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Mental health team letting me down

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Poppyflower

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Aug 16, 2014
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86
I feel the mental health team is seriously letting me down. Recently I was referred to the home treatment team but after assessment they decided I wasn't in "sufficient crisis" to warrant their help. I don't know how they determined this when I was so distressed I could barely speak! Anyway, they referred me back to my care coordinator with the recommendation that he has more frequent appointments with me. He totally ignored this and I continued seeing him every 2 weeks.

Recently he asked me what support I need and I said the main thing I need right now is emotional support. Instead of taking this on board he has now cut my appointments down to every 4 weeks! What is it with these people?! I can't seem to go more than 10 days without experiencing significant mental distress and have been increasingly leaning on my GP for support, contacting him by phone often and seeing him on a weekly or fortnightly basis. He is wonderful and helps me a lot but I often sense he is out of his depth. Plus he is a GP, not a mental health worker and it isn't really his job to support me to the extent he is currently doing. I am worried that I am overwhelming him and also becoming too dependent on him. He is having to pick up the slack from an inadequate mental health team and that isn't fair.

On Wednesday I felt like I was heading towards crisis point and I called the team and left a message asking my care coordinator to call me. He didn't return my call that day or on Thursday. Now I am at crisis point! I called again this morning and told the receptionist "I need to speak to someone" and she just said she would leave a message asking my care coordinator to call me. This was almost 4 hours ago and he still hasn't called! I can't go to A&E and my GP is away for 3 weeks so I don't know what to do! I'm feeling pretty distressed right now. I am unwilling to contact places like samaritans because I want to speak to someone who has access to my notes and knows my history. I just want the mental health team to do their job! :mad:

Sorry, I needed to vent!
 
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MarlieeB

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Hey, sorry you have been struggling so much and that you are being ignored.

Can I ask why you can't go to A&E? Are you scared that they might section you or do nothing?

Marliee x
 
Fairy Lucretia

Fairy Lucretia

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im so sorry the cmht are letting you down so badly xx i would suggest you asked your gp to intervene and explain you need more support and are relying on the gp for support
you could try and find an advocate in your area through rethink or mind who could help you speak on your behalf
lots of love and hugs from fairy lu xx
 
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Tiddle

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I can really identify with what you are saying - sometimes it feels like the only people bothered about our wellbeing are those that are anything but mental health workers ! They do tend to have their own little world in which they make some very odd decisions !

Does you CMHT have a duty worker you can talk to to? It might be better for you just to go there instead of phoning if they are just going to leave messages for your CC.
 
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Poppyflower

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Aug 16, 2014
Messages
86
Hey, sorry you have been struggling so much and that you are being ignored.

Can I ask why you can't go to A&E? Are you scared that they might section you or do nothing?

Marliee x
Thank you. It is partly because I'm afraid they will section me and partly because I am afraid they'll do nothing except refer me back to the mental health team. Who knows what they will do -- they are always so unpredictable when it comes to mental health care! But mostly it's because I had a traumatic experience in A&E when I was 13 and I now feel very afraid of it. I had to go there earlier this year and it was a horrible experience because I got flashbacks to the trauma. Also, the woman I spoke to from the mental health liaison team was horrible and I am worried I will have to speak to her again.

im so sorry the cmht are letting you down so badly xx i would suggest you asked your gp to intervene and explain you need more support and are relying on the gp for support
you could try and find an advocate in your area through rethink or mind who could help you speak on your behalf
lots of love and hugs from fairy lu xx
Thank you. I might just do that! Maybe I will ask my GP when I see him next.

I can really identify with what you are saying - sometimes it feels like the only people bothered about our wellbeing are those that are anything but mental health workers ! They do tend to have their own little world in which they make some very odd decisions !

Does you CMHT have a duty worker you can talk to to? It might be better for you just to go there instead of phoning if they are just going to leave messages for your CC.
Thank you. When I called the out of hours service on Friday evening the lady I spoke to said I could have asked to speak to the duty worker or another member of the team. I've been under the care of mental health services for about 4 years now and nobody has ever thought to tell me that before! I will do that if I don't hear from my care coordinator soon. I have now left 4 messages for him since Wednesday -- it's getting a bit ridiculous!
 
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Poppyflower

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Aug 16, 2014
Messages
86
ARGH! So I called and left yet another message for my care coordinator yesterday but again he didn't call me! He rang this morning while I was working so couldn't answer my phone :( and left a message saying I was welcome to return his call. I rang just over an hour later, at 12pm, but of course he wasn't available! The receptionist said she would let him know I called. Did he call me back? Of course not!

I would have asked to speak to someone else if I knew he wouldn't return my call but I thought he would because of how many messages have been left for him now. FIVE times he has been told that I need to speak to him. I don't get what is going on. I don't mind waiting a day for a return call, but a week? It's shocking and potentially dangerous. They don't care about me at all and I'm sick of it.

I'm sick of trusting these people with the most personal things about me and constantly being let down again and again. I'm sick of telling them what I need support with and being ignored. I'm sick of being made to feel like I am an irritant because I sometimes need help more often than others. I could tell I was reaching crisis point and thought I was doing the right thing by contacting my mental health team to get help before things got worse. Now this situation has just added to my stress.

