Is the emotional flatness from risperidone ?

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harryresperidone

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Nov 6, 2018
Messages
5
#21
ms elle i feel exactly the same . i had a psychotic episode just after falling in love, i had dellusions about my mum trying to harm me and about how i found god , all this mad stuff. i was put on resperidone 4 mg , and have tapered down to 1 mg but i feel exactly how you describe, totally void of any emotion/feeling, total apathy , anhedonia , and i too had exactly the same thought about how i would take the crippling depression over this any day..... i was someone that loved going out , socialising , laughing , cooking , watching films/documentaries. played poker, (made 30k) , loved traveling , since the resperidone took effect this anhedonia did too and is 24/7 relentless . now all i do is sit in my house with my mum, i NEVER go out with friends, i have severe agoraphobia , i just sit on here looking for answers and just found you . if you want to chat , i private messaged you with my number, i also want someone i can relate to .
 
G

Goofball

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Nov 26, 2018
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#22
I've been on risperdal for a few years and have very little emotions of any kind, my motivation is lower, loss of sexual appetite, gained weight, started drooling uncontrollably randomly, got little manboobs... yeah, now I'm down to 2mg and it is maybe a slight improvement but still nowhere near the original me.

A lot of sources advice you to taper 10% a month but I think I'm gonna do it 25% to get it done faster, not afraid of psychosis anymore, got tools to handle that. If you quit cold turkey you very likely get psychosis and other nasty effects so I'd really advice tapering at your own pace, which means doctor's approval. Just tell about the side-effects level-headedly and ensure you can deal with psychosis now if you can, or say you are ready to go to support groups and a psychologist if psychosis comes.

Best of luck!
 
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sassafras

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#23
Risperidone - brain damage

Hi there Ms Elle,

I'm wondering how you are going as your post is 6 months old and I'm not sure if you will even receive this. I wanted to respond as I have had a very similar experience to you with Risperidone but am further down the track.

I had my first psychosis 4 years ago and was successfully treated with Risperidone which I took for a couple of months at a low dose only, 2mg. I had a recurrence more than 2 years ago and took Risperidone for a period of 18 months, 1-4mg, going up and down as the psychosis reoccured. it was debilitating at times and drastically affected my emotions, memory and weight.

I haven't taken it for 6 months now and still have a lack of normal emotions. I have no joy, no motivation. I don't feel love for my dog like I used to.

I did a lot of my own research and discovered some important things I wanted to share with you before you suffer for too long.

Firstly, I wonder how old you are. there is a link between hormones and mental health, including psychosis, but there is only 1 psychiatrist in Australia (where I live) who treats this.

I emailed her and she put me on Livial, a hormone treatment which has no real side effects and the psychosis has gone.

More importantly for you, I have not got my higher cognitive functions back. There is a body of research that indicates Risperidone can cause brain damage and it can take years to rehabilitate, if you ever go back to normal.

I don't want to scare you, but what I suggest is that if you are having these side effects which are different for everyone, and indicate the frontal lobe the part of the brain where we do our most sophisticated thinking, including our creativity, is being affected, that you talk to your doctor about changing medication immediately. it is not worth the risk.

I believe I have brain damage. it has affected my career, my relationship, my friendships, my activities, my body. and i don't know if I'll ever be the same again.

there are a lot of medications out there. find one that works better for you. and talk to someone about hormones too. they were the answer for my condition.

Best wishes to you and I look forward to hearing how you are going.

:goodluck:

Everything began to feel strange back in april, when I fell into a really deep depression for about a month. I've had depression most of my life, but this one month felt stronger than ever and I broke down to my very core about my self esteem issues. I stopped going to my classes, I wouldn't respond to friends messages for days on end, and I'd have breakdowns every so often. May comes, and everything is looking up, and life is back to normal, although a bit hectic.

In the middle of may, without any particular trigger,I experienced my first psychotic episode. A few months prior I had fallen in love with a guy, and though having no contact with him during may, I thought he and I were meant to save the world, and I started having conversations with him in my head. A lot of other psychotic thoughts came subsequently after wards regarding god, angels and demons and the like, and I spent a week in the hospital where I was given 3mg of risperidone, later changed to 4mg for no apparent reason.

I was out to a party after the hospital, and I stood paralyzed as I realized I felt no joy in dancing anymore. After the hospital, when I came back to reality, life felt unusually dull and disconnected. I'm feeling incredibly hopeless as i realize that I don't have any emotions or motivation after the event. Whenever I think about my lack of emotions, I get a quell of panic because it's so unbearable. I haven't done anything for two whole months aside from obsessively reading about emotional numbness and anhedonia, and crying-which I'm surprised i'm capable of considering how dull I feel.

