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PD Aloneisum, anyone else have it too?

I

Ian Sicko666

Member
Joined
Jul 27, 2019
Messages
19
Location
London Bourogh of Havering.
Hi, been diagnosed with a few issues but as this is the PD board. Anyone else have this one? How have you dealt with it? Are you under treatment? What is the treatment?
Lol, a lot of questions, because diagnosed 4 years ago, still getting no treatment for it! Was a hermit for 15 years, hardly left the flat. On 150mg Seratine for the Childhood PTSD (anti-anxiety, Prozac medication), but can feel bloody PD creeping back. On license from prison, strangly prison helped a lot,lol,so much over crowding ,and constant bang up, with a cell mate in a broom closet, forces you to socialise quickly lol. Problem is now out, no one around, and billion maddening conditions mean it's virtually impossible to mix with anyone! I will not go into past, but addiction caused prison. Though now i cant mix anywhere theres under 18's,over 65's, anyone classed as disabled or vunerable, or anyone, if i know about it or not, with a criminal record, basiclly the entire population! My phychiatrist has no idea how i am supposed to recieve CBT therapy which he recomends, and another health worker that wants to recommend other treatment; cant, an probation blames police,police blame probation. If your lucky enough not to have to deal with them, you never get straight answers, they constantly blame each other, an constantly inform you to do stuff that you get into trouble for by the other. They DO NOT TALK TO EACH OTHER, mean while i am left in the middle desperatly trying to mend my ways but seemingly blocked at every turn. Well, hence me asking here how do others deal with it? Perhaps i might discover something i would be allowed to do, despite the "support" i am getting? I dont even know if i am allowed to post here, to ask this? When i asked the body i am supposed to be able to ask all i got was, "i dont know?"...... I have just given up bothering, i am asking, i am trying to find answers, trying to fix myself, if any of them has a problem i will fight them in court, its utter madness!
 
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Zoe1

Well-known member
Joined
Jul 8, 2019
Messages
3,200
Location
Nowhere
you could ask to see your records and get copies of them

:grouphug:
 
I

Ian Sicko666

Member
Joined
Jul 27, 2019
Messages
19
Location
London Bourogh of Havering.
you could ask to see your records and get copies of them

:grouphug:
Thank you for posting ❤

I tried, both in prison ,i paid for the records under the freedom of information act, which only resulted in me getting the prison records ,and treatments i received ,during the incarceration, 2 1/4 years worth, no further back. When i asked where my life's treatments records where? All i got was, don't know, this is all we received.
And when out, i requested records from my GP, Mental Health care worker, Phychiatric Services phychiatrist, and from NELFT's "Changing Lanes" psychiatrist. All keep telling me they can't find any records? I also have emailed, the only email address i could find about this, from the NELFT's website, to do with medical records, asking them where my life's records are, and why can no one find anything? Of course. No answers yet.
To be truthful, i simply do not know who else to ask? Since my experience of the UK legal system. Anyone, i contact, i need to really do via email ,so i can keep copies of the requests, and any replies. This is because telephone conversations i had with with 999 "disapeared" at my trial, so now i keep ,ALL, communications i have with any government body as hard copies!!!
I also contacted the Medical Ombudsmen about why a potentually life threatening mistake on my current records , apparently ,semmingly , so i have been informed by my GP, "can not be removed by them", and asked them how such a life threatening mistake could be fixed before it results in my death? Of course, so far......
 
Z

Zoe1

Well-known member
Joined
Jul 8, 2019
Messages
3,200
Location
Nowhere
I dont know what advocacy and legal advice may be available
if you have had a prison term
but I would think there should be something
otherwise how are people expected to get their lives back together ?

the incompetence you describe is all too familiar to me
from my own treatment
and I have been constantly going uphill trying to fight it
with hand written letters from myself
I make a copy by copying out the letter in my email box
but I send the letters by post
because I feel that emails just get swallowed up
in the volume of other emails

I have also an advocate, a mental health solicitor,
and a therapist and step mother who have fought for me
when my needs were not met ,
or I was subjected to something harmful in my treatment

:grouphug:
 
I

Ian Sicko666

Member
Joined
Jul 27, 2019
Messages
19
Location
London Bourogh of Havering.
Sorry for such long delay replying, seem to have so much to do i forgot to check my post, sorry.

