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I am unsure - help me please

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celticlass

Well-known member
Joined
May 7, 2011
Messages
630
Location
Scotland
I know I am not doing too good just now, both physically and mentally. Having had to stop Amisulpride in May because of the Prolactin issue no substitute has been put in place alongside the new anti-depressant, Venlafaxine. I have been struggling ever since to be well, and of course now shaking with the shock of the MS diagnosis. The latter feels like a real struggle to get access to the Neurologist and agree treatment. Some of my family responses seem a little bizarre - not really acknowledging the illness, leaving me on my own with it and so forth and I feel isolated. I see the Consultant Psychiatrist next week and I will be relieved to discuss my situation and my need for the right medication. I know I am not too stable. Up and down. Cannot concentrate. Tearful and emotional. Can people tell me is it wrong of me to be telling one of my sons No, I am not going to be taking your 2 children (aged 2 and 4 and whom I love very much) off your hands at the moment. I feel I have at least one very serious illness going on and cannot cope, that it is help I need from them not the other way around! (I have done child-minding for them for 4 years and plan try to help again next year despite MS but the path cannot be one way - is that selfish?).
 
Mayflower7

Mayflower7

Well-known member
Moderator
Joined
Jan 4, 2013
Messages
10,822
Location
England
Hi,
No your not selfish at all, you need time to come to terms with your recent diagnosis.
I'm sorry it's so difficult to find care, my cousin was ignored by the NHS for years with his MS.
We're here to listen anytime.
Hugs
 
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celticlass

Well-known member
Joined
May 7, 2011
Messages
630
Location
Scotland
Thank you. It is just the combination of my MH medication not being right and the worry about the treatment/future with the MS. I just feel alone with it. My family are doing well and getting on with their lives, but they are career and young children focused. I guess they don't want a reminder I am becoming fallible. But I will see the Psych next week and talk things through. That is first step. If I can even out my feelings I can do this. Some thoughts of wishing I was dead.
 
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Livebythesea

Well-known member
Joined
Nov 29, 2019
Messages
132
Location
East Coast
Am so very sorry for all you and your family are going through. I do not have any advice but I just wanted to note that while I'm sure you are getting a lot of info about MS, I saw an article headline about the benefits of a plant based diet and helping those symptoms, so just wanted to pass that along. Wishing you the best of luck.
 
calypso

calypso

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Admin
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Joined
Jan 5, 2011
Messages
45,650
Location
Lancashire
Its a lot to take on board all at once. I hope your trip to see the psychiatrist is a fruitful one. Surely they can give you something else that doesn't cause the side effects. I think you need your mental health sorted more than ever now. I know you are a confident strong woman, but do you think you might benefit from having an advocate with you? Someone who can support you?

I hope the MS progresses slowly and gives you time to adjust to it.
 
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celticlass

Well-known member
Joined
May 7, 2011
Messages
630
Location
Scotland
That's a very good point Calypso as I feel strongly there is a need to look at my health holistically. The GP seems to think she has a handle on who and how I am but she does not! And psychiatry are not really hearing me half the time. Plus now I am more concerned than ever about the impact of MS directly on my brain and moods. So I have been thinking about asking Advocacy services to support me to try to move forward with an all round plan.
 
Lunar Lady

Lunar Lady

Well-known member
Joined
Mar 19, 2019
Messages
5,273
Location
UK
Celti, you're not remotely selfish.

Small children are draining and exhausting - you also need eyes in the back of your head and to be alert at all times with a toddler.

Say 'no' and keep saying 'no' until you genuinely feel strong and well. They'll manage.

Big hug for you - I know you're having a rough time with your health. Calypso talked a lot of sense. xxx
 
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