I don't want to hang out with my friends, I don't want to make art like I used to. Nothing gives me pleasure or sadness or even boredom. I feel less than human. I try watching tv, going out for walks, going out with friends, but all there is is frustration at my lack of emotion. I've never experienced anything like it, as before even with my depression i felt capable in my daily activities.

I've concluded that it's possibly the medication that's caused in me this horrible emotional flatness, since there isn't really any reason for me to feel depressed after the psychosis or to have negative symptoms. it also got much more pronounced after i went from 3mg to 4mg, but perhaps this is something I'm telling myself in order to feel any sort of hope that i'll go back to normal.

It feels so incredibly hopeless.
It feels as though life will never look up the way I want it to.
It feels as though I've lost all sense of personality and skills.

Has anyone ever experienced something like this? I'm not sure why i even wrote this as nothing can make me feel better, but it would feel endlessly nicer perhaps knowing if someone could relate.
Do I have any hope of getting myself back?

I've had it to my wits end with this horrible side effect, and I just want my motivation and emotional intensity back. I've gotten to a point where I'd take crippling depression again instead of this horrible lack of any emotion.
 
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harryresperidone

Member
Joined
Nov 6, 2018
Messages
5
#24
elle, do you mind me asking are you still on resperidone? if so then id imagine you wont be feeling any different until you have come off of it ? or have you been taken off it and still feeling the same ? i have done alot of research into possible medicines to help with recovery ... have you done this also ? regards , harry
 
ms.elle

ms.elle

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Joined
Jul 24, 2018
Messages
10
#25
Hi there Ms Elle,

I'm wondering how you are going as your post is 6 months old and I'm not sure if you will even receive this. I wanted to respond as I have had a very similar experience to you with Risperidone but am further down the track.

I had my first psychosis 4 years ago and was successfully treated with Risperidone which I took for a couple of months at a low dose only, 2mg. I had a recurrence more than 2 years ago and took Risperidone for a period of 18 months, 1-4mg, going up and down as the psychosis reoccured. it was debilitating at times and drastically affected my emotions, memory and weight.

I haven't taken it for 6 months now and still have a lack of normal emotions. I have no joy, no motivation. I don't feel love for my dog like I used to.

I did a lot of my own research and discovered some important things I wanted to share with you before you suffer for too long.

Firstly, I wonder how old you are. there is a link between hormones and mental health, including psychosis, but there is only 1 psychiatrist in Australia (where I live) who treats this.

I emailed her and she put me on Livial, a hormone treatment which has no real side effects and the psychosis has gone.

More importantly for you, I have not got my higher cognitive functions back. There is a body of research that indicates Risperidone can cause brain damage and it can take years to rehabilitate, if you ever go back to normal.

I don't want to scare you, but what I suggest is that if you are having these side effects which are different for everyone, and indicate the frontal lobe the part of the brain where we do our most sophisticated thinking, including our creativity, is being affected, that you talk to your doctor about changing medication immediately. it is not worth the risk.

I believe I have brain damage. it has affected my career, my relationship, my friendships, my activities, my body. and i don't know if I'll ever be the same again.

there are a lot of medications out there. find one that works better for you. and talk to someone about hormones too. they were the answer for my condition.

Best wishes to you and I look forward to hearing how you are going.

:goodluck:
Hello there! I appreciate the concern, and the information. Im sorry to hear that you still havent gotten your normal functioning back (or have you gotten your emotions back? I was a little confused), but unfortunately neither have I and I feel more hopeless as the time goes on.

Perhaps this'll be an update on my situation. For one, Im 20 years old, and have already checked my hormones already, and they turned out fine. Second, I switched from risperdione to abilify approximately 3 months back and I have yet to experience any form of emotion. My cognitive abilities are also still dysfunctional to the point where I struggle to write anything, even this. Im slowly tapering completely off any antipsychotic, so Im hoping that'll change something, although to be completely honest, Im doubtful.

Although I am now more open to trying other treatments for the anhedonia as Ive been doing a lot of research. I sometimes question if it was the illness that caused this, or if it really was the antipsychotic. Ive heard of people who got better, and if i were you I would hold on to hope as well, it might just take longer for you. Id love to chat more and hear more about your experience, and how you're coping (how you spend your days, when it all started, etc.)
 
ms.elle

ms.elle

Member
Joined
Jul 24, 2018
Messages
10
#26
elle, do you mind me asking are you still on resperidone? if so then id imagine you wont be feeling any different until you have come off of it ? or have you been taken off it and still feeling the same ? i have done alot of research into possible medicines to help with recovery ... have you done this also ? regards , harry
Hey Harry! I got off resperidone and was put on abilify approximately 3 months ago, but am still feeling the same unfortunately. And yes, Ive been doing some research on anhedonia which is what this is to an extent (although I have no emotions, including negative ones). I wish you luck!
 
boudreauj4

boudreauj4

Well-known member
Joined
Jan 6, 2017
Messages
706
#27
Anhedonia and lack of emotions can be negative symptoms of the illness. So it might not be caused by the medication. The only way to know for sure is to stop taking medication but you might not want to do that.
 
