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Help needed

M

maramar100

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Jul 15, 2015
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4
Hi,

I'm a new member and although i do have a severe anxiety disorder myself i'm posting in the hope of getting some advice re my daughter as our family is floundering. It is quite complex but i'm desperately hoping someone has some advice as to any direction we can take.

She used to take drugs but hasn't for over a year. She has always had mental health problems since a teenager and has been on various medications since the age of 15 such as diazapam,mertazapine and others. She lives in social housing and has been through some terrible times. She was on 30mg of diazapam for many years as without it she gets very angry and upset. She has also been on methadone (a very small dose) for 3 years and they are refusing to stop it even though she wants to be totally free of it. Her Cpn has also been reducing her diazapam at a rate of 5mg per month and she is now on only 10mg. This has caused her to really go backwards.

She is being found in places on the ground with no idea how she got there. She also has severe physical illnesses such as a blood clotting disorder, blood clots on the lungs etc. She has been assaulted many times while out and about in her area and has been abused, physically assaulted etc. Whether she managed to go to rehab and no longer takes drugs and hasn't for a long time means nothing to people who can be non forgiving and cruel when they see any weakness in someone, especially in the area she lives in. Her home is constantly being attacked and her social housing landlord has been harrassing in its determination to make her homeless. If she's two weeks behind in bedroom tax which is around 30 pounds they take her to court. She gets taken to court over this once a month at least at cost to her for fees even though the court dismisses it.

I'm just trying to paint a picture of her life so sorry for the ramble. She has complex mental health needs and is very vulnerable both mentally and physically. We have begged her housing association to give her an emergency move for her safety but they are absolutely disgusting in their treatment of someone who is on highest care disablity and who is confused and vulnerable. They want her out and homeless. She is in an upstairs two bed flat and finds it very difficult to manage the stairs. I have been bidding for her on Devon Home choice to get her out of the area and so that she does not have to pay bedroom tax which she cannot afford. However, even though she is 1st in line for all properties of 1 bed she never ever wins one and we have finally decided she must be blocked by her housing association.

They lost in court in an attempt to get her out but have since resorted to contemptible tactics to remove her making her life a daily horror where she lives. I would have thought having a CPN, social workers and Harbour supposedly helping something would be done but they do nothing to help but make her go daily to a chemist for diazapam.

I guess my question is what do we do next? This girl self harmed a few weeks ago and the response from the CPN instead of realising she needs desperate help decided because of it she would no longer visit her at home as it wasn't right she had hurt herself and as such she wouldn't feel safe in her home. Surely this should be a big warning sign.

We don't know what to do and fear that one day soon we will get a call saying she has killed herself. She is not an animal but a mentally ill woman. They don't want her to live in their flat but won't let her move either even though it is unsuitable for her and the area is dangerous for her.

Can anyone help as to where we can go where someone will stand up and do something to help her instead of just platitudes and medication?

Many thanks and sorry for the ramble
 
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Unique1

Unique1

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Hi Maramar100

Welcome to the forum.
Sorry to hear of these struggles.
I'm really not sure what to say or advise. It seems all of the people who are around to offer help and support are not helping. That must be very difficult.

What reasons are they giving. Have you asked housing why, if she bids and is top of the list why she doesn't get there. Maybe she shouldn't give up on this, maybe she is close to getting there,and it is just a long list at the top there..
Similar happened to me with bidding, and they were helpful when I asked about it. Worth a try to get some idea just what is happening.
If you feel the services that should be helping are not for some reason, maybe speak to your local councillor. Councillors will take on board complaints ,usually via surgeries they run in your locality or sometimes over the telephone if they have a local office. Or possibly ask for the complaints process of these services if you feel they are not helping and complain. I know it's not always what we wish to do, but from what you are saying about all of the support In your daughters life they are not helping. You could try CAB see if they could help you and Guide you in the process, or even advise you on the current situation on options available.
Sorry I've waffled a bit. Just brainstorming on possible ways forward for you both.

