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I have been told that my doctors may never diagnose me, has anyone else been in this position?

Shana09

Shana09

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It's made me really anxious... I don't like the idea that I'll never know why I behave the way that I do, it makes me feel like a flawed human being. Why would they say this and have you ever been in this position?
 
Shana09

Shana09

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West Midlands
I just thought it would be useful to know that my doctors have never seen me in an "episode" because of my mums' insistence that she could sort it out herself without outside intervention. I take antidepressants and antipsychotics (Sertraline and Quetiapine.) So they've mostly relied on word of mouth although I mostly mumbled due to high anxiety. Apparently my mum was told that it is hard to diagnose me with anything and there is a tick under various mental health problems that my symptoms align with so they can't pinpoint exactly what's wrong with me.

Thanks in advance x
 
Shana09

Shana09

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They've relied on statements from my mum or sister by the way... x
 
M

MadeOfMetal

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For whatever little this is worth, that kind of frustration is not exclusive to mental health. Me, my wife and my daughter have all had (and continue to have in some cases) medical issues that have confounded our doctors. Given the symptoms they have their lists of KNOWN causes for the issues, but when they test us for those causes, all of the tests come back negative, and the doctors just honestly say, "We're sorry, we don't know or understand what is causing this".

Ask any autism parent how they feel about having a loved one with a condition that doctors have no clue how to cure and only BARELY know how to even treat.

I've never felt like a "flawed human being" personally despite my mental and medical issues. Not bragging, just saying I've never really looked at myself that way. I'm me, and pretending those issues aren't part of me is just denial. I "play the cards I was dealt" so to speak.

Probably not exactly the response you were looking for, but hope it at least provided a few seconds of entertainment if nothing else.
 
M

MerDreamer

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If you have no known diagnosis it’s either hypochondriasis or munchousen’s by adult proxy in light of the statements by your Mom. Ever considered those?
 
M

MerDreamer

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However, if you “feel like a flawed human being” consider going into depth about those feelings with your doctor they may come to the conclusion that it’s some form of dysmorphia. Which is a distortion of the self and perceiving the self as flawed in some way. I have this. For me it’s body dysmorphia. It goes along with my eating disorder. Just start by opening up to them on your feelings of being flawed. They probably didn’t know where to start because you weren’t talking to them about key elements. Do some research on mental illness symptoms. Or better yet take a college psychology class at a community college. See what you relate to. Go from there. Good luck wish you all the best.
 
J

JeanPierre

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so how does your mom tell you how you behave?
((You know that's messed up, right?)
 
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