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harryresperidone

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Joined
Nov 6, 2018
Messages
5
#28
i feel it is the medication that has caused these symptoms .....as they inhibit the dopamine system, the dopamine system is responsible for the reward system and transmit 'good' , or 'positive' feelings if you will.... rewarding you for activities you enjoy, and also is responsible for anticipation of such activities... or looking forward to things.... there is a huge body of evidence to suggest that AP medicines; particularly dopamine antagonists such as resperidone cause flattening , anhedonia , similar to the negative symptoms of schizophrenia .... this effect was even given a name 'NIDS' 'neuroleptic induced defecit syndrome' so it seems like potentially a dopamine agonist such as pramipexole may help , makes sense on paper anyway .... antagonized dopamine system where dopamine has been drastically reduced ....so apply a dopamine agonist in an attempt to produce higher dopamine levels ..... there have been studies done that suggest these agonists can be helpfull in treating 'anhedonic and treatment resistant depression..... also ect is an option ..... it annoys me that these shrinks want to lable this as depression ... i would give ANYTHING to feel the way i did when i was suffering a supposed major depressive episode ....at least i still enjoyed the odd thing like football and a good film ..... i have been off resperidone for 2 months now and no change ... currently on venlefaxine , an snri AD, nothing ....they just doubled the dose to 150 mg .... i'm also taking 5 different food supplements. it also annoys me to know that not all cases of psychosis are treated with AP's ... check out dr peter breggin , world famous shrink , he has NEVER in his entire career put anyone on an AP no matter how ill, he thinks they are dangerous... watch his youtube .... in norway they don't use medicine and view that the psychosis will end naturally in most cases .....WATCH THIS : YouTube .... i didn't take my medicine in hospital and was fine to go home after 3 weeks .... when i got home i felt very anxious so decided to take the medicine after all .... wish i hadn't .... feel like my little boy has lost his dad .... my brother his brother (after losing one anyway to suicide) and my mother her youngest son ... we used to talk so much and be so close now it seems impossible to be close to anyone.... anyone with any ideas greatly appreciated .... hope some of that info offers hope ms elle. bless you.
 
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sassafras

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Jan 17, 2019
Messages
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#29
Risperidone - etc

Hi Ms Elle and Harry,
Yes, there is a growing body of evidence that psychosis will eventually resolve whether treated with APs or not and that people who are treated with CBT and psychotherapy and no APs do at least as well, maybe better, in recovery. the concern has always been that an untreated psychosis is so debilitating that people can't continue their everyday activities and so become withdrawn. that makes it harder for people to get back to life. but I don't think APs are the only way forward now. unfortunately when I first became unwell I wasn't as able to research and make clear decisions for myself even though I had a lot of insight and have worked in the mental health field for 25 years. I thought I needed an exorcism! the illness really puts us at a disadvantage. and really, I just wanted it to stop.
I think the issue with a dopamine agonist is that it could trigger another psychosis, given the dominant hypothesis about psychosis is it's an excess of dopamine. but I'll definitely have a read up on pramipexole.
yeah, it's really hard to connect with people when you don't feel much. it's like being a different person. no-one gets it. you can seem normal on the outside but it's like I'm faking it all the time. This is how I've continued to work throughout everything except for the first 2 months I had off. It's been excruciating.
thanks for the resources, I'll definitely take a look. I'll post some too that you both might be interested in. research that indicates the hormone oestrogen can help protect people from psychosis, both women and men, is most promising. I've even been reading about psychedelics???
my doctor says i need to read a lot to encourage the cognitive functions back.
great to chat to you both :goodluck::goodluck::):)
 
S

sassafras

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Jan 17, 2019
Messages
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#30
These resources might be helpful to you:

Oestrogen — a new treatment approach for schizophrenia?

scroll down this list of research. there is a lot there:

