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New - any advice?

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FEDup1981

Member
Joined
Sep 17, 2009
Messages
7
Hi
Im new to the forum.
After years of depression i was finally diagnosed with Bipolar last september. My condition has been mainly down, and tbh i have not been stable for a sustained amount of time to be deemed well.

I have been getting DLA low rate care and mob since Jan 2009. It is up for renewal in jan 2011, tho they have already sent me the forms.

Due to a change in my meds i have become very hypomanic/manic in the last 2 weeks. My husband has had to take a week off work to care for me, and i had to get an emergency app with my pdoc. My lithium was upped to 1000mg, and i was given olanzapine but only took one and felt a dreadful drunk.
After i kicked off in the street with a neighbour my hubby rang pdoc who has now prescribed me respiredone and i seem a bit calmer now.

The thing is i think i would benefit from my DLA care being upped to mid rate at least, b'cos of the time my hubby is taking off work, he is going to end up losing his job. That way he could get carers allowance etc.
I went to the job centre, they couldnt help. The carers association got in touch with my community men health team and they said my psych can refer me to rethink for help with the forms. My pdoc is useless tbh - in 3 years he has offered me no support except in tablet form. I kinda need these forms completed asap and a decision made asap, cos im panicking to what might happen wth my hubbys job etc.

Is rethink the best option, can i self refer (prob be quicker than my psych)

Thanks for reading x
 
M

madwife

Well-known member
Joined
Jul 15, 2010
Messages
124
Location
Lincolnshire
Sorry I don't know about referral but I want to wish u luck getting it sorted x x
 
maxitab

maxitab

Well-known member
Joined
Sep 18, 2010
Messages
10,392
Location
In Devon
BORTU might know, you can PM him.

I get middle rate DLA so I think you should be okay. You can also go to the Citizen's Advice Beaurau to get help filling in the forms. Good luck with it.


Is your pdoc a psychiatrist? All they are trained to do is give out meds. If you want therapy you will have to ask and be referred.
 
T

TOONAFISH

Well-known member
Joined
Nov 23, 2008
Messages
2,686
Location
Bonnie Scotland
hi welcome

i get the midrate from last month when i applied. my cpn helped me fill in all the forms i wouldnt have had a clue.

haven't heard of rethink, but would the cab not help x
 
F

FEDup1981

Member
Joined
Sep 17, 2009
Messages
7
Thank you all for ur replies!

Rethink is a mental health organisation if anyone doesnt know x

The CAB has a 5wk waiting list :S

I know my psychiatrist cant provide counselling, psychological therapy etc - but he has not suggested any support groups etc. I asked him the other day if there was any for bipolar and he said yeah, but ur not well enough for them at the moment. HA! So why the hell didnt he tell me about them when i wasnt manic???!!!! Thats my thinking, and one bit of the reason why im quite p'd of with him.

I dont have a CPN. I was under the crisis team last year for 6 months where i had a cpn come to my house in that time, but when my care was refered back to my psych i lost the cpn.

Can i have a cpn too, or some one like a key worker who can offer emotional support, perhaps take me to support groups etc? How/where do i ask for something like that?

If Bortu hasnt seen my thread by tomorrow i will kindly PM him for his advice.
 
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warriorprincess

Well-known member
Joined
Apr 14, 2010
Messages
1,306
Location
Cool St, Coolville
Hey, just wanted to say you should be able to ask for a cpn, where is it you see your psych? maybe it's a good idea to ask them, you don't need to wait til you next see them either. If you're asking for specific help such as this, then I think they should give it..

as for the dla, I think that too should be possible, tho I applied in may, got turned down, asked for reconsideration, and got turned down for that this week, so I'm currently gonna have to get it together for an appeal I guess. It was my cpn who told me I am entitled to it - 'get the forms' she said, 'and I'll help you'. She did tell me it was likely to be turned down, but said no worries if that happened as she'd be there to help me through it. Is she F***!!! I blame her for them not allowing it straight away, in all honesty she's a mess herself, and could barely fill in the form any better than me, and f I'd have known that first, I'd have quite likely tried to put in more effort myself, with getting letters etc. so I need to get another one at some point. At the moment tho I've been ok, so as usual I tend to steer clear of services when things are ticking along as they are now. I'm also pregnant so that is the most important thing to me right now, don't want to get too stressed in dealing with the services. sorry i just gave you my life story, i meant to simply say that you can try calling Community and Legal Advice - I called them on friday, and it's my understanding they will now help me with the appeal tribunal. It's covered by legal aid, so you need to be on the necessary benefits/show that your income meets the requirements for them to help, but they're currently helping me with a housing issue too which has been brilliant so far, and although you don't see them in person, they can take care of a lot of the casework, and if need be find someone in your area who can also offer help.

