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J

Jas0n

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Joined
Jun 19, 2018
Messages
48
this thread has helped me a lot
that you didn't have any medical evidence and still got put in support group has helped me because im so scared i will not get my benefits
thank you for the encouragement
Lu x
And this is the reason I shared my story :) In the run-up to my assessment/the aftermath/waiting for the results, I can't EVER recall reading a story like mine and I know that would have given me so much encouragement.

I'm sure a lot do fail due to no evidence BUT...I'm absolute proof that it's not always the case. You just have to be brutally honest and be 100% clear how your condition effects you - that is literally all I did and it worked in my favour, so there's absolutely no reason why it can't work in yours :)
 
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Jas0n

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Jun 19, 2018
Messages
48
Bit of interesting news. On Friday I requested my assessment report again after originally being told it wasn't available due to the fact I had a home visit. To my surprise the report came through the post today! Anyway, it's interesting because the health care professional wrote things in the report which I didn't say - but NOT in a negative way. She said I stayed in bed all day when I didn't say that - she didn't even ask about what I do every day because I remember when she left I felt really annoyed that she didn't ask! She also wrote that my mother had to "get me prepared" for the medical - again, I didn't say that at all. She noted that I had wounds "all over both arms" - SO untrue. There were wounds on my upper left arm and that's it.. :scratcheshead:

I'm just...baffled!

I'm tempted to start a PIP claim now that I have this to use to support my claim. We'll see.
 
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winofunk

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Hello again Jas0n.

It can be hugely frustrating when the medical report is not an accurate reflection of the assessment. It is great that it has worked in your favour, though.

Regarding a claim for PIP, I would recommend that you are cautious. Remember that ESA is awarded based upon your ability to work, or do work-related activity. The PIP assessment considers ypur ability to carry out certain tasks safely, to an acceptable standard, repeatedly, and within a reasonable time.

If you are going to proceed with a claim for PIP and you are going to use your ESA medical report as evidence, it might be a good idea to have a look at the tasks for PIP and how points are awarded, and see how the details in your medical report scores against these tasks.

People who make a claim for PIP following a successful claim for ESA, and who use their ESA medical report as evidence, are sometimes awarded PIP without a medical assessment. This can be problematic because they are often not awarded the correct level of PIP, since the ESA medical report lacks the information to allow the decision maker to assess how the claimant can carry out each task safely, to an acceptable standard, repeatedly, and within a reasonable time.

It might be worthwhile getting help to complete the PIP form, if you can. It can make a big difference to the outcome of a claim if a claimant gets help from someone experienced in completing PIP forms. Also, it could be helpful to have someone else look over the medical report, to have them determine if it would be helpful in you making your claim.

In the meantime, I hope you enjoy treating yourself with your backdated ESA money :)
 
AliceinWonderland

AliceinWonderland

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Thanks for sharing your experiences Jas0n, this is a really helpful thread. And great advice and information from winofunk. Congratulations on getting your award and your back pay, well done on sticking with it until you got what you were entitled to. Good luck if you apply for PIP. It's another long slog, but if you approach it with the same attitude I'm sure you'll get through it ok. I got awarded PIP last year, it took ages and I almost gave up as I was so worn out with it all (I was told I had to go to appeal, although they later decided I didn't).

Hope you are doing ok atm :peace:
 
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Jas0n

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Jun 19, 2018
Messages
48
Breathing a sigh of relief right now!

I started a new part-time job after I was put in the Support Group and I was extremely anxious about letting the DWP know about it. It's still only a very limited hours cleaning position and I do the job totally on my own, but in the back of my mind I kept thinking "they won't care about that, they'll just think I'm capable so they'll move me to WRAG or kick me off ESA all together!". Anyway I sent in my Permitted Work form at the beginning of October and I've still not heard anything back. I gave the DWP a call yesterday to confirm that they'd received it and the agent I spoke with (who was lovely!) confirmed it had been received and the only note on my account was that my earnings have been disregarded and that everything looks fine! She said they sometimes don't always send out letters confirming they've received whatever you've sent it/confirming that everything is okay, so she told me not to worry, she asked if I'd received my payments as usual to which I replied yes, to which she responded with if there had been any problems with my permitted work at all then they'd stop payments going out to me immediately.

So yeah, panic over! I was expecting to send in the Permitted Work form and then receive something in the post a week or two later stating my benefits had been stopped OR they'd be reviewing me being in the Support Group, but that hasn't been the case.

I'm letting everybody know this because there's so many horror/negative stories out there in regards to the entire ESA process, and it's surely got to be nice for people to read positive stories (as with my OP) for a change!
 
AliceinWonderland

AliceinWonderland

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That's great news! I thought the same as you that permitted work would mean there'd immediately be trouble, so that gives me encouragement to possibly try the same route myself. Thanks.
 
soulsearcher

soulsearcher

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that great news that youre in the support group, long may it last! :)
 
Funnyday

Funnyday

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Oct 15, 2016
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Remember to inform housing benefit of the change to your income. Otherwise, they could months later accuse you of benefit fraud.
 
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Jas0n

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Jun 19, 2018
Messages
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Wow, how time flies. I was originally told I won't be reassessed before June 21st 2020 and I'm already thinking about receiving the dreaded brown envelope. If I'm not due until after then, can I expect to hear from them around April time?

Its been so nice not having to worry but the anxiety is slowly creeping back in now the date is getting nearer :(
 
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Tawny

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Nov 10, 2019
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Location
England
Jason, i also worry when i am in the last year of my award. My two years have flown by, i also had no evidence and got both PIP and ESA. Luckily if i lose ESA in February next year, i still have PIP for another 18 months. I think i may then need to claim UC without ESA, it is so confusing and so uncertain all the time that there is little point worrying about it. I try to save enough to cover basic bills if the worse should happen, but it isn't easy not to spend money.

I know we have to take it a step at a time but in the many years i have been on ESA, i have always been frightenened to the point of suicidal thoughts. They are vague again due to my upcoming review, and that is maybe a natural reaction to such a huge thing.

You should enjoy your time between reviews, as much as possible, otherwise half of your life will be unhappy. Finding ways to be firmly in the moment, moved by music or art, or whatever you are gripped by, is how i manage.
 
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