I had to resubmit my request for my medical records, first request disappeared. Second request i had to submit photo of my passport to prove its me requesting. Records could not be found. I contacted "Iron Mountain" the place ALL medical achieved records are kept. They told me they couldn't help me as i am not a business. I contacted NHSEngland. They will "try" to find them. So i contacted ioc and told them about this ridiculous situation. One my apparently "missing" achieved records, and, Two the fact they have me down as a type 2 diabetic instead of the correct type 1! They informed me i am supposed to wait four weeks before contacting them to give NHSEngland time to sort themselves out, BUT, told me to contact them again in 3 weeks as they are very interested in investigating this further! Perhaps they will sort this medical misconduct out, i have to wait a bit more before i contact them again, but they sounded like they might help?
I also sore my Probation Officer today. After he got hold of half my conditions from the Police, because he didn't have them on probations system and he couldn't find them! He informs me i CAN socialise after all, IF i contact him beforehand to get the ok, an possibly have to have a escort with me to watch me! This is a turn around. He told me to ignore what the police told me, that i could not talk to anyone, join no clubs, couldn't go to the church coffee morning, not talk to anyone. He told me to ignore them, they were just being lazy, it's HIM that decides what i can and can not do NOT the Police..... As usual, i get nothing in writing from anyone about all this! Quite frankly ,its been nearlly two years of all this lying and bull, i am starting not to care anymore about any of it! It seems its all designed so you fail. No real help and nothing but lies and deciet from all those who are supposed to be ideal role models!!! Sorry about this turning into a rant. It's just you want to do the right thing, change yourself for the better and despite how much you try they do the best to stop you, it's madness!
ON a better note the Brief Access and Intervention Team have informed me they might be moving my case over to CRT, that's the long term phychiatric department. So at least i might be getting longer than the now standard 12 week maximum help people now receive and is classed as the total amount of help given! I no longer believe anyone about anything that's promised until it actually happens, so we will see?
 
Z

Zoe1

Well-known member
Joined
Jul 8, 2019
Messages
3,200
Location
Nowhere
hi Ian thats a total disgrace !

I have never heard of such a deep level of incompetence
and I have seen plenty of incompetence believe me !

' always go higher ' someone once told me
meaning go to the higher authority
than the people messing you about

getting your records is key to recovery
well it was so for me
and that was told to me by my addict brother !

you could take this to the ombudsman
or to your local MP , or find out what the complaints procedure is
or find out how to get advocacy, try Citizens Advice Bureau

make it clear you cannot progress
while being messed about like this

if you contact the MP
maybe include a brief description
of what you hope to do with your life
they will love that !

:grouphug:
 
I

Ian Sicko666

Member
Joined
Jul 27, 2019
Messages
19
Location
London Bourogh of Havering.
You will get no arguments from me, its now moved on....

I contacted NHSEngland again. I kindly asked if there had been any progress? I was informed that information about how to resolve the missing records was to, "Contact IOC, they are the people to do with missing records", and, "Speak to your GP about correcting any error on your records, failing that the IOC are the people to talk to, like i told you before".
I replied, thanking her, an informed her the IOC stated it was NHSEngland in charge of medical records and it was their responcability to correct this issue. Also, i was told to contact the IOC again, if, After 28 days NO records, or, reason was given for records not being found, had not been given to me. I did ask her how I was supposed to contact the doctor to correct their error, if, I could not gain access to the records to discover WHO the idiot was that made the mistake?