Jayashri Kulkarni – Projects — Monash University

Risperidone - etc

Hi Ms Elle and Harry,
Yes, there is a growing body of evidence that psychosis will eventually resolve whether treated with APs or not and that people who are treated with CBT and psychotherapy and no APs do at least as well, maybe better, in recovery. the concern has always been that an untreated psychosis is so debilitating that people can't continue their everyday activities and so become withdrawn. that makes it harder for people to get back to life. but I don't think APs are the only way forward now. unfortunately when I first became unwell I wasn't as able to research and make clear decisions for myself even though I had a lot of insight and have worked in the mental health field for 25 years. I thought I needed an exorcism! the illness really puts us at a disadvantage. and really, I just wanted it to stop.
I think the issue with a dopamine agonist is that it could trigger another psychosis, given the dominant hypothesis about psychosis is it's an excess of dopamine. but I'll definitely have a read up on pramipexole.
yeah, it's really hard to connect with people when you don't feel much. it's like being a different person. no-one gets it. you can seem normal on the outside but it's like I'm faking it all the time. This is how I've continued to work throughout everything except for the first 2 months I had off. It's been excruciating.
thanks for the resources, I'll definitely take a look. I'll post some too that you both might be interested in. research that indicates the hormone oestrogen can help protect people from psychosis, both women and men, is most promising. I've even been reading about psychedelics???
my doctor says i need to read a lot to encourage the cognitive functions back.
great to chat to you both :goodluck::goodluck::):)
 
NWiddi

NWiddi

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#31
I'm about to switch from Aripiprazole to Risperidone, my doctor says it will help with the extra anxiety I've been having from Aripiprazole and the restlessness.

She says the trade-off will be increased appetite, tiredness and possibly stiffness in my muscles and joints so I'll see if I get those side-effects aswell as any emotional flatness and of course the effect it has on the voice I hear.
 
ms.elle

ms.elle

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Joined
Jul 24, 2018
Messages
10
#32
i feel it is the medication that has caused these symptoms .....as they inhibit the dopamine system, the dopamine system is responsible for the reward system and transmit 'good' , or 'positive' feelings if you will.... rewarding you for activities you enjoy, and also is responsible for anticipation of such activities... or looking forward to things.... there is a huge body of evidence to suggest that AP medicines; particularly dopamine antagonists such as resperidone cause flattening , anhedonia , similar to the negative symptoms of schizophrenia .... this effect was even given a name 'NIDS' 'neuroleptic induced defecit syndrome' so it seems like potentially a dopamine agonist such as pramipexole may help , makes sense on paper anyway .... antagonized dopamine system where dopamine has been drastically reduced ....so apply a dopamine agonist in an attempt to produce higher dopamine levels ..... there have been studies done that suggest these agonists can be helpfull in treating 'anhedonic and treatment resistant depression..... also ect is an option ..... it annoys me that these shrinks want to lable this as depression ... i would give ANYTHING to feel the way i did when i was suffering a supposed major depressive episode ....at least i still enjoyed the odd thing like football and a good film ..... i have been off resperidone for 2 months now and no change ... currently on venlefaxine , an snri AD, nothing ....they just doubled the dose to 150 mg .... i'm also taking 5 different food supplements. it also annoys me to know that not all cases of psychosis are treated with AP's ... check out dr peter breggin , world famous shrink , he has NEVER in his entire career put anyone on an AP no matter how ill, he thinks they are dangerous... watch his youtube .... in norway they don't use medicine and view that the psychosis will end naturally in most cases .....WATCH THIS : YouTube .... i didn't take my medicine in hospital and was fine to go home after 3 weeks .... when i got home i felt very anxious so decided to take the medicine after all .... wish i hadn't .... feel like my little boy has lost his dad .... my brother his brother (after losing one anyway to suicide) and my mother her youngest son ... we used to talk so much and be so close now it seems impossible to be close to anyone.... anyone with any ideas greatly appreciated .... hope some of that info offers hope ms elle. bless you.
To be perfectly honest, Im not sure anymore if its only the medication that causes this Harry, it might be a more neurological issue. And I know pramipexole has a lot of side effects, especially for someone who's experienced psychosis. i know the condition we're in is horrible, but it's good to be cautious about this-who knows what another episode would cause. I feel for you though, I feel like Ive lost myself, and my friends have lost a friend and my family a daughter and sister. It's such a horrible condition to be in, I dont know what to do. No matter what anyone tells me, no one can fix this illness and that's what scares me. That I dont know if this emotionlessness will go away, this horrid state of being. Please keep me updated now that you're off resperidone!
 
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Skynet

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#33
I've been on risperidone 1.5/2 mg for over a year now. My psychiatrist said that my face has become blunted and I'm also having intrusive thoughts due to the risperidone. So, she is gradually switching me to Abilify. I think I also have ADHD, so the Abilify may help with that as well.