Esa and pip experiences

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Stockwood

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I received both my esa renewal form and dla to pip form in the same week which was bad enough when you have serious mental health problems, incl severe anxiety and depression, but then the whole thing became a nightmare for multiple reasons. The dwp are a joke. They should be renamed the dept for worry and persecution.
 
NWiddi

NWiddi

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I hate filling those things in, I usually give my care coordinator a call and he pops round and helps me.

Good luck with yours.
 
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Pink1234

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:welcome:

I can’t help with the forms as I’ve had my own poor experience of the benefits system.

I just wanted to say welcome and express the hope that you find support here.
 
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nightmare57

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My care coordinator wrote me an excellent letter for ESA and PIP, My supported living manager filled in both forms. I was awarded ESA but had to attend medical, the assessor said if I sent the letter in from care coordinator I wouldn't of been called to medical. With PIP sent a updated letter from care coordinator and was awarded PIP without a face to face but I don't know which rate yet... My friend who lives with me in supported living and more able then me was awarded high PIP on both, so I think its looking good for me.
 
S

Stockwood

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Hi thanks for advice, but i no longer have a support worker and i still think the system is rigged against you. They just keep adding more and more obstacles for you to overcome.The deadlines are harsh and totally unrealistic.They got back to me within a week of posting pip form, supposedly (give me a break), having read through every page (enough of them) of detailed info, contacted all the relevant professionals and looked at evidence (which you get told will help your case; it doesn't, trust me, i have been through esa system twice ) supplied and told me my appointment has been scheduled for the following week ( now cancelled after staff member sick). They then threaten you with removal of benefits if you can't attend, despite telling them in form all the problems of getting there! The esa system is even worse. they make you attend in a city miles from where you live, in an office on the outskirts with no bus route and miles from train station. If i did not have problems making journeys i wouldn't be on esa or dla! I'm sorry, but as i said at the start, the whole system is designed to make you fail just so they can save a bit of money. Fragile mental health? Deal with the dwp and benefits system; they'll soon make it worse. Don't even get me started on assessors who have no mental health experience/knowledge, including one who said i didn't look mentally ill! I will save for another time.
 
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nightmare57

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I think its a unfair system. My supported living manager filled in my forms, After reading it I didn't think she explained my disabilities properly, she didn't go into depth, it was generic really, basally saying I get shared hours from support staff 7-10am 12-1pm 4 -6pm. And I get 21 hours a week one to one, also staff being on-sight 24/7. Thats all really. Plus my diagnosis and medication. She just ticked the boxes without going into too much detail. I thought I would have to go to a face to face. Within a week the assessor rang her and asked her a few questions in relation to me getting aggressive in public when unwell and assessor told her that's all the information she needs and I don't have to attend a face to face. That was 2 weeks ago. Still waiting decision.

I thought not having to attend a face to face was because I have an appointee and had the strong letter from community nurse which only detailed my diagnosis and support plans, although an excellent letter.

My friend and housemate was awarded both high rate -high mobility without face to face and my supported living manager said she wrote less information in his forms then mine, she has only been the manager 7 weeks also so was going on what's in the files at the support companies offices. When she wrote my PIP they're was no exaggeration in the forms so she was truthful. He is more able then me, never been sectioned, no meds, voluntary job. No anxiety. He does have loads of other difficulties though.

I think us getting PIP without face to face is solely being down to us living in supported living. supported living for people with learning disabilities which is long term tenancies plus with a support package from social services and their backing, this is hard to get for most people particularly people without moderate learning disabilities or a mild LD with severe mental health needs.

From my experiences I have never had any problem claiming benefits in my 17 years claiming, It has made me anxious reading all the horror stories though.
 
PinkCandyFloss

PinkCandyFloss

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I’ve had no issues with ESA, went through last year no problem and again this year when they sent the renewal. Straight into support group, no medical needed.

Just got my second PIP attempt rejected, having to mandatory reconsideration, don’t know if I can mentally cope with another appeal.
System is definitely for the most against you IMO, one of the reasons they’ve basically said I can’t get PIP is for being intelligent and understanding my conditions....what a load of ****
I feel a lot is held against me as I’m still on referral lists and struggling to be seen, as if it’s my fault the NHS have waiting lists of 2 years or more for who I need to see. Or that’s it’s my fault they can only give me one psych app every 4-5 months :(

I hope you’re a goes ok
 
S

Stockwood

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Thanks, i just don't see how all these assessments help us. I think all they have succeeded in doing is making my mental health ten times worse. How is this beneficial? They would've known the impact it would have on us and yet they still pushed through with it. I even included a daily diary of how badly it had impacted on my mental health, including that i had begun self harming again and they have still sent me for assessment and not even bothered contacting anyone on my list (gp, psychologist etc) to alert them. System not fit for purpose.
 
