New Diagnosis of Schizoaffective Disorder

fazza

fazza

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#1
I normally post in the schizophrenia forum as that is what I was diagnosed with. However I went to see my doctor today and she now thinks because of my depressive episodes and sometimes of elated mood she has changed my diagnosis to schizoaffective.

I am to start lithium next week after some bloods and I am to stop haloperidol and start Latuda. This is one drug that I have not tried so I am hoping for good results from this combo.

My mood is still through the floor but I feel a bit better today after chatting with the doctor.

Also my C.P.N called my wife to say that at the moment I can not drive which is a bit disappointing as its the only escape that I can get but I suppose it is for the best as I am taking risks that are dangerous and I see that now.

Feel a bit more in control of my feelings now.

Hiya to everyone in this section.
 
N

natalie

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#2
Fazza hi,

Thanks so much for the update, I am so glad that you are now feeling much better after having seen the doctor.


Well I am pleased to see that you have now got a much better diagnosis.


Ah well, in view of mental health and in particular having been in depressive episodes, and judging by your previous posts, it's now always best and safe idea, not to then be driving. Are they going to notify the DVLA?
At all? They need to be advised.


I remember when my father had his temporary illness incident/accident in the car, (i wouldn't now like to recollect too much) and the Police Officer who was an excellent and friendly one, said to us, mum and myself, he wouldn't be able to drive. So we thought that would be a nusiance, owing to the fact mother doesn't drive. I always by buses, which was the case anyhow, to help out mum, at that time, I limited, my volunteering which also was bit of a big nusiance, for me.

So I can appreciate, judging by your previous posts, regarding your depressive episodes, that it is always best and safer not to drive.

Therefore, i request, and advise, strongly that you do maybe request your wife to notify the DVLA, if she hasn't already done so. It's best to get that done, quick, and preferably by the weekend. Don't leave it until the Monday next week.


I do eventually wish you very much better.

And an eventual ok recovery through medication.


Take care now, oh and another pointer, please do take your meds daily and regularly on long time basis, any big gaps, are likely to be seen as relapses, do please take note of this.


Natalie.
 
Mayflower7

Mayflower7

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#3
Hi Fazza,
Hope the new drugs stabilise your symptoms, I often wonder if I have schizoaffective or bi-polar as I get the depressive episodes and elated moods.
I am changing psychiatrists, hope all goes well for you. Must be a pain with the driving, however better to be safe.

Take care
 
Topcat (was FunkTheFear)

Topcat (was FunkTheFear)

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#4
Glad you are feeling a bit more positive fazza x
 
fazza

fazza

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#5
Can't wait to get these new tablets today. They are called latuda. They Also spoke about me going back on clozapine again but this time by adding lithium this should help keep my white blood cells up as I have tried it twice and failed both times.

Woke up this morning and I must have slept funny as my back and shoulder is killing me.

Hopefully my new meds will be here at 4 but they are having trouble getting them in.

Any thoughts on latuda would be great
 
boudreauj4

boudreauj4

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#6
I hope they finally straighten out your meds and you start feeling better soon. I wish the best for you. It was the other way around for me. I was diagnosed schizoaffective for ten years and they changed it to schizophrenia because I didn't have any affective symptoms(was depression) for years, but I kept the psychotic symptoms.
 
J

Jennmarilyn

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#7
Hi there! I was diagnosed with schizoaffective disorder many years ago and have started a video blog (YouTube) that I would like to share. I am hoping to inspire others, to provide support and to gain support from others. Hope you take the time to check it out, thanks!
- Jenn
 
H

HedgeCobra

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#8
Hi there,

As someone who's been through a lot of different medications, I'm now just on Lithium and it seems to be doing the trick.

I was diagnosed with schizoaffective disorder during a 9 month stay in hospital. Of which I was sectioned numerous times. Put on medications I had no say in. Haliperidol for example, combined with diazapam (a massive dose)... Turned me into a zombie.

However during this time, the meds caused me to develop neuroleptic malignant syndrome. Which was life threatening. I urge anyone going through recovery to make sure they know the risks of what medications can cause. As it very nearly ended my life.

Anyway, on a positive note, having read the OP, I'd definately give Lithium a chance. It takes a while to get to the correct dosage, the side effects are a bit crap to start with but they tend to disappear. My mood is amazing, consistently good. I wake up good, great energy, feeling positive about the day ahead.

As for anti psychotics, the best I've been on is arirpiprazol. Hardly any side effects other than making you feel a bit too awake during the night. I'm a bit sensitive to medication so this one really helped with my psychotic symptoms. Thankfully I'm no longer on it and survive now just on Lithium.
 
J

JoeArci

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#9
Tell me your symptoms

To Mayflower 7...
What are your symptoms maybe I could you help you to see if it's really schizoaffective. I'm not a doctor but know what constitutes this diagnosis.
 
J

JoeArci

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#10
To Mayflower 7...
What are your symptoms maybe I could you help you to see if it's really schizoaffective. I'm not a doctor but know what constitutes this diagnosis.
 
vanish

vanish

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#11
Hey fazza,

I took Latuda 80mg for quite a long time (years) and it worked quite well for me. I only changed because it put a fair bit of weight on my bones because you have to have it with a meal. I'd forget to take it and then have to make another meal to take it. You also feel really weird if you drink alcohol and take it (like the accentuates the drunk feeling). Other than that it was pretty good. My psychiatrist isn't yet sure if I am schizophrenic or schizoaffective, both diagnoses have been thrown around a fair bit and hence, the mood stabilising effect of Latuda was thought to be a good option.
 
