- Aug 8, 2018
I've had this devastating fatigue for so long. It seriously limits my ability to carry out normal activities such as school and work. It takes me 4-5 hours to even get out of bed. I'm supposed to meet my new doctor (I don't know who it will be) 2 months from now, but this day has made me doubt my ability to hold out until then. I live with my parents and I'm scheduled to travel to Stockholm to do an exam in the beginning of June and, a week after that, fly over to Spain with my parents for a 2-week vacation. This makes me doubt whether it's appropriate for me to take action now, because I feel I'm letting them down if we have to cancel these activities that I've agreed to, but I should probably not take this into consideration now. I'm tired and fed up living with this fatigue. It's also frustrating when there doesn't appear to be a medical condition that can be associated with my fatigue. All reasonable blood tests to test for fatigue, including hypothyroidism and metabolism, haven't shown anything wrong. I'm sure it's not CFS nor POTS either. It seems to be somatic. Healthcare doesn't appear to take my condition seriously and my parents disbelieve me. This makes me feel lonely in my situation. I have other symptoms as well but I just want a normal life so I can live in good conscience and be happy and able to trust my body.