mummy of 8yr old whose been diagnosed with various mhi including dissociative motor disorder and anxiety disorder.......help

V

vickyhw

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Nov 24, 2013
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mummy of 8yr old whose been diagnosed with various mhi including dissociative motor disorder and anxiety disorder.......help

Im hoping that someone can help, our little boy has spent the last 7 months in a psychiatric unit after his health deteriorated last year. We were always told he had possible ASD amoungst his other issues,
unfortunately after a deterioration last xmas and the attempt to take his life, he was admitted to a childrens specialist unit.
Weve been told they have been un able due to ours sons reluctance and lack of cooperation that the test for asd and his cognitive assesments couldn't be completed. hes due to be discharged early December and we are extremely scared of the future. hes always been highly strung and sensitive to noise and we adjusted our life style accordingly. but now weve been given diagnoses and and theres very little information online. our sons consultant says to google but theres limited information. What made it worse is hes still fixated on his leg and still says its useless and will have it removed. so clearly there is issues not resolved, but as he has other mobility issues, he has has a wheel chair but not there telling us not to use it, so were epected to let him be in pain.. hows that going to help him!! has anyone any advise.. thank you.. one very worried mummy
 
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deadchick07

deadchick07

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Feb 8, 2013
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HI,

sorry you are in such a lonely place, I have an 8 year old and a five year old. My five year old is going through assessments at the moment for ASD, he has issues with empathy, although he is very loving he seems to have no concept of physical pain so doesnt understand when he inflicts it on others, and he has serious incontinence issues. I have never heard of a child be so ill so young so Im a bit out of my depth in offering you support here, but has social services had any input yet? It may be worth asking them for a carer's needs assessment to see what sort of help they could give you, which could be anything from short term respite, to a holiday to a support worker for you to offload your feelings to. Also, if you don't feel like you have been listened to by the hospital, try using an advocate service or PALs from the hospital.
 
flowergirl

flowergirl

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Hi xx that must be very stressful for you all. Doctors should never underestimate the effects that autism can have on a child it probably would have been best for them to treat him for it regardless because that could be a massive help with his emotional well being. My son is autistic and has tried to hurt himself over different parts because he felt they werent necessary he also becomes fixated on a particular thing until it becomes all he can see. This could be what is happeneing to your son re his leg. It might not be I could be completely wrong but either way we are here to offer support to you xx
 
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