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Questioning my schizophrenia

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Loopylou83

Member
Joined
Jul 11, 2019
Messages
15
Location
Uk wales
Hi, I was in hospital last week admitted new to been a danger to self and others. When my care coordernater made a comment saying she felt I did not feel I suffered with schizophrenia although I had been diagnosed with it by my doctor many years before. I did not comment on what she said but it played on my mind for days to come in till I sent her a message as followed ...............Something has been bothering me so I will just spit it out. You said the other day that you thought I did not suffer from schizophrenia due to symptoms I've displayed. But like you said in the past everyone with a mental illness can display different symptoms and have the same disorder. Also you are not a doctor or a pycatric nurse so now can you be so quick to judge on what I suffer with. I know you have 25yrs in the service but I've had 36yrs suffering with mental health. You telling people that I don't suffer from a mental illness that I'm diagnosed with will mean I will not get the help I need in crisis. To me it's irrelevant to what they label me with its not going to alter the symptoms I have . I've opened up to you about my voices but I believe you think they are just thoughts and that I am making them up for some reason. I won't talk to you about the voices no more. We have been together for 11yrs now and I've ALWAYS been honest with you. When someone stops believing, it's time to stop talking........... she responded with the following replie .......... Thanks for writing this and being honest. While you're right that I'm not a doc or a nurse, I've been working a very long time in this job Lou and I stand by what I say. However I have never once said that you don't suffer with voices or have a significant mental illness. The actual label for me is usually not important, but in your case it is and you are far more complex than the diagnosis of schizophrenia so when I say that,its because I want people to understand YOU and not just consider you as a label. I'm really sorry that you feel my opinion is not worthy coz I'm not a doc or nurse, but when I come back off leave, I'll speak to the team and request that you have someone that does have one of those labels attached to them so you can feel reassured them that they know what they're talking about....... What do I make of this, are they going to now diagnosed me with something different? Have I now not got schizophrenia? I'm so confused. Please someone intupred this for me. Many thanks
 
fazza

fazza

Well-known member
Joined
Jul 23, 2014
Messages
1,682
Location
U.K
I think the whole dsm manual needs a complete overhaul. Psychiatrists are kinda bound by this book when it comes to giving us a label but schizophrenia is so broad that the label itself is stretching itself too far. In the last edition the writers classed schizophrenia as one complete illness. Doing away with subtypes such as paranoid disorganised and the rest. They also tried to make schizo affective disorder an easier diagnostic profile.
The thing that bothers me like you sometimes although we fit in with first rank symptoms there are many other symptoms that we may never get.
I am reasonably well a lot of the time. I have a regular running commentary from my voices and I have paranoid thoughts but in other aspects I am completely OK. I function normally and I live a full life yet I have this diagnosis of schizophrenia. It seems to me that schizophrenia is too broad a diagnosis when you consider the poor souls locked in catatonic state yet I am just about to go to the shop for a beer. Both of us have schizophrenia yet one is stuck in complete hell yet I can pretty much do as I will.

When I am ill I am very ill but I still am knowhere nearly as ill as others yet the one fit for all label applies to us all.

Sorry for the ramble
 
FadeToBlack

FadeToBlack

Well-known member
Joined
Nov 26, 2018
Messages
104
Location
UK
The label really does not matter. All a diagnosis is used for is a map for treatment. I would investigate and challenge more on what she means and get a second opinion. You need the right treatment.

I wouldn't get worried about a dx. What matters is your treatment.

At least your care coordinator takes an interest. I had to complain about mine to PALs
 
L

Loopylou83

Member
Joined
Jul 11, 2019
Messages
15
Location
Uk wales
The label really does not matter. All a diagnosis is used for is a map for treatment. I would investigate and challenge more on what she means and get a second opinion. You need the right treatment.

I wouldn't get worried about a dx. What matters is your treatment.

At least your care coordinator takes an interest. I had to complain about mine to PALs
You right. But I needs the right diagnosis on the system for when I ring up in crisis. They would then have the information at hand and the treatment can be given to help me.
 
NWiddi

NWiddi

Well-known member
Forum Safety Team
Joined
May 6, 2017
Messages
1,342
Location
Sheffiield
I'm a voice hearer and while I haven't been hearing them for long (only three and a half years) I haven't been diagnosed with schizophrenia.

I was officially diagnosed with psychosis but I see that as a temporary mental state rather than an on-going life long problem like schizophrenia, I'm fine now and have been for three years after two episodes of psychosis, the first episode lasted a few weeks before I came out of it on my own during a nine day voluntary hospital stay without medication and my second lasted nearly two months and ended with me getting anti-psychotics once I had gained enough insight into what was going on yet on medication I still hear this voice although much quieter.

I still get all the help I need from my care coordinator and the rest of my mental health team, although my time with them is nearly up and I'll be put on a long term team instead where I'll still have access to a prescribing doctor and have a physical health check-up on a regular basis.
As long as I can continue to get my medication quite possibly for the rest of my life as that's what's important I should be good.

I class myself as a 'healthy voice hearer', if I never told you I hear a voice that isn't my own or tried to explain where I believe voices come from you'd never think I was different from any body else, but I am very different.
 
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