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My ultradian cycling bipolar disorder story

L

lesjames

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Aug 5, 2011
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Hi.I am 24 years old and after recently been let out of hospital,was diagnosed with ultradian cycling bipolar disorder.I swing between mania and depression several times a day . I am high for a couple of hours then severely depressed for another couple of hours then i go back into mania then back again into depression and it makes me very distressed.I have no normal mood inbetween.Before i was diagnosed i didn't know what was going on.It was like a daily rollercoaster.I would feel invincible and ontop of the world and very euphoric as well as extremely energised.I would talk fast and my thoughts raced and i would blow hundreds of pounds within a couple of hours.I actually thought i was God.This feeling didn't last long then my mood would quickly switch to suicidal depression where i self harmed.

One day after a high, i plunged into a deep depression where i overdosed on sleeping pills.My family had me sectioned into a psychiatric hospital.After being assessed for a month i was finally diagnosed with ultradian bipolar disorder.I am on 1200mg of Lithium and 1500mg of Sodium Valproate. I am under the care of a great and brilliant psychiatrist as well as a CPN and i also have contact with the Crisis Team who are very supportive.However i feel like it is the end of the world and i don't know what to do now.Just wanted to share my story with you all but any advice?
 
Last edited:
angry butterfly

angry butterfly

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hi lesjames, :welcome: to the forum.
i'm sure there will be other's along with more experience who will be able to give you advice. tc.
ab.
 
angiebib1976

angiebib1976

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Hi lesjames. :welcome: to the forum

Wow. Those are some horrific mood swings, huh? I can however kind of relate to what you are going through. I have had bipolar undiagnosed for 19 yrs - its destroyed my life. I was only diagnosed about a month, and only started on the meds a couple of weeks ago.
At the moment I feel horrendous. My mood swings before would last for weeks or months, before switching. Now they are switching every couple of hours - in fact I can have a visit from the crisis team and feel so low that I can't see the point, then in the next 5 minutes I'm cracking jokes, then by the end of the visit, I'm in floods of tears again. Its all terribly confusing. I feel all over the place!!
However, I have been reassured that this is the Depakote kicking it - the frequency of mood swings increases initially, but the extremity of them declines.
Its awful feeling like pants everyday, but stick with it, hang on in there - talk, be honest with the care providers, you sound like me, that you have a good team looking after you. If you feel like sh*t, tell them. Remember it can take a while for your meds to settle in. In the meantime, try and find things to do - make appointments in the morning so you have to get up, channel your creativity, do something you enjoy.
We are all here to support you on this forum, so keep postingand let us know how you are feeling.
We will try to help as best we can!

Take Care

Angie
 
L

lesjames

Member
Joined
Aug 5, 2011
Messages
13
Hi lesjames. :welcome: to the forum

Wow. Those are some horrific mood swings, huh? I can however kind of relate to what you are going through. I have had bipolar undiagnosed for 19 yrs - its destroyed my life. I was only diagnosed about a month, and only started on the meds a couple of weeks ago.
At the moment I feel horrendous. My mood swings before would last for weeks or months, before switching. Now they are switching every couple of hours - in fact I can have a visit from the crisis team and feel so low that I can't see the point, then in the next 5 minutes I'm cracking jokes, then by the end of the visit, I'm in floods of tears again. Its all terribly confusing. I feel all over the place!!
However, I have been reassured that this is the Depakote kicking it - the frequency of mood swings increases initially, but the extremity of them declines.
Its awful feeling like pants everyday, but stick with it, hang on in there - talk, be honest with the care providers, you sound like me, that you have a good team looking after you. If you feel like sh*t, tell them. Remember it can take a while for your meds to settle in. In the meantime, try and find things to do - make appointments in the morning so you have to get up, channel your creativity, do something you enjoy.
We are all here to support you on this forum, so keep postingand let us know how you are feeling.
We will try to help as best we can!

Take Care

Angie
Hi Angie.Thank you very much for your kind words and support.It really means alot to me.I hope things settle down with the Depakote soon.Is that a mood stabiliser?Apparently ultradian bipolar disorder is rare and very difficult to treat according to a couple of psychiatrists i spoke to.However i am going to take the meds and hope for the best.Take care Angie and thank you.
 
angiebib1976

angiebib1976

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Yes. Depakote ( Semisodium Valproate) is a mood stabiliser.
Take the meds - but don't let it end there - take all the support and help that is offered to you. All the therapies - anything you feel is beneficial.
I really hope things get better for you.