J

Jules5

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#12
I was on Latuda and I had horrible side effects like having the flu it was awful but most people seem to adjust quite well to Latuda
 
fazza

fazza

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#13
I am loving Latuda. Zero side effects. Feeling pretty good. Best med that I have been on so far.
 
H

Hydrophobia

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South Carolina
#14
I normally post in the schizophrenia forum as that is what I was diagnosed with. However I went to see my doctor today and she now thinks because of my depressive episodes and sometimes of elated mood she has changed my diagnosis to schizoaffective.

I am to start lithium next week after some bloods and I am to stop haloperidol and start Latuda. This is one drug that I have not tried so I am hoping for good results from this combo.

My mood is still through the floor but I feel a bit better today after chatting with the doctor.

Also my C.P.N called my wife to say that at the moment I can not drive which is a bit disappointing as its the only escape that I can get but I suppose it is for the best as I am taking risks that are dangerous and I see that now.

Feel a bit more in control of my feelings now.

Hiya to everyone in this section.
Have you tried getting a genetic test from your doctor which would show you what medications are right?
 
H

Hydrophobia

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#15
I was on Latuda and I had horrible side effects like having the flu it was awful but most people seem to adjust quite well to Latuda
Yeah, I was asking him if he got a genetic test to see if his brain chemistry would agree with the medications he’s getting. I took this one medication that caused me to lose my mind and have visual and auditory hallucinations and severe depressive/manic episodes. I considered filing a lawsuit against the doctor who prescribed me it, but thankfully I don’t take it anymore nor do I see that doctor anymore. I didn’t like him that much, and thankfully my new doctor is actually worth a damn unlike that other one.
 
F

forumuser23

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#16
makes you wan't to rethink diagnosis if latuda if it's god saken for some but causes seizures and brain damage and 100 percent harm for others who have the same diagnosis ( such as with me when i took it that caused me to be hospitalized from it's so called "side effects", although at this time i didn't even have the schizoaffective diagnosis, only schizotypal personality disorder)..., which is ironic because you'd think that such a shitty garbage drug would harm anyone, regardless of what mental illness they have but surprisingly, it actually does help, a brain damaging drug actually helping a lot of people, :rolleyes:

i remember going recently too to a DBSA group and how someone mentioned latuda was the only thing that worked..., and here i am also again responding to another person's post and never getting anyone to answer my own threads and questions and never getting anyone of support or whom i can relate to...

i don't understand why it's so hard for people to read a post and give some feedback to see if they relate or not. i mean i understand you can't really do this in a typical youtube video with stupid people with "adhd" saying they don't have enough attention spans to look at the entire video, which is even more ironic because you'd think that if that person really had "adhd", at least some of them, because some of course can be trolls, but at least some would legitimately have a "disorder", then they should be able to follow through something that's interesting..., because after all, isn't that what they say about the condition....

what's even dumb on the psychosis part is most people never bother to explain what their psychotic episode or "psychosis" is, they'll just say generally, well..., i had a psychotic episode last summer or w.e, or i'm not having anymore depressive episodes...., and this caused me to or causes me to need to take this particular medication to control or mediate something...

i should also mention that if i do fit the label of "psychosis", it's due to bad brain chemistry overall, being inferior, bad life circumstances from the past / ongoing, financial problems, etc. it is not psychosis as in hearing or seeing things that are not there or hallucinations..., i never had any of these. what i do have is severe anger, distress, stress, brain inflammation ongoing, dependent of course on ongoing circumstances, lifestyle, coping, etc, depression, and lack of support combined...., what's worse is i'd surrounded myself with these "schizoaffective" or "schizophrenic" people in mental health groups in person for years and online, only to find the same stereotypes vice versa, no one standing out differently, and then you have people saying, we'll, not everyone is the same...:rolleyes:, because people are too ignorant and lazy and overgeneralize everything..., when they could instead ask better questions like do you have this or do you have that or do you do this or do you that...,
 
F

forumuser23

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#17
and this stupid forum has a artificial 5 minute limit on editing things, so people like me can't get the idea out in fullest / accurate form, and so now i have to add in another post below...

so you know, i went in the other day to one of those schizophrenia alliance groups, talked to the group facilitator after the group who apparently has some form of schizophrenia, he told me also was given the label of schizotypal personality disorder, though i don't know if he mentioned if this was an official diagnosis or just a label that was thrown to him randomly, but after he exchanged information on each other for about 2 hours or so, i noticed we didn't relate at all to each other, and he was like, so how did you get diagnosed with these conditions if you aren't odd / peculiar or don't have any of those symptoms i have such as the baboon hallucination he mentioned which was supposed to be a "psychosis" thing, and i told him, we'll...., you see, the only answer to this is that i'm supposed to say i'm just a unique case, but that's all i can do up to this point, what's left is still there, anger, depression, agitation, things out of my hand, etc.
 

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