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Hidradenitis Supperativa

BorderlineDownunder

BorderlineDownunder

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Nov 23, 2015
Messages
17,160
im making this a thread because Oh Boy

I am having my second round in a handful of months and its stress related and IT HURTS

I only have one tiny lesion but have been so unwell I even had my kidneys tested

was in A LOT of back pain that weirdly seemed to be ovarian as well

still hobbling, sleeping appetite gone

tests all ok

come home and find a big throbby looking lesion on my tummy (I don't own any mirrors) without pain but in the exact place externally

this is like a pimple from hell but the PAIN people

Imagine your entire body quadrant being affected for me this time it was my pelvic area

the first time it was my entire top left torso - one lesion under armpit

this is a really painful agonizing disease and also quite rare and GUESS WHO is having a (no doubt) stress related flare

Ive been very unwell this is one Nasty Disease

finding info - pretty mch impossible so far but im going to keep trying I know tere are support groups and now I know why

it HURTS
 
BorderlineDownunder

BorderlineDownunder

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Nov 23, 2015
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17,160
ok so ive had enough of this PAIN

im going to docs in an hour and hopefully they will dx the HS and give me some proper pain relief

this is Too Painful to be Normal.

:(

while im down there I can also report Roadkill for his latest faux pas of abusing me via text

and hopefully get some decent goddam painkillers!
 
BorderlineDownunder

BorderlineDownunder

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Nov 23, 2015
Messages
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this is still knocking the hell out of me another day on he sofa

someone described the pain as second only to childbirth which I found funny because I FELT like I was in labor that's how bad the back pain got

:(

Just tired and knocked aroud now but at least no pain. on strong painkillers and just drinking water no appetite losing track of time badly.
 
BorderlineDownunder

BorderlineDownunder

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Nov 23, 2015
Messages
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looks like I will miss Sammys funeral in favor of a run to my GP for more painkillers and to Show Him What He Missed :(

This freakin thing almost has a FACE

its officially the Third Most Painful disease known next to kidney stones and shingles

both of which ive had and aren't a patch on this

its not so much the Level of Pain but the Relentlessness of it also the awareness of the Level of painkillers Im on is very high and I actually NEED them :(

scary stuff all by itself hwen it drags on


what likely happened- an internal cyst formed about 2 weeks ago (just after Roadtrip from Hell SURPRISE) and has eaten its way through my muscles fat and skin t oform a tiny lesion

the Final Symptom

so all this pain is because all my nerve endings have been eaten through essentially

from kidney to my abdomen in a long trail


and it HURTS
 
BorderlineDownunder

BorderlineDownunder

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Joined
Nov 23, 2015
Messages
17,160
...and now ihave thrush :(

waking at 2am to shart out prevous days meds and food

wonderful who needs sleep
 
BorderlineDownunder

BorderlineDownunder

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Nov 23, 2015
Messages
17,160
there is sort of a blood blistery thing just above the lesion

chances are they are connected

this means its eaten through under the skin which is where all the pain comes from

this thing is looking worse not better :( I think its spreading
 
BorderlineDownunder

BorderlineDownunder

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Nov 23, 2015
Messages
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feel a lot better this morning

actually woke at a Decent Hour

yes im aware no one else would call 3.30am Decent but its far better than 1am trust me

I have script 2 of ABs to get made but broke again if I get it made up no food for me for a week well Rations

fuck poverty just fuck it
 
BorderlineDownunder

BorderlineDownunder

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Joined
Nov 23, 2015
Messages
17,160
woke at 2.30 this mrin

I think its the discomfort

any way Ive been up an huor and a half and just took codeine so its been ok but then I realize ut oh here it comes

its like a dull back/period pain except across my whole left pelvis from the bone out as that's what the HS has done

started at the bone and eaten through my belly fat

this is why it hurts

it was also a bit itchy so maybe its healing - I have a second round of abs to get made up

I have a raving case of thrush beginning also

but at least I only ate fruit yesterday and beans so not constipated which I was fearful of.

oy vey another day of feelin like a second hand bag of shite - how many is that now in a row? A month? nearly, ever since Roadkill.
 
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