MS or Dissociative Disorder

N

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#1
I'm so glad if come across this site, I to have been struggling for the past year and half with many symptons that relate to m s, was told by my Neuro that he's 100 per cent sure it's m s, then he done tests and because the tests came back with no positive results he sent me to another Neuro who basically tested me for parkinsons, he done a few little tests told me to stand walk a small distance without my stick tapped my knees etc etc, then said I didn't have Parkinson which I didn't even think it was and said you will have to come back for a while cos I want you to see a psychotherapists also a physio and him, I didn't really understand him, he was just in a rush to get me out his office, well today I received a copy of a letter being sent to my gp, basically telling him what happened at the appointment and said he thinks is a dissasociative disorder and that he has told me the outcome may take a while but looks very good,

Well I'm totally confused to go from a m s probability to a dissasociative disorder, which I don't even no what this is, m symptons are exactly the same I struggle everyday just to get through the day, the pain is just off the scale, and fatigue also, I have a occupational therapist who has adapted my home, if been registered partially sighted I'm also on lots of meds.

Now I'm worried about my dla allowance because now the prognosis is different but symptons are still the ssame, I'm soon to be reviewed for my dla because of pip coming into force and I'm so worried what the outcome of it will be, I had to appeal against the last decision of my dla benefit and that took a year it was the most stressful time of my life trying to survive , and this is all starting up again, as if life isn't hard enough.

I'm sorry for such a long thread I got a bit carried away ....

Thanks for reading tho x
 
Mark_01

Mark_01

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#3
Hello, new user, and welcome to the forum. This is a good place to be to talk about your problems. Hope things get better soon and you get some answers.
 
AliceinWonderland

AliceinWonderland

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#4
Hi new user, and welcome :)

Sorry things are so tough for you, that sounds very bewildering to be investigated for ms and Parkinson's, and then be told it might be dissociative disorder, I'm surprised a neurologist suggested a specific mental health diagnosis when that's not their area of expertise or experience. Seems rather outside their remit. As regards DLA, it's supposed to be awarded on the basis of how your condition/symptoms affect your day to day activities, so a different diagnosis/prognosis shouldn't in theory alter anything I think (although I'm not an expert), but I can understand how worrying it is.

Have a look around the forum, there are sections where you can post about physical health, benefit issues, specific mental health diagnoses, and other more general areas. It's rather large and a bit confusing to begin with I found, but it doesn't take too long to find your way about. I hope you stick around and find support and useful info here :)

Take care.

A. x
 
N

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#5
Hi there all,

Firstly I would like to thank everyone who has taken time to read my thread and for people to point me in the right direction.

With reference to the being worried about dla being moved over to pip and being reassessed, will the medical report that was wrote by this neuro who tested me for Parkinsons for which reason I do not no and who has only met me once for 5 minutes and decided that it might be a dissasociative order, will his report which was absolutely ridiculous not be sent to my gp, and then when I'm filling in all these new firms for pip and they ask for your gp and any other specialist your seeing, will this ridiculous report not be sent into the pip people and if so then what.

I don't even no what a dissasociative Disorder is, is it a mental health problem? , goodness I just don't understand I really don't how it has come to this, surely it's not all in my head is it the operations iv had over time, being diagnosed with osteoarthritis years ago, having a car accident that left me with a c5 fracture, along with being registered partially sighted, and having damage to my knee from falling down the stairs because if my sight, all this and a lot more, surely it's not all in my head, is it?
Oh sorry I'm rambling again....


Thank you everyone x
 

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