oops neary forgot - here's the website for aforementioned legends .... http://www.communitylegaladvice.org.uk/


Have you tried calling the DLA number? As i think one of the options is to let them know if a situation changes - I dare say that would apply to your needs also, you can maybe speak it over with someone on the phone and see what they recommend.

it does sound like a cpn could be of great help to you right now so i think you should try and sort that as a priority, as then they would be able to help you with the benefits side of thing (hopefully a dam sight better than mine)

good luck xxx
 
F

fedup81

Well-known member
Joined
Oct 17, 2010
Messages
45
Hi - this is FEDup1981. I have had trouble logging into my account all day. I tried resetting the password and PM'ing admin but havent heard anything yet, so in desperation i re-registered in the mean time.

Thanks Warrior princess.

I see my pysch on tuesday. I will be asking about a cpn or key worker. Tho when i saw him on tuesday gone i did ask him what help there was out there for emergencies apart from him and the crisis team and he didnt have any suggestions. *sigh*

I got my DLA last jan. Id previously been turned down a year or so before. But i think this time i got accepted because i had a medical for my incapacity benefit and i had to put that down on the forms - so i think that helped.

I HATE talking about benefits, and what i need, would like. My hubby doesnt earn a good wage. Im a trained nurse, i could earn a lot more going to work than staying at home on benefits - so that isnt my reason. I mean im not scrounging. Gosh, im sick of feeling bad about it and feel like i have to justify it all the time to people. Anyone else get like that?

Hubby is back at work 2moro. I have to get myself up and my son to school. Not even sure ill sleep tonight because i cant take my sleeping tablets because the amount i need at the mo wont wake me up til 9am. Kinda babbling on here arent i?

Since i started the rispiredone ive been calmer, but i feel like its slightly wearing down. I dunno, i never no if its the situation or the tablets.

Blah blah blah eh?!!!!!!!!!!!!
 
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warriorprincess

Well-known member
Joined
Apr 14, 2010
Messages
1,306
Location
Cool St, Coolville
hey sorry you had a problem with logging in but good idea to re register, they should be very helpful in sorting it out for you, I know they've always acted promptly with any problems I've had, tho in general I find this site works well, it's usually down to my error!

Maybe a cpn isn't a routine offering, I know I have a friend I made on here who was recently diagnosed and she's been started on meds and hasn't been offered a cpn. When I sought help again this year (4 years after my last diagnosis of bipolar, but I 'slipped off') it took a couple of months and in the meantime i was going through a fairly hellish time so they got the crisis team out to me, during my wait to see the doctor. The crisis team actually handed me over to my cpn who I saw before any psych (tho not long before), so maybe that was the reason - maybe if they see it's extreme enough for you to need more than just a regular appointment with a doctor, then they bring out the 'extra help'... definitely ask them as it would appear it would help if you had that sort of help at the moment. I don't know if there's any truth in what I'm saying, but that's how it seems. I know if I weren't pregnant then they'd have most likely re-diagnosed, medicated, and had me back for checks with the doctor, but as I'm currently unmedicated maybe that's why the cpn was called in, I'm not sure.