The latest calamity. I suffer from needle phobia. I saw the eye clinic for my retinopothy. He informed me therapy for the phobia was urgent ,"as needles into my eyes bi-monthly at first, then monthly for the rest of my life would be sooner rather than latter. Inform phychiatric services as soon as possible!" So, believe me, I did! The next day in fact! I informed phychiatric services, Brief Access and Intervention Team, and, Changing Lanes Intensive Intervention and Risk Management Service. Three phychiatric services I am under. This was two and a half months ago! This week I had to go to the clinic where the needles in the eyes would be performed at if it was happening. So the week before I started to panic. I saw my GP, she told me all she could do was refer me to B.A.I.T, whom you are already under, besides all they would do is refer you to Psychiatric Services who your already under, I advise you speak to them and find out why they haven't done anything? They can give you a single dose of Diazepine to calm you if needles are going to be used".
So I see PS. "I can not prescribe you anything, that would be the GP". "The reason why no therapy was started was i do not believe CBT , or Grounding Therapy would work in your case." I asked about hypno therapy, then, I told him i would try ANY thing! "I do not know of any hypno therapists, anyway in my 30yrs of practice i dont believe they work. Besides under the guidline we dont have to offer any services other than the two mentioned that wouldnt work for you anyway" "Speak to your GP".
As I had already tried the Gp i phoned B.A.I.T. "Speak to PS".
I tried my social worker, "PS is lying. Another one of my clients was sent to a central london clinic for help with his phobia. When anyone asks them they lie or they would have to treat a lot more people than they do. Talk to PS again and tell then you know they are lying and demand treatment. I will contact him and phone you straight back". He phoned back. "I have talked to Will, he tells me he will phone you straight away, so i had better get off the phone".
Waited all day. And the next. NOTHING!
I walked into the PS center. He was with another client so I spoke to a very nice woman instead. "I can see your really scared, i am not on wills team but i am a phychiatrist on another team and can see your really scared, whats going on?" I told her about all the people I had spoke to,seen, trying to get some, any, help, but nothing! "Once will has finished with the person they are seeing now i will ,FORCE ,him to phone you, go home, try to relax, he will phone soon, ok?"
I went home, and, at last, will phoned!
"I told you speak to your GP. No we DO NOT offer any other treatments, who told you this, whats there name?"After i told him i was petrified, one about the needles, but as he already knew, also how i might react. He knew how i punched a dentist once who came at me with a needle, and how it happened so fast i hadnt even thought about doing it, it just happened! An how i didnt want that to happen. Also how the GP had already said he should be the one to prescribe me, which he already knew."Oh well, go ask the go again! If they refuse just go down to A & E and get them to give you it. Oh and don't worry about punching anyone, they can wrap you down so you can't!"
THAT was the help I got, yet again, from Havering Mental Health when I ask in desperation for help!
The last time I asked Havering Mental Health for help and got told to..... I ended up nearly blowing myself up and nearly killed hundreds ,thank god thats never happening again, but what the hell sort of help is that, especially for someone with such a history?

It dosent stop there.....
I walked into my gp's . This is on the day of the appointment at hospital. I pleaded with the go to help. The reason she couldn't, she said, was because she had no record of my appointment at the hospital, possible treatment, or any record about the hospital appointment I had 2 1/2 months prior. She had received NO medical records or letters about ANY of the clinics from the hospital! That was why she couldn't prescribe anything. She couldn't prescribe for nothing she had no record of!!!! She printed out a letter detailing my diagnosed mental conditions, requesting the hospital prescribe the medication. She also asked why NO records where getting to her from the hospital? A letter also from the risk management phychiatrist was also sent to probation for me to give to the hospital requesting medication. I picked it up. Two letters, one from Gp, one from phychiatrist, both requesting I be sedated.
The hospital. "No we can not issue any medication. That is your Gp's responcability. What do you want me to do with these letters, should you have them?" I informed her the Gp couldn't prescribe medication for procedure, or even a clinic, she didn't know anything about, hence her letter requesting info!
"if she wants info she will have to request it" she said.
Is that not what she has done in the letter?! I asked, slightly peed off.
I saw the consultant. Luckily for everyone ,no needles! She did however inform me, NONE of my records where present. NOT even the one of my visit at the same clinic two moths prior!!! NO, medical conditions, no treatments, no medications, nothing but my name!
Probation said he would have gone mental to have been messed about like that by so many "proffesionals", lol, he admired my calmness lol. He said he would investigate to see if he can find out what is going on "because this is ridiculous". Lol, who knows IOC and Probation investigating someone might find themselves in prison and it will not be me lol!
Changing Lanes Phychiatrist was fantastic, I really am glad I am seeing her. BUT. Unfortunately Havering Mental Health now has lost almost any respect I had for it. Three times in my life, childhood, pre prison, and now last week. Every single time I have cried out in desperation to them for help as my last resort, and ALL three times they have done NOTHING! If I ever hear on the news someone from Havering Mental Health has been hurt, I will clap and cheer Karma dispencing its justice! What little trust I tried so hard to develop has once again been proven to have been misplaced. I legally have to keep seeing him, my license dosnt end till January, I really have absolutly no idea how I am supposed to do that when I can't trust him at all now?

Oh add to this DWP didn't send me a sick note renewal letter. So I went, got new one, took it in anyway. Two and a half hours I was there. He grilled me why on HIS system I was not listed as a "life long ESA" OR a "Yearlly Asses ESA", how the hell would I know? I know have a 24page form I have to fill in. Again ,Probation does not know why I am being messed with and has arranged for a DWP expert to fill the form in. I bet medical records will be needed at some point, I haven't got a clue how I am supposed to be a contributing member of society ,when society keeps trying its hardest to hurt me all the time?
 
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