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Just been diagnosed with cyclothymia - confused

M

mumto6

Well-known member
Joined
Jan 9, 2010
Messages
56
Location
Co Durham
Hiya all - I am completely lost , upset and angry.
I was finally diagnosed with something called Cyclothymia if thats even how you spell it last week.
After seeing many different doctors counsellors they finally came up with a name.
I expected to feel some relief - giving it a name I thought would at least give me an insight. Sadly it has left me angry and confused.
As I am 22 weeks pregnant the consultant psychiatrist has opted not to medicate me until I have the baby - all I wanted to do is scream just give me something anything to stop me feeling this way.
I thought maybe talking to others who can actually understand me it may bring some relief as I am all over.:confused:
 
lehcar24

lehcar24

Well-known member
Joined
Oct 4, 2009
Messages
109
Location
bedfordshire
Hi xxx

:welcome: to the forums xx

firstly congrats on the 22 weeks pregnancy :)

sorry you have been diagnosed with Cyclothymia from what i know i think this is a milder from of bipolar? ... it must be hard dealing with bein pregnant having this and not bein able to even be put on meds but keep ur chin up have a lovely baby on its way then u will get all the help u need... are u gettin much support now? u should be seein as u jus been diagnosed xx

hope this forum helps you xxx

take care of yourself xx
 
Q

quality factor

Guest
Hello and:welcome: to the forum.
Congratulations on your pregnancy.

It must be frustrating re the meds, but it's for the best.

Please keep posting and we'll help you through the best
that we can.

Yes, support is important, make a point of seeking that out.

QF.
 
keepsafe

keepsafe

Well-known member
Joined
Dec 15, 2008
Messages
13,625
:welcome:to the forum and congrats on the pregnancy. Sorry you feel so so frustrated about everything else - but it is the best decision not to be on medication whilst you are pregnant.
People are here to listen - get all the help you can

KS
 
Lozzi_1004

Lozzi_1004

Well-known member
Joined
Jun 28, 2008
Messages
1,850
Location
Yorkshire, UK
Hii :welcome:

You're probably sick of reading this but, Congratulations on the preganancy :hug:
From what I've heard too, Cyclothymia is like a mild version of bipolar disorder, but I'd heard that they don't usually use medication to treat it (or that may be my pdoc??). Anywho, it is best for you and for baby that you aren't medicated during your pregnancy because most (not all) psych meds have side effects which can affect baby. Do you have any more support; husband/boyfriend/friend/doc etc who you can confide in and get any support you need until baby is born.
I hope you can find some support on here too, there's some lovely people here :D

Take care :hug:
:grouphug:
 
honeyquince

honeyquince

Well-known member
Founding Member
Joined
May 27, 2008
Messages
1,719
Location
Yorkshire
Hi there and welcome to the forum,

As has been said, there are loads of great people here so do keep posting as this kind of support really can help.

Take care,
Honey, xx
 
M

mumto6

Well-known member
Joined
Jan 9, 2010
Messages
56
Location
Co Durham
Sorry for the delay in the reply I have had afew very bad days.
I seem to swing from high to low moods in the flick of a switch , its a nightmare. Each day seems to last a lifetime and I am destroying everything and anyone around me at the moment.
It all started when I visited the GP after I was sick of not being able to leave the house as I thought someone was following me etc and the panic attacks became more extreme. I started to see hear and smell things that no one else could etc.
The GP refered me to someone else - they could not help so refered me to the Crisis Team saw them a week later - she annoyed me with stupid questions for over an hour before telling me I needed to see a consultant - another 2 weeks later - saw him he diagnosed Cyclothymia and said he wanted to put me onto Lithium and mood stabilisers but because I was pregnant was going to wait until I had baby before staring treatment - I left there without anyother appointment.
Then I now have an appointment at the very end of this month to see yet another person who specialises in people with my problems who are pregnant.
So yet another person to have to talk too ! AAGHHHHHH !

Health Visitor called today to see me and took one look at me and knew I had become worse , my partner filled in the gaps of the last few weeks and the way I have been. One min I am cleaning and scrubbing etc and the next I am throwing his clothes in a bag and telling him to leave. I have had no sleep for as long as I can remember , so after 2 phone calls from the Health Visitor to the GP he presrcibed me Tamazapan for 7 nights.

He has also called back in the Crisis Team who I see next Monday.

