• Welcome! It’s great to see you. Our forum members are people, maybe like yourself, who experience mental health difficulties or who have had them at some point in their life.

    If you'd like to talk with people who know what it's like

Many thanks for all your kind replies

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fiona123

Member
Founding Member
Joined
Apr 8, 2008
Messages
10
It has been a very long journey. Essentially about 18 yrs ago when I was 32 I fell in the snow. I didnt bang my head or anything. Several hours later I started to get very strange feelings in my body as if was exploding. This continued for some weeks then stopped. Later that year just before going to Uni the symptoms returned big time. I could barely walk ,experiencing weakness in my legs and arms. It improved but I've never returned to full strength in either . Nevertheless I got my qualifiactions and became a teacher. All the while searching for an answer with innumerable visits to neurologists and tests. Then in 2000 during a routine test they felt they had found muscle wastage. I went into panic mode since it seemed like a death sentence. Shortly afterwards I deveopled chronic pain in my neck and stiffness that impedes me looking down in comfort. I was offered no diagnosis or treatment. So i paid to see a muscle specialist who refuted the findings and did extensive tests. He refered me to Maudsley to a nueropsychiast who diagnosed me with somatisation . Four years of cbt got my life back on track and i managed the pain. Hwovere the job move was to a very hostile environment so the pain became uncontrollable. In jan this year I decided to have a good stab at the excercises i coudn't do before due to work. I have diligently done them but Iam in so much
pain I don't know wethter to continue with them.Apparently the pain is a secodary effect of my primary weakness. i literally have to stretch shortened muscles. Nothing releaves the pain..no tabs or tens ..I'm off work still and i am informed likely to be sacked. All of which is added pressure. sorry this is so long!
 
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Dollit

Guest
It's not a long post Fiona but it's yours and it's what you want to say so you have a right to take as long as it takes.

I'm sorry you're in so much pain and that the exercises don't seem to be helping. Could you describe them for those of us who aren't familiar with them and it may be that some suggestions could come from that knowledge. And it would help me understand more of your condition.

I hope the forum is helping you Fiona, it's a good place. :hug:
 
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fiona123

Member
Founding Member
Joined
Apr 8, 2008
Messages
10
It's not a long post Fiona but it's yours and it's what you want to say so you have a right to take as long as it takes.

I'm sorry you're in so much pain and that the exercises don't seem to be helping. Could you describe them for those of us who aren't familiar with them and it may be that some suggestions could come from that knowledge. And it would help me understand more of your condition.

I hope the forum is helping you Fiona, it's a good place. :hug:
The pain itself is a knawing pain throughout my neck shoulders and upper back. It's continuous and at its worse I am close to passing out so I lie down alot. My physio says that since my shoulder girdle is weak due to 18 yrs of lck of use , the knock on effect is that my neck muscles have shortened and my posture distorted by pushing forward to compensate for the pain. The excersises involve pulling my chin in to strectch the muscles, lieing down with knees up to allow gravity to pull the gridle back into place for 30 mins each day. I've had to give up the ones concentrating on using my shoulders because the pain was too much. The problem is the neck is central to all movement all i can do is lie down alot to give it a rest.
 
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mollycat

Active member
Founding Member
Joined
Mar 25, 2008
Messages
38
Location
Buckinghamshire
Re: PAIN

Oh dear i am so sorry to hear you are suffering, the pain you describe is typical pain form muscle wasting, i have something that sounds similar in my right hand and forearm and try to stretch it all out everyday, it is really hard to do and more painful afterwards than before but it is keeping it from getting any worse in the long term so i try to persevere.

My advice would simply be do what you feel comfortable and able to do, I find that water pilates helps as it takes the gravity pressure off the painful areas and i dont feeling it burning quite as much in the water, maybe see if they run a class near you? just a thought, although getting to and from the class can be a workout for me before i get in the water lol :LOL:

Not much I can suggest i'm afriad, i wish i could help, just sending you hugs and hope it eases off a bit for you.

Take care Mollycat :grouphug:
 
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