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Has anyone else continuously refused Clozapine?

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danmarkok89

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Mar 14, 2021
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401
Location
Norwich
@Misssad1111 well it might work but I don't like the idea of becoming housebound by weight gain and the cardiovascular effects of diabetes and other clozapine associated problems. True it doesn't happen to everyone but it does happen to some and thats not to mention severe drooling and increased risk of death. I guess a lot of it comes down to whether you can live with your symptoms on a lesser medication or not and how disabled you are by it all, we're all individuals at the end of the day and we handle circumstances differently plus dopamine decreases over time so the severity of positive symptoms tend to decrease over the years

@Cabra yeah it's not always very fair or just and for all those killings by people with severe mental illness that happen, I'd love to see the defence of the media when they factor in how all this treatment by the system that treats them like crap and are overly quick to prescribe crap meds that often don't work or come with unbearable side effects without a right to refuse on good grounds and all the BS of tribunals and general treatment by a lot of mental health professionals and even the public and the media, because I can't see how that's not a factor. Let's face it, so the story goes, because de-institutionalisation wasn't done well we should all be 'looked after' permanently in an institution and never see the light of day or the world because people can't be decent to us. Back in the day it was a punishment by god and since the enlightenment and the age of reason, we're unenlightened and the enemies of the public because of the 'unreason' we suffer from. Every society needs someone to blame because nobody can take a long hard look at themselves critically and admit that in one way or another, they're a bit of a shitbag. Not saying schizophrenia isn't a problem at times but society has done much to make it worse, historically and even up to this day today but only one side of the argument gets spoken about by the press or by the psychiatric establishment
 
Contramike

Contramike

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Jan 27, 2010
Messages
602
Location
Colorado
You do have a system that at least takes care of you, in the sense that they don't throw you out on the street if you can't pay your bill. Tribunals? Really? Wow. I'm in America and am genuinely fascinated by the differences in the NHS and our privatized system. This is probably not the place to discuss it, though.

My current pdoc tried to get me to take Clozapine, but I refused. He also wanted me to have a first generation AP via depot which I also said no too.

In the past I have been on roughly 7 AP's, and now he decides that I am suffering from Psychosis and not anxiety on top of psychosis - which they all thought was under control

This was my first 1 2 1 appointment f2f for over a year....

Now I need my heart tested, as I will be on 3 AP's from the end of next week should the heart testing go ok

Not sure what to think about all of this?

My current meds are

1200mg Amisulpride
5mg Aripiprazole
20mg Diazepam
375mg Pregabalin
50mg Promethazine

Now he wants to try Queitiapine in addition to all of the above, and I am not sure how I feel about it to be honest

It has to be better than Clozapine right? I told him we're many steps away from that scenario
You are on a TON of very hard meds! The fact that you can coherently type this is astounding. Your constitution is impressive!

Do they just keep tacking on additional meds, or do they at least try and replace the ones that aren't effective?
 
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danmarkok89

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Joined
Mar 14, 2021
Messages
401
Location
Norwich
@Contramike well sort of, although I did get accused of some stuff I didn't do which lead to me being threatened to be kept for longer in hospital indefinitely and have to prove myself more to a tribunal, also having staff offer to bring weed in, I also got assaulted by a member of staff and the mental health trust covered for them and they all still work there and I witnessed staff bullying other patients not to mention the unwanted sexual advances I had to consider working on (as part of a sexual safety panel as I do some occasional work as an expert by experience for the trust) because patients were being mistreated sexually. I guess my point is whilst the government does provide care, the government isn't accountable and I can promise you, in some ways government run stuff is worse because if a private corporation or health provider is proved to be causing problems over and over again then they can be closed down and people would know not to go there for help where as an unaccountable government doesn't do sod all and whilst they might try running all these fancy schemes and the higher ups in the trust stand down if something goes wrong, those lower down doing the actual work never change or get sacked and are just moved to another part of the trust if proven guilty of anything.

I'm not for privitisation but I am for genuine accountability including in the press who overly report on the wrongdoings of people with schizophrenia and even the left wing press because they adore the NHS and the NHS staff often don't report on their wrongdoings and failings, even if the right wing press are a lot worse generally speaking...
 
Contramike

Contramike

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Joined
Jan 27, 2010
Messages
602
Location
Colorado
@danmarkok89 I can relate to the accountability issue. Even if a large-enough private health care company is held responsible for a terrible wrongdoing the executives resign with a golden parachute while the staff directly responsible are fired. Then the world keeps turning. Large companies are their own government and are only accountable to shareholders. They've bought the politicians (the one's they need to) and the media coverage (mostly right-wing) so all they have to do to make money is keep existing. There are some clear differences I've noticed. The quality of the care sounds (a lot) better here, but it's expensive. I think that when a government creates an entity it doesn't account for change and science (health care) is the epitome of change and maybe the worst enemy of a system designed that can't be easily amended. You're stories are horrifying, but I can't say I'm completely surprised that an institution that is not accountable to the patients, doctors, stockholders or voters is violating it's patient's basic humility, let alone their health.
 
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danmarkok89

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Joined
Mar 14, 2021
Messages
401
Location
Norwich
@Contramike I guess sometimes the problem isn't socialised healthcare or privatised healthcare (although I am for socialised healthcare for the poor, vulnerable and needy, be it disabled or mentally or whatever) but how it's carried out in reality. It's sort of like socialism and capitalism, they're both done terribly most of the time and it isn't always so much the philosophy or ideology in and of itself but how it's carried out in real life and it's obviously always worth noting that as the two are often juxtaposed with one another, both are competing in geopolitics and economics and so neither can be truly realised to their true potential. that being said, I am largely for capitalism if done morally and correctly which it never is. Sometimes it's not who is in charge or what system is in use as they can both change and things rarely ever change for the better for a lot of people and they all have scapegoats and people they need to blame and there's always people who take anything too far, the question for me is how so many of them get into politics etc ?
 
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