I am living a nightmare !
 
honeyquince

honeyquince

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Founding Member
Joined
May 27, 2008
Messages
1,719
Location
Yorkshire
Sounds really tough, but you are doing all the right things. It can take a while to work your way to the right person but hopefully then you'll be on your way to getting some stability.

Hang in there and keep talking to those around you.

Take care,
Honey, xx
 
Q

quality factor

Guest
Hi there, sorry you are having such a rough time at the moment.
As has been said it seems as though at least you have the right agencies helping you now.
Hang on in there, we are all thinking of you.
Keep posting, best wishes,

QF.
 
P

pinkmetalgirl

Active member
Joined
Jan 7, 2010
Messages
38
Location
London, UK
Hey,

Sorry you're going thru the mill at the mo. It sounds really tough (pregnancy pays havoc with your hormones enough, without having the extra mood swings and having to navigate the mental health system!).

It can feel really frustrating how long all this takes - seeing the GP, seeing someone else, seeing a doc, seeing someone else, getting an appointment for someone else still. Especially when you need help now and want things sorting out. The good news is, like the others have said, it sounds like you're finally through to the right people. In general, people in the team that support pregnant women with mental health probs are very good - so once you see them things should happen a bit more quickly.

Although meds aren't an option at the mo (in general mood stabilisers are pretty toxic to unborn children - I looked that up when I was thinking about trying for a baby), it doesn't mean that you have to wait until your baby is born before you get some treatment. There are lots of other things that people can help with - from having someone to talk to, working out the sleep thing to finding ways of managing the moods.

Getting as much support as possible is the key right now. As well as the NHS, there are probably some voluntary sector mental health projects in your are (like Mind or RETHINK) - it might be worth seeing if they can offer you some support so you don't feel like you're waiting on seeing the next lot of docs.

Take care x PMG
 
M

mumto6

Well-known member
Joined
Jan 9, 2010
Messages
56
Location
Co Durham
I just seem to be all over the place - one minute I am fine 9 on a high running around being busy doing nothing but fine) Within minutes I can turn into a complete raging lunatic shouting and screaming at anyone for no reason.

I have 5 young children aged 8 months - 18 months 6 years - 7 years and 11 years - it is so so hard to try to do all the things I would normally do with them when at times I think " For god sake will someone just take them away"

I feel guilty all the time - I find myself checking everything I do then checking again and again to make sure I got it right - I am paranoid that someone is gonna say I am not coping and put my kids onto some danger list - I wanna redecorate the whole house one minute the next I am sobbing as I want to move and can not bear to live here.

My partner is really good and has taken on my role as far as the kids go - which of course I end up resenting as I am the one who is normally in control. He has given up work to look after me so god knows what we are going to do for money now we are both out of work.

The list goes on and on .......
 
U

uniwired

Member
Joined
Dec 18, 2009
Messages
17
Location
Aberdeen
Heya, hold in there!

I got given that label too, fat loada use it really is though eh? Anyways, not really much advice I can give, but I do understand to some degree how you might feel.

You should check out these pages for further reading about what cyclothymia means, might help, might not, worth a go though.

If you wanna chat bout anything at all post away or feel free to msg.

http://www.thatscousebastard.com/cyclothymia.html

http://en.wikipedia.org/wiki/Cyclothymia

http://www.mcmanweb.com/cyclothymia.html

Take care.
 
M

Marie

Member
Joined
Mar 19, 2010
Messages
6
Location
Bromley,Kent
Cyclothymia

I know how you feel.
This is what I have and it is a nightmare, I feel like I am on the world’s madness rollercoaster!

I also had a nasty pregnancy with my daughter who is now 8. I was on my own, homeless and living with this condition.

My poor partner, however he copes I don't know! He really is good and takes care of the house when I am feeling down. I also get very aggressive and he said to me the other day he believes I might stab him one day! This is very frightening as I don't see it!

I always knew there was something wrong with me and for years I just thought it was depression but I couldn't understand why I acted elated. I really wanted to get diagnosed as I thought this would help, but it didn't. It's only a label. It means nothing, everyone is different!

