me off. Still wide awake, thoughts racing, feeling exactly the same as if I'd missed a dose even though I was taking what was supposed to be my medication.
At the EIP assessment I asked what I should do about the false medication as I was scared about getting more ill without correct medication (ironically now). She advised me to speak to my gp or to take the medication to the chemist and ask them to check it. (I also went to a mental health safe space drop in thing a few days later and spoke to a woman there about my concerns and she advised the same). But my gp was on holiday, and theres no way I'm going alert the pharmacist that I know they've messed with my medication. So I stopped taking the tablets (whether they were placebo or something else I dont know). And I couldn't tell anyone to try to get correct medication because it still might not be real. Then feeling so physically ill withdrawing highlighted what awful things it must be doing to me physically. I'm scared of the long term effects... diabetes etc. So now that I'm a chunk of time into getting it out of my system I dont want it putting back in. But I am very scared of getting more ill. I go back to work on Wednesday after 2 weeks off but feel worse now than I did before I went off. I just dont know what to do anymore. All the appointments last week took their toll I think and now I just feel flat and physically ill.
 
J

JustARide

Active member
Joined
Nov 7, 2019
Messages
30
Location
York
Also EIP said as it's not my first episode they are referring me to cmht instead... so I'm waiting to hear from them.
 
J

JustARide

Active member
Joined
Nov 7, 2019
Messages
30
Location
York
(And when I say "not my first episode" I mean of hearing voices). Sorry I'm not being very clear
 
T

thisisnotmylife

Well-known member
Joined
Nov 13, 2019
Messages
57
Location
UK
And I couldn't tell anyone to try to get correct medication because it still might not be real.
the reason the pills weren't having an effect on you.....could it be possible that you are relapsing? I dont know, your paranoia around the pharmacy giving you the wrong pills are giving me alarm signals. if they did get the pills wrong then surely its a genuine mistake and not them messing with your meds. the fact that you think that is telling me that you are in a relapse possibly? I hope you get help asap, thinking that people are messing with your meds could be a sign of relapse. I thought that CMHT had messed with mine while they were upstairs and it was all part of the episode I had.
 
J

JustARide

Active member
Joined
Nov 7, 2019
Messages
30
Location
York
I can see it's likely that you're right, but I can only trust my instincts and all they are saying right now is dont take the medication. I dont know what to do. I dont feel like I'm psychotic... the voices havnt even been as significant the past few days. If anything I feel like I've been switched off. I would speak to my gp but shes spent so much time with me already and theres really nothing she can do in this situation except try to make me take the medication. I really just want to feel physically better, i cant have gone through all this just to go back on them.
 
J

JustARide

Active member
Joined
Nov 7, 2019
Messages
30
Location
York
I'm sorry I know I must be very frustrating to talk to. I'm taking on board everything you are saying. I'm thinking about what to do... thank you.
 
T

thisisnotmylife

Well-known member
Joined
Nov 13, 2019
Messages
57
Location
UK
no not frustrating atall. dont worry, we are all here to help. I would recognise that your probably relapsing and take the pills. if your still really not sure, then go to the chemist who gave you them to check them. its important that you can trust them to tell you the truth which of course THEY WILL. You have to trust them to let them help you. You can always phone the local crisis team too if you feel it is an emergency.
 
J

JustARide

Active member
Joined
Nov 7, 2019
Messages
30
Location
York
Thank you. I'll think carefully about stuff and see how I am when back at work. I'll soon know If im not right once back in normal routine rather than staying at home. I just wish stomach and everything would stop hurting. Its XR that I was on so dont know if that has any impact on withdrawal times. I'm meeting a friend later... I might go to the drop in place afterwards and speak to someone.
Thank you for your help :)
 
Top