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NDIS experiences

LizBo

LizBo

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Bugga! So sorry about that.
I hope all's well now. Very frightening I'd assume. I'm glad you're in one piece and back online.
Yay @vanish!
 
vanish

vanish

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My first meeting with my new support coordinator happens in about 3/4 of an hour. It’s good that my wife will sit in on it to gain some understanding of how the Ndis works. I’ve got a mammoth load of core support funding... like about $34k and no idea what to spend it on.
 
LizBo

LizBo

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I'm sure you'll think of something! 🚙🚢🐕🍤🍰🍗🍣🍉 and 💐 for your wife. lol

I used to be a case manager for a man with autism. I purchased an outdoor swinging chair for him and he never got off the thing. Twirling and repetitive movement provides a calming effect for these people.

Services are of course important, but so are items like this. Think about what would serve a purpose at home. It may be a special chair just for you to relax and watch telly, or even a massage chair.

I hope everything went well and you have an experienced person who has creative ideas as well as productive ones.
 
vanish

vanish

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Well I had the meeting @LizBo and it was decided that I have an urgent OT assessment and complete change of circumstances review due to my arthritis becoming severe. My support coordinator wants to ensure that I have increased funding for physiotherapist and such as it’s been discovered that eventually I may require a wheelchair. I’m glad she’s looking out for me but at the same time devastated.
 
LizBo

LizBo

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Wow - so glad things went well. Sorry about the arthritis stuff.

I've just got to pop out for a while, so if you're still on when I return we could chat if that's ok.
Cheers;
Liz
 
EddieH

EddieH

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Had my first visit by a support worker today. She was really nice and we are going to go on some outings together. Think it's a real positive step forward. Like having a new friend
 
vanish

vanish

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That’s great @EddieH! I think it’s important to have the right fit between client and worker. I get on really well with mine and have lots of adventures.
 
EddieH

EddieH

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Had my first adventure with my support worker. She is lovely and easy to talk to. Felt like a normal human for 2 hours. Really positive stuff
 
vanish

vanish

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That’s fantastic @EddieH that it’s working out for you. My support worker is amazing too. It’s actually making me seek out socially and reconnect with friends, as I find he’s chipping away at my anxiety and redeveloping social skills.
 
vanish

vanish

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I feel sick out of panic! My support coordinator took my funding for her and has disappeared! She no longer works for who she said she works for. My support coordination budget has been fully spent despite only meeting with her once! I had a signed service agreement and everything to protect me (or so I thought). Now my review is due, monies have been stolen and I’m on my own.
I don’t trust anybody anymore!
 
EddieH

EddieH

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Crikey Vanish, that is bloody awful. There must be and investigation, you've been robbed. I'd be almost going to the police, sounds like fraud
 
vanish

vanish

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I’ve been in contact with the Ndis review and complaints commission. They are going to launch the investigation apparently. All I have to do is supply copies of emails and service agreements. In the meantime, they’ve assured me that they will make funding available for a new coordinator minus the sessions I’ve had (which was one). A huge relief!

I cannot believe someone would stoop so low as to take advantage of the vulnerable!
 
daffy

daffy

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@vanish that’s dreadful.im not sure how it works in oz but in the uk you only get an award monthly even tho it may how been awarded for a couple of years or more. But we dont have to pay any extra for treatment unless we go private, which not many cant afford to do.
I hope they get her , its not just the money its the upset and worry that it causes. Will you be able to continue with the therapy even if it’s not sorted straight away :hug:
 
vanish

vanish

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My therapy shouldn’t be effected @daffy at least, that’s what I was told.
In Oz we can go public with therapy with a psychologist but more often than not there’s huge waiting lists. The government then devised the national disability insurance scheme whereby private providers can be paid by the government for services such as therapies, support work, transport etc. I was funded for a support coordinator who is someone who is a private worker paid by the government to help me get the most out of my yearly plan.

I’m scared I’m going to get into trouble financially now, but the NDIA who oversees funds allocated has assured me I’ve just come across a bad egg. Nothing will happen to me they don’t think.
 
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