I choose not to take drugs; there is not enough evidence to prove that they work. Apart from what they do know - they can shorten your life by 10 years. I use alternative meds. Don't get me wrong, I know there are people who really feel as if these drugs help. But for me it is not an option, I also believe they would make me more paranoid!! - worrying about what they were doing to my body!!
:)
 
dib4uk

dib4uk

Well-known member
Joined
Jul 23, 2009
Messages
2,182
Location
south london,england
Hiya all - I am completely lost , upset and angry.
I was finally diagnosed with something called Cyclothymia if thats even how you spell it last week.
After seeing many different doctors counsellors they finally came up with a name.
I expected to feel some relief - giving it a name I thought would at least give me an insight. Sadly it has left me angry and confused.
As I am 22 weeks pregnant the consultant psychiatrist has opted not to medicate me until I have the baby - all I wanted to do is scream just give me something anything to stop me feeling this way.
I thought maybe talking to others who can actually understand me it may bring some relief as I am all over.:confused:
Hi there,
I understand where your coming from, i have cyclothymia too so your in good company, and im sorry that they didnt medicate you due to you being preganant, have they suggested something else that you could do to help yourself?

Basically cylothymia is biploa but the mini version, theres something about it on the manic depression section.
 
C

cdt8874

New member
Joined
Sep 8, 2012
Messages
1
A note to lehcar24 who commented below, he is wrong about it being a milder form of bipolar. Websites say this and that and they are wrong, even Doctors don't know how you feel they just recognise patterns of behaviour which therefore leads to a diagnosis. they do not suffer, so therefore they don't understand either. This condition is still being researched because there is not enough information about it to come to a full conclusion yet. So I have no idea how lehcar24 can come up with this information from a website without knowing for a fact if it is true. If he/she suffered with it, then maybe he should comment, if not then don't! There is only friendly advise there but little thought into what he or she is saying. You don't know what you are talking about so please don't say it. Obviously he or she is not a Cyclothemic Disorder suffer. I am and have been for years. Now this is for you mumto6, congratulations by the way, but Cyclothemia is worse in many ways because with Bipolar 1 and 2 they are much longer lasting mood swings and it is usually just 1 mood at a time, not 2 or 3 in quick succession, so it is easier to get used to the pattern of mood with Bipolar, however I am not saying it is an easy ride, because it deffinately is not. It is very severe indeed. But with Cyclothemia, the moods are so rapidly changing that the suffer hardly gets time to digest what is happening and therefore, it cause frustration and anger. But I promise you Mumto6 that it does get better and easier. It never goes away, but with the correct dosage of medication, the intensity can be reduced a little and the frequency of mood swings can be more manageable. I have sever rages, and sever emotional feelings of love all at the same time and I cannot understand even to this day why it happens but I have learned that this is not me, it is my brain malfunctioning so I have learned not to punish myself anymore about it. It makes me no less of a man, however, it does make me unpredictable and therefore, I only go to places where I know and with people whom I trust not to antagonise me and make my mood swings worse. Mumto6, I recommend that you reconsider all of your options now that you have this disorder, because some of your friends may not understand and will not try to and some of them may go all out to understand it. I recommend group psycho-therapy. The psycho-therapy wasn't for me and I left the group after only 6 months, but I made 3 really good friends who understand me and my condition and are willing to put up with me regardless and I am of them too. They love me for being me, and it is a friendship that I never thought would be possible in this day and age. Your family and friends will be important now, but the people that really understand are other fellow sufferers of the same condition. They go through the same things every day of their lives, and they will also be there for you too because they know how hard it is to live through this torment. Please talk to your Psychiatrist about the group therapy option, even if it is to make some good friends who are suffers just like us who will help you realise that you are loved when the people you love the most just can't possibly understand how you are feeling.

P.S: Bipolar 1 and 2 have more severe depression mood swings than Cyclothemia, but the speed of the changing moods in Cyclothemia is extremely distressing. My Bipolar friends are either really happy most of the time or really depressed most of the time. I am not. I will go to a barbeque and be in a really good mood and someone says something innocently and my mood changes and I become really angry, then my mood changes and I become really sad and depressed, then I snap out of it and forget everything that has just happened and wonder what the problem is. I laugh about it even though I just caused a major problem. Now, Bipolar 1 and 2 is similar because it also caused upset, however, you will not suffer with 10 or 20 different mood swings in 1 day with bipolar. That is the main difference. The speed of the change of mood. This is the main difference, but to me that is worse trying to figure out why I have just had 3 really bad mood swings in 10 minutes then totally forgot about it. People who don't suffer with these conditions should not advise other people who do suffer with them just like I will not advise you about Schizophrenia because I am Cyclothemic.
 
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