I know too what you mean about benefits. I'm 25 but I worked from 15 - 22 in full time jobs (2 of which lasted over 2 years), with maybe one week's gap as my longest break in work. working did serve me well for most of that time, but near when I was signed off due to anxiety, I can't say I was the most productive worker. Whatever it was, thank god my doctor saw that the stress of working was causing my health to suffer, and I then went onto incapacity benefit. I had an appeal with that 6 months in (and while pregnant with my first child, who's now nearly 2) which finally resulted in them understanding how difficult life is, and i've been on the long term rate for about 2 and a half years now. But i know what you mean, when I tell people I'm on incapacity benefit I can almost hear their thoughts 'what's wrong with you' which is very hard to sum up to the average person. I've only just started to feel at ease with receiving it, I think, since coming on here earlier this year and knowing I'm not the only one who, quite simply 'suffers' this illness. I've done my best with working, and I know I shall return once again, but there is no point in making yourself ill over it, and I know for now, for me that it is not the right time in my life. I desperately want to work and earn a decent living for my family, but I know I have to take baby steps, or it could all go seriously wrong and become seriously irreparable. It's harsh because had I have had an accident that might take years to recover from, no one would question it - oh for a little flashing neon above my head that lets everyone know what's going on in there, now that be easier! It's good you say you had the medical in your favour for the appeal - maybe I can use the outcome of my incapacity benefit appeal also towards this one now.
I certainly don't feel like a scrounger for the hoops they make you jump through eh, just to get what all the forms and advice say we're entitled too. the stress it put on me being pregnant while the incapacity was being appealed could well have set me back. I had to survive a good 7 months of my pregnancy on the £25-£30 per week income support they paid me - whilst also renting a property that the council left me £30 per week in arrears with! I ended up getting evicted - the whole 9 months was nothing but stress, and I thank my lucky stars I had a beautiful healthy baby girl at the end to show for it, it's a wonder I didn't end up in hospital with all that added stress. I'm certainly not a cheat of the system!

It's only since my cpn told me earlier this year that i am entitled to dla, when she first told me, i thought it was just for people with physical impairment, but that's like saying we suffer less - indeed there are many days I'd gladly swap my emotional anguish for some physical pain (not that I don't get that too, mind), so based on what she said, I guess I should have applied when I first was signed off. So please don't feel bad. Like I said, you'll certainly find understanding on this forum, so well done for finding us!

Erm... I've kinda sidetracked there - you really don't need to worry about rambling on here! Good luck with tuesday's appointment and let me know how it goes,
xxx
 
Bikerbabe

Bikerbabe

Well-known member
Joined
Mar 19, 2010
Messages
193
Location
East of England
Hi fedup81

Have you got a Mind in your local area? They are usually a good place to go to for support with a whole range of things, forms, benefits, local support groups, issues with local MH services.

Hope things improve soon.
 
S

suzy

Well-known member
Joined
Jun 26, 2009
Messages
1,066
The benefit system it tough, I really doubt he would get carers allowance its not normally for things like bipolar

You may find it easier to get incapacity benefit if you cant go back to work as a nurse for a while, or go onto income support (then you get all prescriptions etc for free)

I just filled in my form from the government, I am going to be surpised if they keep giving me benefit!! I think they are reviewing everyones and its going to be harder to get benefit now.
 
F

fedup81

Well-known member
Joined
Oct 17, 2010
Messages
45
The benefit system it tough, I really doubt he would get carers allowance its not normally for things like bipolar

You may find it easier to get incapacity benefit if you cant go back to work as a nurse for a while, or go onto income support (then you get all prescriptions etc for free)

I just filled in my form from the government, I am going to be surpised if they keep giving me benefit!! I think they are reviewing everyones and its going to be harder to get benefit now.
I have been on incapacity benefit for over 2 years now. And Carers Allowance IS for people who care for people who have bipolar too. If the person gets middle or higher rate care DLA then their carer can claim carers allowance. I just need my DLA upped to mid rate at least, then my husband can claim it - because he is my carer. He does everything for me.

I know how tough the system is - and its even tougher when ur telling the truth!
 
F

fedup81

Well-known member
Joined
Oct 17, 2010
Messages
45
UPDATE:

I rang MIND - they can offer emotional support but dont help with form filling. I rang RETHINK and they need my psych to refer me.
Saw my psych this morning. My Rispiredone has been upped to 1mg morning, 2mg at night. He is also refering me (or i suppose handing me over) to the CMHT. This way i will get a CPN or social worker - someone to help me out. Not really sure - think ill start a new thread on that.

Psych is also doing the referal to rethink for me. I hope things dont take forever....i kinda dont really know whats going to happen :S
 
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