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No help from the Government with PIP

FadeToBlack

FadeToBlack

Well-known member
Joined
Nov 26, 2018
Messages
104
Location
UK
Hi All,

I don't know why they rejected me. I had help with an occupational therapist from the NHS to fill the form out, and they have ignored the whole thing and completely sided with the consultation lady I spent less than 20 mins with - cherry picking what they wanted to dismiss me and my claim.

I am so angry, I had to stop working full time because of doctors advice over a year ago now and this has cost me so much money.

I have now discharged myself from the CMHT and I am furious with them and their 'advice'.

I went through what the descriptors are after I got the letter back, and I definitely score 12 points on Daily Living. I feel like I have been dismissed and ignored because I work and its discrimination.

Today I need to ask my aunt who I work for if I can have my hours back. I don't want to do this but I am now in a very bad financial situation because of all this. I know PIP isn't much, but it is to me and probably a lot of others too.

When I was first diagnosed they were going to give me money for everything to live as I was homeless, now they won't give me anything at all :low: How am I now supposed to not relapse like I have done a lot of times because of work stress...
 
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Mayflower7

Mayflower7

Well-known member
Moderator
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Jan 4, 2013
Messages
10,056
Location
England
Hi,
I'm so sorry, it isn't right at all. Please ask for a mandatory reconsideration you can progress to appeal if the DWP still don't award you what they should.
The citizens advice bureau can help you.
Take care
 
FadeToBlack

FadeToBlack

Well-known member
Joined
Nov 26, 2018
Messages
104
Location
UK
It's ok, I have started to calm down a bit now.

I have done this but the consultation was so corrupt I doubt they will award it.

I am going to appeal. I won't be able to tell them why I need it, so I will write it down and give it to them I think.

Now I have ditched the CMHT I have lost support with the appeal :eek:

Nothing has worked with them since my old case manager left.

I don't know what's going to happen...

The writing in the letter was so rude. It was like 'you said this in the form, consult said this and we don't believe you'. It said that all the way through
 
