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Does it help or hinder to be diagnosed....

Unique1

Unique1

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Hi

Fairly new to the site so apologies if I've posted in the wrong forum...

I have depression and anxiety, suspected PTSD , and possibly a personality disorder. I manged my depressive episodes for many years, well enough to always work and function. Since a massive episode around 18 months ago, after which I suffered sever panic attacks and really changed as a person, I have been out of work and very reclusive...being around people makes me worst as I analyse what has been said and ruminate about who said what and did I upset anyone etc etc...

I have had CBT and my GP has prescribed meds...for both depression and anxiety, along with meds for high blood pressure. I've also attended mindfulness. Nothing has really been successful, in fact I've got worse with fearing people and not going out, and constant fears of something bad going to happen...I constanly fear being judged and if I do go out I don't feel part of what is going on...

I have now been referred for phsychology, although as there is a long waiting list it has been arranged for me to see a physychiatrist , the appointment is in the next week..

I wondered what it's like to be diagnosed how people have felt and how it affects things, I guess there are positives and negatives. I guess it helps to know as you can then manage the illness better. It feels scarey to me...
I guess it's also a little easier for those worry benefit medicals that someone like me has to have and prove I'm Not well..

Any thoughts or experiences greatly appreciated.....
 
Gajolene

Gajolene

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Welcome to the forum Unique1, well done getting help and doing everything you can to find recovery options. I can relate to a lot of what you said as I have PTSD with panick and anxiety disorders as well for over 25 years now. It really does change who you are and it's really unsettling not being able to do the things you used to do.

Have you found your condition has gotten worse or better with your current medications? I ask because when I first went on meds they gave me ones that did make my condition worse. I had to change medications four times before I found what worked for me. I also go into therapy when I am having a hard time coping and being able to function. I am in therapy again at the moment for help with getting life back on track now that I have control over my symptoms mainly off meds. Therapy was helpfull at times and not so much depending on who the therapist was I was seeing at the time. I now have one that specializes in PTSD who I really like.
Hope you find the support you need and some good advice on the forum. Once again welcome to the forum.
 
Unique1

Unique1

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Thank you

@Gajolene

Thank you for the response I appreciate it.
Yes I have got worst, but maybe not the Meds, although the physychiatrist is going to review meds so that would be looked at.

Currently I have low dose of Citalopram and bisoprolol. And blood pressure meds....they make me so tired...
I keep trying as I would love to feel better, it's a hard slog...

This site seems really good and really helps...lots of peole with similar experiences and that helps

Will see what the physychiatrist says. I guess it will be good to get a diagnosis...
 
Unique1

Unique1

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Thanks for response. I take meds from Dr now, and am on ESA and PIP....but I guess to have a diagnosis may help me when the medicals become due again....
 
Gajolene

Gajolene

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I've heard that cilitropam is one of the better ones and they work well for many people, I'm not farmiliar with the other two your on though, but I'm in Canada so meds have different names and such. We are all uniquely different and what works for one doesn't work for another person. Hope you psychiatrist appointment goes well.
Are you keeping a mood journal and anxiety journal for your doctor? I find they really help to keep track and give the dr's a clearer picture of what is going on.
 
Unique1

Unique1

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I've started a journal a few times, have trouble keeping up with it but your right....even for the physychiatrist it would help, as I go blank when I get in there ...I must do that...thanks for the prompt...
Thank you for the kind wishes for my appointment, it's not for about 10 days yet, but no doubt I will post on here once I've been
 
Gajolene

Gajolene

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Please do keep us up to date. I've an appointment myself next week, dreading it as we are starting EMDR therapy. But I know in the long run it does help. I'm not on meds except for seroquels 25mg tabs for sleeping pills only when I feel I need it. Even those I cut a 25mg tab in half and it will give me a good nights sleep. I can take them when unexpected extream panick attacks hit as well and they work very well for me. When I relapse badly into depression I can't get under control I go on Effexors,(Venlafaxines in Britain) usually for between 3 - 6 months and I can go off again. I do the same at the docs as well, go blank from the anxiety. I write everything I can down before I go as a rule now.
 
Unique1

Unique1

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Good luck with that appointment. hope it goes ok.
Will update when I've been...
Chat again soon :)
 
SomersetScorpio

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First of all, sorry to hear you've had such a rough time of it.
I hope the appointment with the psychiatrist goes well and that you're not waiting too long to see a psychologist.

Whilst some might think it cynical, I have to agree with CPU's point. For me, it's a means of getting medication and having something official to write down when claiming ESA.
As far as whether or not it's actually helped me to get a diagnosis? No. It really hasn't.
In fact i've been treated far worse since getting the diagnosis I had 5 years ago of BPD.

But, it really just depends. All people are different, and some find it comforting to have a label to identify with as it makes them feel less alone and more able to know that the symptoms they're having are in illness and not part of them (if that makes sense).
 
Unique1

Unique1

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@SomersetScorpio
Thanks for response.
Yes it is going to be helpful when a medical comes my way again I reckon, those darn medicals are so stressful at least if it helps with that then that's one thing.
I understand what you mean, helpful to some, makes no difference to others or can be a pain, depending....I guess for me I am kind of interested to know,to have a bit more knowledge in the hope I can manage whatever it may be a little better, one can only hope...it's a complex thing to me, and I think knowing a little more helps, and your so right , we are all very different in how we cope with things and how things affect us, it's a very individual illness, thanks again
 
pepecat

pepecat

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I think for me it's been a means to an end, in a way. I don't think I'd have had such good therapy had I not gone down the gp - psychiatrist - specialist therapies route.
The diagnoses gives a name to a group of symptoms that I experienced (and still experience to a lesser degree) in layman's terms, but it doesn't explain my internal experiences and the journey I've been on.

So in a way it's been helpful, and in other ways, no.
 
D

DoctorJ

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Being diagnosed as having Schizophrenia is a good way to know and respect what one is and has. However, in the last year I have just come across the most wonderful idea - that my voices I hear are to be respected and acknowledged. Suddenly a new idea sparks - the voices are saying quite valuable words. I lose my fear of the voices and I begin cherishing what they are saying. Some of them are rather crappy, but there is one particular voice I have that is very real in his sayings; he is a 60 year old chinese gentleman with light wispy grey hair. He has some very nice sayings that are rich in meaning. What I am wanting to say is that being diagosed is one thing, but on the other hand it is another thing to actually harness the power of who you are and learn how to be a better person through harnessing the power of my voices.
 
Unique1

Unique1

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Thank you for the response. That is really helpful. I agree with you, the help so far I have had down the route of the professionals along with cbt, mindfulness etc has been invaluable and I have learnt a lot about the illness, as prior to 18 months ago I new nothing about it.
 
Unique1

Unique1

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Being diagnosed as having Schizophrenia is a good way to know and respect what one is and has. However, in the last year I have just come across the most wonderful idea - that my voices I hear are to be respected and acknowledged. Suddenly a new idea sparks - the voices are saying quite valuable words. I lose my fear of the voices and I begin cherishing what they are saying. Some of them are rather crappy, but there is one particular voice I have that is very real in his sayings; he is a 60 year old chinese gentleman with light wispy grey hair. He has some very nice sayings that are rich in meaning. What I am wanting to say is that being diagosed is one thing, but on the other hand it is another thing to actually harness the power of who you are and learn how to be a better person through harnessing the power of my voices.
Thank you. I agree this is a wonderful idea, using the power of the voices in a positive way, and losing the fear of them is so lovely to hear. Thank you so much for the response..:)
 
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