I wish you well.
Unique1 xx
 
cpuusage

cpuusage

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Can anyone help as to where we can go where someone will stand up and do something to help her instead of just platitudes and medication?
Complain -

Mental Healthcare :: How to complain

Complaining about health and social care | Mind, the mental health charity - help for mental health problems

Complaints - Rethink Mental Illness, the mental health charity

NHS complaints procedure - The NHS in England - NHS Choices

Would also be worth writing all this to the care quality commission, ombudsman & your MP -

Care Quality Commission

https://www.writetothem.com/

http://www.ombudsman.org.uk/

[Type out then just copy/paste/amend etc the letter to different people]

Unfortunately in a lot of places mental health services are in a very sorry state of affairs. Dual diagnosis has little to nothing in the way of appropriate services directed towards - which is mad seeing as 50% of those with a MH diagnosis have some form of dual diagnosis issue.

i used a lot of self help/12 step & what resources i could find, most of it independent from MH services. Have been in private rented accommodation for the past 14 years. It is hard trying to navigate the system, live & survive when also trying to deal with mental illness.

Hope that you get something sorted.
 
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maramar100

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Jul 15, 2015
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Thanks for replying so quickly :) As she is an ex drug addict (if thats the correct word) they've been trying to remove her since she was taking drugs. She did everything asked and went to rehab and got clean etc.However, her mental health got even worse after the year she was on drugs and the damage to her was done both physically and mentally. I have asked why she is not even being contacted or shortlisted for bids she is in position one on and been told simply to speak with her housing association who of course are the ones harrassing her. It's vicious circle. We have nobody to turn to. She was a drug addict and thats all the housing association see. Makes her dirt in their book. She is not. She is an intelligent beautiful girl who lost her way and is in not only emotional but also physical danger. We cannot get a solicitor as they charge for civil cases and so the housing association continue with their disgusting tactics. Anybody else who was in as much proven danger would have gotten an emergency move. Anybody else with the severe physical ailments she suffers from would immediately be moved to a bottom flat. Instead this girl with so many problems who has a personality disorder is bipolar and has severe anxiety disorder and other mental health problems is left to rot and be treated like an animal.

Thank you anyway hun. Maybe there is no answer and no protection for her. x
 
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maramar100

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Jul 15, 2015
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Thank you for the links. I'll take a look. On Devon home choice it says what bidding position on a property you are in. At the end of each bidding she is still always position one and yet is never ever contacted. I was thinking of private rented accomodation but they are so rare if you are on housing benefit. Also they will ask for a reference from her housing association who are determined not just to get her out but to ensure she has nowhere else to live so i doubt it will be stellar.

I sometimes wonder would she have ever taken drugs for that year if she did not have mental health problems already. Was it a big factor in her decision to say yes that first time. Either way it has been years of us struggling with her mental health. First hospitalization at the age of 15. I'm so scared she will permanently hurt herself one day. I will take a look at the links hun thanks

Thanks again
 
Last edited:
Unique1

Unique1

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Hi

I think you should go down the complaint route.
Cpu has also given a few good leads there on his reply that you could follow up to complain.
You can complain to your MP. You don't always need a solicitor, all of the services you are dealing with have complaints processes. I think cpu has provided links to some good ones there.
CAB may be prepared to help too.
I wouldn't give up.
I wish you well
unique1 x
 
cpuusage

cpuusage

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Thank you for the links. I'll take a look. I was thinking of private rented accomodation but they are so rare if you are on housing benefit.

Thanks again
Has she been on a section 117 aftercare? You get it if you have been in hospital under section 3, 37, 45A, 47 or 48 of the Mental Health Act. Can carry some weight if she has as the authorities then have a duty of care.

Some private rented landlords are more accommodating of people on benefits. Depends on area.

i think it's worth making some noise/complaints.
 
cpuusage

cpuusage

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i think it's worth making some noise/complaints.
In relation to getting help & exercising personal rights, with housing, benefits & medical care -

i know it sounds a bit clichéd - But it's worth reading/becoming familiar with the Declaration of human rights, which UK law/services still come under -

The Universal Declaration of Human Rights

Article 22 & 25 (especially)

Independent evaluation/representation by private/NHS psychiatrist/MH worker/GP. [Medical evidence] (CAB may be able to help with independent advice/representation, some areas are a lot more helpful than others).

ESA Regulations 25 and 31, 29 and 35.

Cite section 117 (if she has been on one).

Independent legal (or appointed person) advice/permission to obtain access to psychiatric records, for more evidence.
 
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maramar100

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Jul 15, 2015
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Thank you very much for all the help. I have a lot to go on now and hopefully one of the links and agencies given will be able to help

Thanks again
 
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