PinkCandyFloss

PinkCandyFloss

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Unfortunately the assessments aren’t really there for us, especially PIP. It’s for them to see if we are “sick enough”
ESA is apparently meant to be for us and them, so they can “give us support to get back to work” if we are able.

But having to fill in forms yearly is awful. Have you thought of typing everything up? That way you not only have a reference but can include them as additional/alternative to writing everything out again. Much easier to edit things and add things to an existing document. It’s what I’ve started doing
 
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Stockwood

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I'm sorry if this upsets anyone, but i really need to get this out there. I had my pip assessment yesterday and it was horrendous. My app was at 11.30 but did not go in until 1pm. Talking to a complete stranger about your mental health is bad enough, but when i told her that i had been self - harming and having suicidal thoughts she didn't even flinch. Just carried on typing and asked me questions like how i planned to do it and when! Never once advised me to get help, or anything. These assessments are cruel, unecessary, pointless and humiliating and all to save money. I'm sick of people saying there will be good and bad experiences etc. The fact is there is no need to put anyone with damaged mental health through it. End of.
 
PinkCandyFloss

PinkCandyFloss

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You’re very true Stockwood :(
When I had to talk about past episodes and such it was very blunt and uncaring. When talking of an overdose mine got annoyed as I couldn’t tell her exactly how many I had taken.... very heartless people sadly :(
 
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Bunny7

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Please complain about your experiences to Capita/Atos/Maximus, to the DWP and to your MP. The more people do this the more chance we have of change. If you’re feeling especially brave you can even contact local or national media. Capita were awful to me and I ended up under the care of the crisis team. My MP and the person who dealt with my complaint at DWP were brilliant though.
 
PinkCandyFloss

PinkCandyFloss

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I complained to Capita, they told me to suck it up basically. I asked for it to be escalated higher and launched a further very in-depth complaint and have, I believe illegally, ignored. I’m yet to find an MP in my area I trust unfortunately
 
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Bunny7

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Capita never responded to my complaint! I sent a copy of it to DWP though and to my MP, which did trigger a response.
 
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ramboghettouk

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they reviewed my case last week, they're reviewing all relevant cases since that court judgement went against them on mental illness and having problems on public transport, totally fits me, they've given me 4 points for mobility as you need 6 for the basic rate it makes no difference if i appeal it could effect the high rate support i get you need 12 points and i got 13, don't want to risk losing it

then theres my savings and esa claim rumbleing away in the background

have to say at the start of care in the community and i've been ill that long there was no talk about treating those diagnosed schitzoprenic like this
 
S

Stockwood

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Thanks for all your advice and replies. I haven't responded since my pip assessment as it was so awful and i'm afraid it gets worse. I have been told that i am not entitled to pip as i scored 0 points. When i got my assessment form back (so i can start mandatory reconsideration) it was a joke! Just a complete work of fiction. The assessor had said things like i performed well at the interview and showed no stress! What i'd also really like to know is how can a system that allows psysiotherapists etc.to deliver mental health assessments be fit for purpose?
 
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ramboghettouk

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i have to say it's only under labour that i was called in. maybe it's that i dread been called in so much i do a good job with the forms, supply writtten support letters with a person they can phone, sadly i'm now struggleing to manage that, even with doing porridge at certain places for a potential reference

you have 4 weeks since the letters date a week gone in the post not much time to build up your case. i try to keep certain people available
 
PinkCandyFloss

PinkCandyFloss

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The system is unfortunately very broken, I scored 4 points, which is 4 more than last year but way less than I’m entitled to. Currently going through MR myself, I sent it in over 6 weeks ago, called up last week (near threw up on the call as it made me so anxious) and was told I could either do an over the phone MR (out of the question) or wait for my additional information and support to be reviewed etc. I was however not informed this could take up to, an additional 10 weeks!!!!

I am mid formal complaint with Capita over how my assessment was handled. I complained about how I was spoken to and about, but because only I heard it they refuse to go anywhere with it, I complained I was rushed, not believed and even argued with about my symptoms and conditions. I complained that the DA was clearly not suitable for the role, and was repeatedly told about her experience and degree. I pointed out being “qualified” doesn’t mean you’re suitable to deal with sensitive issues such as mental and physical health issues.

My complaint and MR are now in the hands of a local MP. I hope you don’t have to go that far, but you are most certainly not alone in this.
Get as much evidence as you can, make sure to send tracked delivery and phone/get someone to phone soon after it arrives to confirm what way you want it processed to avoid delay (mine could now take up to 16 weeks, it’s been already nearly 29 weeks since I first applied this year)
 
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ramboghettouk

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many years ago i saw this series, the guys in prison and his visitor tells him to tell the dr he's hearing voices, the truth, when he does the dr says why do you say that and he says because she told me too

the guy is ill too ill to play the game by the rules as others much better can, he gets a severe sentence

thats a fear of mine, i used to be brainwashed with i was stabilised on drugs and as long as i take them theres nothing wrong with me, i'm confused, what if i say the wrong thing at interview
 
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