Take Care

Angie
 
L

lesjames

Member
Joined
Aug 5, 2011
Messages
13
Yes. Depakote ( Semisodium Valproate) is a mood stabiliser.
Take the meds - but don't let it end there - take all the support and help that is offered to you. All the therapies - anything you feel is beneficial.
I really hope things get better for you.

Take Care

Angie
Thank you. I hope so too.When i was in hospital my Ultradian Bipolar was confused with a mixed episode however after further assessment over a few weeks they finally diagnosed ultradian bipolar or ultra ultra rapid cycling bipolar as they also put it.
 
G

Ginger Kitten

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Hi Les James. I read somewhere on this forum that Depakote is helpful for rapid cycling bipolar. I think I've got ultradian rapid cycling like you but my psychiatrist doesn't agree! I'm diagnosed as Bipolar 1 (at least one episode of mania in your life) and my pdoc thinks it is bipolar with particular emotional lability, rather than rapid cycling. My episodes are nearly always triggered by stress; is that the same for you?
I believe there are several meds that can be used to help rapid cycling, but Depakote is the only one I am aware of. I would suggest Googling rapid cycling meds but be sure to look at medical sites to get reliable information.
I hope you start to feel a bit more 'even' soon. With all good wishes, Ginger.
 
K

keith74

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Sep 14, 2020
Messages
351
Location
Canada
Thank you. I hope so too.When i was in hospital my Ultradian Bipolar was confused with a mixed episode however after further assessment over a few weeks they finally diagnosed ultradian bipolar or ultra ultra rapid cycling bipolar as they also put it.
ultradian rapid cycling is tough. Have you heard of Julie Fast? She is an author that writes about bipolar. She is also diagnosed with ultra rapid cycling bipolar. I find her very informative and it may be helpful for you too:
 
G

Ginger Kitten

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Messages
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Location
Surrey, Uk
Thanks for posting this Keith - I will have a look myself at a later date. This is what is great about this site: you learn so much from others. Kind regards, Ginger.
 
Wishbone

Wishbone

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Regarding the video posted by Keith. She mentions the DSM, I don't know what the latest says, if it's the same or not, but the ICD-10 requires at least four mood changes within a year to be classed as rapid cycling. So don't go thinking you've got it if you've had two and live outside of DSM jurisdiction! I don't know how they differentiate between an episode as it is because they're usually several days, a couple of weeks, or several months depending on which episode it is, and defining a rapid cycling episodal switch. God knows!
I'm a bit confused about her chart too. She says stability is the straight line and says about her mood going up and down but it only goes over 'stable' once.
But how the hell does she manage to write so much if her moods are so tumultuous? I can barely keep my head straight and I'm only an 'almost' rapid cycler.
 
Wishbone

Wishbone

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Also, @keith74 Do you know if this is a recent video or a few years old and what her current diagnosis is? I saw another video in which she states her 'real' diagnosis (her words not mine) is Schizoaffective Disorder and that she has had a lot of psychosis in her life.
 
S

SFGuy

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I’m sorry you are going through this. Rapid cycling might be the worst thing I have ever felt. When I was first treated by my current doc, I had mixed states and a daily bout with hypomania and subsequent depression starting at precisely 2:00 in the afternoon. I didn’t see the ultradian cycle until Depakote turned down the volume. I was lucky and could see the initial effect 2 days after I started it. The mixed states — high and low at the same time — took longer to improve, but once we got the dose raised, that calmed down, too. I was skeptical about my bipolar 2 diagnosis before Depakote. Now I’m sure. I have whatever Depakote fixes. Congrats on finding a good doctor.
 
K

keith74

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Also, @keith74 Do you know if this is a recent video or a few years old and what her current diagnosis is? I saw another video in which she states her 'real' diagnosis (her words not mine) is Schizoaffective Disorder and that she has had a lot of psychosis in her life.
her official diagnosis is:

ultradian rapid cycling bipolar 2 + psychosis (outside a mood swing) = schizoaffective disorder
 
K

keith74

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But how the hell does she manage to write so much if her moods are so tumultuous? I can barely keep my head straight and I'm only an 'almost' rapid cycler.
She is pretty honest about it in her instagram account and blog. Basically she details every day as a fight and being productive takes an incredible amount of management and discipline.
 
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