I don't trust my care coordinator. I don't even like him. If I complain to him about the number of times I've tried to contact him I'm sure he'll point out how he called me this morning. :rolleyes: Yeah, he calls me six days after I first tried to contact him. He calls me when he KNOWS I do voluntary work on a Tuesday morning. Whatever! I so badly wish I could just discharge myself but I am too scared. I need help and shoddy, indifferent help and care is better than none at all, I suppose. Or maybe not... sometimes I feel like they are making me worse.

:cry::cry::cry::cry::cry:
 
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mal blue moon

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Oct 21, 2014
Messages
77
Sorry to hear of your distress Poppyflower ,i don't no your full circumstances so my experiences, i have had with my CMHT coordinator's may have little bearing ,It appears CMHT people have one objective to prevent hospital admissions ,and there abilities to communicate information mental health history phone messengers and the like is very poor ,there ability to engage outside support services is even more woeful ,they are the defense of top nhs managers, and many of them have finely tuned there skills in sounding very approachable,helpful ,they are doing the same to many patients on there lists ,bouncing the phone calls ,making meeting infrequent and abrupt, distancing is when they don't return your calls promptly ,diffusing is when they pass your call on to another team member who lets you repeat your problems, just because they don't have your information (in this computer connected world why that is who knows) ,and a patient feels they are being listened to ,believe me i have worked in many call center's ,and the CMHT is just one of those ,yes they would outsource it to india if they could to save money (i hope i'm not giving the nhs idea's) ,is all this good for CMHT staff no the man i saw had a pain behind the eye's that rivaled my own ,CMHT staff burning out, if the job tittle and workload goes off the scale , the Mental health system is failing , i hope you find the help you are looking for , Take Care mal
 
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Gibson91

Gibson91

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Sep 25, 2014
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Born to Wander
Sorry to hear of your distress Poppyflower ,i don't no your full circumstances so my experiences, i have had with my CMHT coordinator's may have little bearing ,It appears CMHT people have one objective to prevent hospital admissions ,and there abilities to communicate information mental health history phone messengers and the like is very poor ,there ability to engage outside support services is even more woeful ,they are the defense of top nhs managers, and many of them have finely tuned there skills in sounding very approachable,helpful ,they are doing the same to many patients on there lists ,bouncing the phone calls ,making meeting infrequent and abrupt, distancing is when they don't return your calls promptly ,diffusing is when they pass your call on to another team member who lets you repeat your problems, just because they don't have your information (in this computer connected world why that is who knows) ,and a patient feels they are being listened to ,believe me i have worked in many call center's ,and the CMHT is just one of those ,yes they would outsource it to india if they could to save money (i hope i'm not giving the nhs idea's) ,is all this good for CMHT staff no the man i saw had a pain behind the eye's that rivaled my own ,CMHT staff burning out, if the job tittle and workload goes off the scale , the Mental health system is failing , i hope you find the help you are looking for , Take Care mal
Hi Mal, Just wanted to say that's an excellent summation. The call centre analogy is a good one, as I keep hearing the same stock phrases over and over from different staff at the CMHT.

It can't be easy for them either. I too have seen some staff who have a pain behind their eyes.

Sadly I also agree that the system is failing.
 
apple

apple

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Mar 28, 2014
Messages
707
When I said to my cpn that I needed emotional support, I was told that wasn't what the mental health service was for! Some time later after getting absolutely nowhere and tired of being 'policed', I discharged myself despite still being very unwell. I finally found a therapist who agreed to see me very cheaply.

I think the comment my cpn made showed an appalling lack of awareness (I believe that emotional abuse and emotional neglect can lead to mental health problems), and I'm sorry to hear that you are going through something similar with your mental health team.
 
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coldwater00

coldwater00

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Jun 19, 2013
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Sorry to hear that the CMHT are so uncaring and useless. It's very unfair.

I've had similar experiences with being repeatedly let down, fobbed off and invalidated. My CPN (I'm with the Early Intervention Team) is a joke, and she has the nerve to boast about her salary to me too. She never takes notes, hardly ever calls me back, and it appears email contact is now too much effort for her also. Thankfully I'm being discharged soon.

I remember the CMHT I was with when I was 18. They were abysmal. On one occasion I was extremely desperate and said I was going to self harm by taking an overdose the following morning. They said "ok we will come and see you in 4 days time". I was in hospital on a drip by the time they turned up at my house.

Is a bit strange how some teams can be really invasive and hassle people, others just seem to ignore everyone. Might be to do with behaviour, might be to do with area/postcode lottery/caseload... Dunno, it's a mystery.

My GP is also nice and sympathetic and has fitted me in at short notice. It does really help to have someone like that on board.
 
Gibson91

Gibson91

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Born to Wander
When I said to my cpn that I needed emotional support, I was told that wasn't what the mental health service was for! Some time later after getting absolutely nowhere and tired of being 'policed', I discharged myself despite still being very unwell. I finally found a therapist who agreed to see me very cheaply.

