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Newly diagnosed and seeking information

C

Cocoa

Member
Joined
Feb 21, 2018
Messages
10
Hi all

I've just joined this forum, hopefully it's ok to post this?

I've had mental health problems for over 20 years (I'm now 36) and about 15 years ago I was diagnosed with Bipolar Disorder, which seemed to fit my major symptoms of severe mood swings and occasional psychosis - predominately hearing voices when depressed or in a mixed state. The psychosis started about 10 years ago I guess.

Over that 10 years, the psychosis has gradually got worse. I was hearing 3 voices that talked about me, not to me - to begin with just when I was in a mood swing, but gradually they started to happen when I was ok as well. I also started to have some hallucinations and delusions - and these have steadily increased over the years.

Last autumn I became very unwell, and ended up being off work for over 3 months and in hospital for 6 weeks. At this point a fourth voice appeared - a man who talks directly at me. I was sectioned for a month and put on 1-2-1 observations for a week because of my delusions and suicidality. While I was in hospital the psychiatrists suggested that my diagnosis might be changed to schizoaffective disorder, and this was confirmed at the end of last week by another doctor.

I'm lucky in that I'm getting a good amount of support from the community mental health team at the moment, but I'm keen to find out more about schizoaffective - are there any good books or websites that people could recommend? Or organisations that can help? I'm based in the UK if that makes a difference....

thanks
Cx
 
boudreauj4

boudreauj4

Well-known member
Joined
Jan 6, 2017
Messages
812
I used to be diagnosed schizoaffective, depressive type (no mania). I hope the best for you. Your schizoaffective is basically symptoms of bipolar along with symptoms of schizophrenia. You can read books about either. Most of the books I read were from the library or from Amazon.com. I found no books specifically about schizoaffecticve in the library but there appear to be many on Amazon, but for some reason I've never bought or read one. I've read extensively about schizoafffective on the internet though. One good book I recommend is Hearing Voices: A Common Human Experience by John Watkins. He talks about all the different ways people hear voices from Shamanism, to the paranormal, to schizophrenia, to religious. He also talks about the history of hearing voices and then explains 20 different ways to cope with the voices.
 
B

BarryThunderball

Active member
Joined
Feb 6, 2018
Messages
26
Best advice I can give you, stop eating gluten.
 
C

Cocoa

Member
Joined
Feb 21, 2018
Messages
10
Thank you boudreauj4! I'll look that book out for sure....

Cx
 
C

Cocoa

Member
Joined
Feb 21, 2018
Messages
10
Does that make a difference BarryThunderball?
 
T

Twokiwisandabanana

Well-known member
Joined
Jun 23, 2016
Messages
811
Hi intervoice offer support groups for voice hearers
MIND and RETHINK also offer services in the UK.
And if you need councelling low cost councelling offers ongoing support a very reduced rate.
 
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