Questioning my schizophrenia

Loopylou83

Loopylou83

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Joined
Jul 11, 2019
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13
Location
Uk wales
Hi, I was in hospital last week admitted new to been a danger to self and others. When my care coordernater made a comment saying she felt I did not feel I suffered with schizophrenia although I had been diagnosed with it by my doctor many years before. I did not comment on what she said but it played on my mind for days to come in till I sent her a message as followed ...............Something has been bothering me so I will just spit it out. You said the other day that you thought I did not suffer from schizophrenia due to symptoms I've displayed. But like you said in the past everyone with a mental illness can display different symptoms and have the same disorder. Also you are not a doctor or a pycatric nurse so now can you be so quick to judge on what I suffer with. I know you have 25yrs in the service but I've had 36yrs suffering with mental health. You telling people that I don't suffer from a mental illness that I'm diagnosed with will mean I will not get the help I need in crisis. To me it's irrelevant to what they label me with its not going to alter the symptoms I have . I've opened up to you about my voices but I believe you think they are just thoughts and that I am making them up for some reason. I won't talk to you about the voices no more. We have been together for 11yrs now and I've ALWAYS been honest with you. When someone stops believing, it's time to stop talking........... she responded with the following replie .......... Thanks for writing this and being honest. While you're right that I'm not a doc or a nurse, I've been working a very long time in this job Lou and I stand by what I say. However I have never once said that you don't suffer with voices or have a significant mental illness. The actual label for me is usually not important, but in your case it is and you are far more complex than the diagnosis of schizophrenia so when I say that,its because I want people to understand YOU and not just consider you as a label. I'm really sorry that you feel my opinion is not worthy coz I'm not a doc or nurse, but when I come back off leave, I'll speak to the team and request that you have someone that does have one of those labels attached to them so you can feel reassured them that they know what they're talking about....... What do I make of this, are they going to now diagnosed me with something different? Have I now not got schizophrenia? I'm so confused. Please someone intupred this for me. Many thanks
 
fazza

fazza

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Jul 23, 2014
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I think the whole dsm manual needs a complete overhaul. Psychiatrists are kinda bound by this book when it comes to giving us a label but schizophrenia is so broad that the label itself is stretching itself too far. In the last edition the writers classed schizophrenia as one complete illness. Doing away with subtypes such as paranoid disorganised and the rest. They also tried to make schizo affective disorder an easier diagnostic profile.
The thing that bothers me like you sometimes although we fit in with first rank symptoms there are many other symptoms that we may never get.
I am reasonably well a lot of the time. I have a regular running commentary from my voices and I have paranoid thoughts but in other aspects I am completely OK. I function normally and I live a full life yet I have this diagnosis of schizophrenia. It seems to me that schizophrenia is too broad a diagnosis when you consider the poor souls locked in catatonic state yet I am just about to go to the shop for a beer. Both of us have schizophrenia yet one is stuck in complete hell yet I can pretty much do as I will.

When I am ill I am very ill but I still am knowhere nearly as ill as others yet the one fit for all label applies to us all.

Sorry for the ramble
 
FadeToBlack

FadeToBlack

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Nov 26, 2018
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100
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UK
The label really does not matter. All a diagnosis is used for is a map for treatment. I would investigate and challenge more on what she means and get a second opinion. You need the right treatment.

I wouldn't get worried about a dx. What matters is your treatment.

At least your care coordinator takes an interest. I had to complain about mine to PALs
 
Loopylou83

Loopylou83

Member
Joined
Jul 11, 2019
Messages
13
Location
Uk wales
The label really does not matter. All a diagnosis is used for is a map for treatment. I would investigate and challenge more on what she means and get a second opinion. You need the right treatment.

I wouldn't get worried about a dx. What matters is your treatment.

At least your care coordinator takes an interest. I had to complain about mine to PALs
You right. But I needs the right diagnosis on the system for when I ring up in crisis. They would then have the information at hand and the treatment can be given to help me.
 
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