I think the comment my cpn made showed an appalling lack of awareness (I believe that emotional abuse and emotional neglect can lead to mental health problems), and I'm sorry to hear that you are going through something similar with your mental health team.
Snap! I'm in that situation too Apple. I've been quite shocked and hurt at the tactless [ downright callous at times ] remarks by some CMHT staff I've met. I've booked an appointment with a private therapist for next month.

I applaud your courage for discharging yourself. Its a very brave act, when you're not well... but if there's no support there - and if its maybe doing you more harm than good, then its for the best.

I'll be discharging myself soon - it feels like jumping off a cliff! How did the discharge process go for you, if I may ask?
 
Gibson91

Gibson91

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Sep 25, 2014
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Sorry to hear that the CMHT are so uncaring and useless. It's very unfair.

I've had similar experiences with being repeatedly let down, fobbed off and invalidated. My CPN (I'm with the Early Intervention Team) is a joke, and she has the nerve to boast about her salary to me too. She never takes notes, hardly ever calls me back, and it appears email contact is now too much effort for her also. Thankfully I'm being discharged soon.

I remember the CMHT I was with when I was 18. They were abysmal. On one occasion I was extremely desperate and said I was going to self harm by taking an overdose the following morning. They said "ok we will come and see you in 4 days time". I was in hospital on a drip by the time they turned up at my house.

Is a bit strange how some teams can be really invasive and hassle people, others just seem to ignore everyone. Might be to do with behaviour, might be to do with area/postcode lottery/caseload... Dunno, it's a mystery.

My GP is also nice and sympathetic and has fitted me in at short notice. It does really help to have someone like that on board.
Oh my God! How heartless :hug1: Sorry you went through that Coldwater xx
 
coldwater00

coldwater00

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3,380
Location
Yorkshire
When I said to my cpn that I needed emotional support, I was told that wasn't what the mental health service was for! Some time later after getting absolutely nowhere and tired of being 'policed', I discharged myself despite still being very unwell. I finally found a therapist who agreed to see me very cheaply.

I think the comment my cpn made showed an appalling lack of awareness (I believe that emotional abuse and emotional neglect can lead to mental health problems), and I'm sorry to hear that you are going through something similar with your mental health team.
Ridiculous. True, needing emotional support isn't a mental health problem per se, but it's part of the wider picture of a persons suffering and individual needs that should be addressed. I've also found that a lot of MH professionals can't actually relate to emotional suffering and can be very callous and rude. It's more convenient for them to see people as "just part of the job" and treat them as tasks or objects to be dealt with. Horrifying that a "mental health service" has come to this.
 
Gibson91

Gibson91

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Born to Wander
Ridiculous. True, needing emotional support isn't a mental health problem per se, but it's part of the wider picture of a persons suffering and individual needs that should be addressed. I've also found that a lot of MH professionals can't actually relate to emotional suffering and can be very callous and rude. It's more convenient for them to see people as "just part of the job" and treat them as tasks or objects to be dealt with. Horrifying that a "mental health service" has come to this.
Hear hear! :curseyou:
 
apple

apple

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Snap! I'm in that situation too Apple. I've been quite shocked and hurt at the tactless [ downright callous at times ] remarks by some CMHT staff I've met. I've booked an appointment with a private therapist for next month.

I applaud your courage for discharging yourself. Its a very brave act, when you're not well... but if there's no support there - and if its maybe doing you more harm than good, then its for the best.

I'll be discharging myself soon - it feels like jumping off a cliff! How did the discharge process go for you, if I may ask?
hi Gibson,

Immediately I began to talk with CMHT about discharging myself, they feigned great concern that I would be unable to cope and tried to persuade me to stay. This nearly got me off track for a while, and I wondered if I really could manage. But after having numerous crisis episodes in the past, I knew that their support consisted of mainly medication and encouraging you to air all your personal problems and thoughts, which they wrote down, with scant support or therapy other than listening and then monitoring your medication intake. I felt that all this led to a sense of powerlessness and loss of control, with being let down over and over again and coerced into taking drugs I did not want. So I figured that the worst that could happen was that I would become so paranoid and psychotic that I would need an admission and then I'd just be referred back to them - whereas the best that could happen would be that I would actually make progress and be able to recover and heal.

My GP was also concerned, but I told him that I was seeing a therapist privately and said that she was keeping a check on my mental health, and after that he was fine.

I did have a period of time where I felt SO alone, despite seeing the therapist. In this time it really helped to keep going with voluntary work. I also visited a local drop-in for people with different issues including homelessness, because they were very welcoming and it was somewhere to go for a cup of tea and maybe a chat with others who also were coping with their own situation. I also went to the library from time to time - it can be a really nice place to just sit and read and browse books that you might not normally pick up. I also read quite a lot of self-help material, mainly online.

I would say, that I haven't yet been reviewed for my ESA so I am unsure how they will view me being discharged. But I am going to emphasis the fact that I see my GP regularly and have a therapist.

Wishing you all the best with your therapy & discharge.

Take care,

apple x
 
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