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FadeToBlack

FadeToBlack

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Joined
Nov 26, 2018
Messages
104
Location
UK
Please see below now I am aware of the points what I score and why. This is not exhaustive, but seeing as I have had no direct say in the writing of the form, and the absolutely terrible process I have been through, this is my view. I will say now that the consultation needs to be ignored, as it has completely betrayed me, and the case manager for the PIP has been very selective and I have fallen victim to government money saving techniques. The consult, the PIP people and most others have no idea what it’s like to have Paranoid Schizophrenia. What makes it worse is that I have to compensate and hide it all the time as this illness is not acceptable to other people, hence why on the surface I appear to be normal, but inside this is not the case.
c. Needs supervision, prompting or assistance to be able to manage therapy that takes no more than 3.5 hours a week. 2 Points
I have relapsed more times than I can remember by not taking my meds and I have a record of this in hospital/crisis team admissions. My mother and care team is constantly telling me to take them but this does not amount past 3.5 hours per week. I have brightly coloured pots that organise them to aid in telling me that they have been taken so I know when she asks me. Now I do not take them yet again, yet I still get promoted constantly and it makes me very angry. The PIP assessment completely ignored this even though they were told this information. If I am not in help for 9 months or more, then why am I off tablets yet again and symptomatic, and this has gone on for years in the same manner?
c. Needs communication support to be able to express or understand complex verbal information. 4 Points
This was not tested at all. There was very little actually said in the consultation, just simple questions with simple answers with nothing complex asked in relation to this. I had to go with support otherwise I would not have gone at all. This person wrote out the form for me and intervened but this was ignored. Chatting with family I have known for my whole life is not an argument that is valid. I am unable to communicate in any social situations outside of this that has no structure to it, and when I have to ask people to repeat themselves, I never get what they’re saying to me and give up without support. Because of these difficulties, I have been unable to make any friends since 2013, and I struggle at work as well because of this. It takes me far longer to communicate things, and the written word is my coping mechanism hence why you have this carefully written document rather than my spoken word. My comprehension, social skills, cognitive abilities and stress caused by all this affects me everyday and all the time. Just because I have learned mechanisms to cope does not mean it does not happen. This is what actually happens when you live with something so bad for so long… A nurse in a 20 min meeting cannot possibly pick up on this. Of course I can use a laptop and a phone. I grew up with the Internet so using technology is also not a valid argument against me. I use devices as tools to help me, but this issue is having a massive impact on my daily life, as I cannot use it for everything. I have nothing in my life because of the limitations to my communication and it makes me suicidal – at least one of the reasons anyway.
d. Cannot engage with other people due to such engagement causing either –
(i) overwhelming psychological distress to the claimant; or
(ii) the claimant to exhibit behaviour which would result in a substantial risk of harm to the claimant or another person. 8 Points
I do not have to argue this case. My health records are littered with the psychological distress caused by other people. I never know what to say and get paranoid all the time and do not engage. I have to discharge myself from hospital to escape it and the people I get paranoid about, I do not go out much to escape it but it’s always with me. It can take days or even weeks for me to get over interactions I have with other people. Having being raped, drugged and beaten from ages 11 to 17 by the nasty people I met thanks to a broken society, I cannot engage with others through fear and inability to express myself properly. I had to take 30mg of Diazepam for my consultation that is why I was sat there and able to answer some simple questions some of the time – this was ignored despite disclosure. When I am unwell, that’s when it turns into point (ii) and I am a threat to myself and the public and end up in hospital. I have now as a result of this had to cut everyone out of my life, as I cannot cope with it anymore. The amount of stress caused by this has made me cut off any and all support, as I do not know who is right. The government says I am fine, the NHS doesn’t. The government knows me for 20 mins, the NHS for 14 years worth of records. Makes sense on paper but I am very conflicted about this now and I cannot control what I am thinking anymore.
Conclusion
For the last 18 months I have suffered financial hardship by cutting my hours to four days a week to try and avoid work stress that makes my condition worse. Before I cut all my support, it was costing me over £400 a month which now in anticipation of the decision ahead I have had to stop everything to protect my financial position from being eroded any further by this expense. I am not allowed to drive, I cannot work enough hours to support myself, I am unable to follow through with therapy, I am unable to understand communication from others and yes, every time I even look at someone my head is full of paranoia and delusional thinking that causes me distress. Post-this-appeal, should I not get this support I fear I will lose any independence I may have, which I thought the whole point of this payment was to go some way to preventing this outcome. Let me tell you what’s going to happen if this does not happen…
Consequences
I lose my job. I lose my place to live. I won’t be able to work or function. I will lose the rest of my money. I will end up homeless. I might end up in hospital. My condition will mean that I cannot be useful anymore as apparently psychosis makes things worse every time it happens. None of this will happen, as I will kill myself in the knowledge that the above is on the verge of becoming truth.
Then guess what. The government will end up picking up the bill. Just be thankful that on average, people with Schizophrenia die 20 years before the general population, so guess that will save money, which seems to be the priority here… Take a moment to consider that I gave up on claiming ESA and housing benefit when I was first diagnosed, as I worked as a temp and slowly got back into work thanks to family working so I didn’t have to wait for ‘help’ and carry on sleeping on my sisters loft floor. Now that is used against me? Thanks.
 
FadeToBlack

FadeToBlack

Well-known member
Joined
Nov 26, 2018
Messages
104
Location
UK
This is my appeal letter. I will not be speaking to them apart from this
 
N

nightmare57

Well-known member
Joined
Mar 12, 2016
Messages
598
You working is having a detrimental impact on you claiming PIP successfully. To them you come across as functioning and able to cope and you can manage a working environment. Obviously you are struggling with work. Have you thought about solely claiming benefits and giving up work until you have better footing in the work environment? This may give you relief and the anxiety around potential homelessness as you will have a secure income.
 
FadeToBlack

FadeToBlack

Well-known member
Joined
Nov 26, 2018
Messages
104
Location
UK
You working is having a detrimental impact on you claiming PIP successfully. To them you come across as functioning and able to cope and you can manage a working environment. Obviously you are struggling with work. Have you thought about solely claiming benefits and giving up work until you have better footing in the work environment? This may give you relief and the anxiety around potential homelessness as you will have a secure income.
I don't think I can claim benefits. I doubt I am eligible. Also last time was full of uncertainty and I had no where to go so I had to work as I waited for benefits for months with nothing and my sister wanted me out of her loft.

I ended up having to go back to an abusive environment until I could afford to get a deposit on a flat.
 
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