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Does it get better?

HopefulMe

HopefulMe

Well-known member
Joined
Oct 4, 2019
Messages
61
Location
United Statea
I have schizoaffective disorder. However I do not take meds - this is because I have suffered severe side effects. Psychotic symptoms vary, but I have them quite often, I have had to find ways of checking reality and remaining aware that things might not be really happening. It is not easy, but if you can do this to some extent you may be able to take a lower dose drug. My worse problem is depression, but life is difficult.
I am also driving my schizoaffective train without meds. Very interested in some coping skills or techniques you may have mastered. Hope your smilin today 😁
 
W

Worriedyin

Well-known member
Joined
Oct 2, 2019
Messages
66
Location
Scotland
I have schizoaffective disorder. However I do not take meds - this is because I have suffered severe side effects. Psychotic symptoms vary, but I have them quite often, I have had to find ways of checking reality and remaining aware that things might not be really happening. It is not easy, but if you can do this to some extent you may be able to take a lower dose drug. My worse problem is depression, but life is difficult.
I have previously suffered from major depression and anxiety and I'm actually worried that this may come back when I taper off current meds as have found the risperidone has prevented those symptoms. I guess I'll find out! It's amazing to hear that you two are able to cope without medication.

It gives me hope!
 
HopefulMe

HopefulMe

Well-known member
Joined
Oct 4, 2019
Messages
61
Location
United Statea
I have previously suffered from major depression and anxiety and I'm actually worried that this may come back when I taper off current meds as have found the risperidone has prevented those symptoms. I guess I'll find out! It's amazing to hear that you two are able to cope without medication.

It gives me hope!
There's always hope. Yes most of my journey med and professional help free. Not saying I recommend doing so tho. Meds never had a lasting positive reaction for me. I wish u the best of luck on your journey. If u wanna chat or need to vent I'll listen. Hope your smiling 😁
 
W

Worriedyin

Well-known member
Joined
Oct 2, 2019
Messages
66
Location
Scotland
There's always hope. Yes most of my journey med and professional help free. Not saying I recommend doing so tho. Meds never had a lasting positive reaction for me. I wish u the best of luck on your journey. If u wanna chat or need to vent I'll listen. Hope your smiling 😁
Thanks!

Why without professional help if you don't mind me asking? I've had a CPN and psychiatrist since I came out of hospital and think I'd end up back in hospital if I disengaged from services. I'm relatively happy with the care I'm receiving anyway, the medication has helped me get my mind back.

Have you always had schizoaffective?
 
HopefulMe

HopefulMe

Well-known member
Joined
Oct 4, 2019
Messages
61
Location
United Statea
Thanks!

Why without professional help if you don't mind me asking? I've had a CPN and psychiatrist since I came out of hospital and think I'd end up back in hospital if I disengaged from services. I'm relatively happy with the care I'm receiving anyway, the medication has helped me get my mind back.

Have you always had schizoaffective?
Well I believe I have had the symptoms of schizoaffective for about 20 yrs. I am 34. Up until about 4 1/2 yrs ago I honestly just thought my hallucinations, delusions, paranoia, voices where all just normal. I knew it was off, but when I did try to discuss it with my husband or friends they just kinda laughed it off, so did I. Its just me. Then 4 yrs ago I had my first slap in the face, my husband and mom told me I needed help. So I immediately started the hunt for a doc and therapist. Found both. They put me on meds I had couseling twice a week. The meds, I tried many, never really did anything for me except make me a tranquilized zombie, made symptoms worse, got most of the side affects from them. I did find 2 that I thought where helping, but I NEVER felt happy ya know... About a 1 1/2 yrs ago I looked at my husband and said I'm gonna try things my way, plus I was getting kicked off the financial support I was receiving so just those 2 meds are $2000.00 a month, I started a slow tapper, by myself. After sometime I became clear, so clear. I was smiling and functioning, I got a job, really started focussing on me and my recovery. I am at the tail end, I hope, of the worst break I've had and contemplating meds again, but I just can't seem to bring myself there. I felt worse on meds than I do off as of now. Lol 15 yrs ago I was suicidal, I'm not anymore, went to the hospital, they turned me away because I didn't have insurance. I haven't had much luck with many "professionals" I'm so glad you've figured something out that has given u your mind back!! Sorry this got so long 😉 Hope your smilin today 😁
 
SarahD

SarahD

Well-known member
Joined
Oct 21, 2014
Messages
2,090
Location
UK
Meds do help many people, for others they don't seem to work as well, or the side effects are too bad. Psychiatrists are recommended to keep the doseage to the lowest effective level and not use too many drugs together (polypharmacy). I have sometimes been on five drugs at once, which is ridiculous. I was told one drug would "activate" the others. If a drug only works at a level when it leaves you in a trance or zombified state, what is the point?

I had one mood stabiliser that did help, except I had about twenty (yes 20) "minor" side effects that had a major effect on my life. I had already had heart problems from one antipsychotic. Then my hair fell out and I was incontinent! I came off the drugs including the antipsychotic, and found I had also developed tardive dyskinesia. I was in despair. I had a major rethink.

It isn't easy managing without meds, but it didn't work well for me when I took them. I do still get professional help. I have managed to stay out of hospital nearly three years. I am usually depressed, sometimes mixed state. I have hallucinations quite often, but unless they are really terrible (and they have been sometimes) I cope with them, not always well. Delusions are hardest because they feel real. I rely on two people I trust to tell me when they think something is not right. I also see a psychologist, and try to be open about whatever is going on. Also, if something similar has happened before, I tell myself this happened before and it wasn't real. I don't always believe myself...

There isn't an easy fix, but the drugs don't work well for me and I am very sensitive to side effects. (I have physical health problems too and have problems with side effects from those drugs as well.)

I would say, if your health is good and the meds help, stay on the lowest dose possible. Learn to recognise signs of being mentally unwell and try to find things that help. I try to do things that help with my mood, because my worst psychotic symptoms come with the depression. (Mania is a whole other nightmare, but at least it feels good for a while.)
 
HopefulMe

HopefulMe

Well-known member
Joined
Oct 4, 2019
Messages
61
Location
United Statea
Meds do help many people, for others they don't seem to work as well, or the side effects are too bad. Psychiatrists are recommended to keep the doseage to the lowest effective level and not use too many drugs together (polypharmacy). I have sometimes been on five drugs at once, which is ridiculous. I was told one drug would "activate" the others. If a drug only works at a level when it leaves you in a trance or zombified state, what is the point?

I had one mood stabiliser that did help, except I had about twenty (yes 20) "minor" side effects that had a major effect on my life. I had already had heart problems from one antipsychotic. Then my hair fell out and I was incontinent! I came off the drugs including the antipsychotic, and found I had also developed tardive dyskinesia. I was in despair. I had a major rethink.

It isn't easy managing without meds, but it didn't work well for me when I took them. I do still get professional help. I have managed to stay out of hospital nearly three years. I am usually depressed, sometimes mixed state. I have hallucinations quite often, but unless they are really terrible (and they have been sometimes) I cope with them, not always well. Delusions are hardest because they feel real. I rely on two people I trust to tell me when they think something is not right. I also see a psychologist, and try to be open about whatever is going on. Also, if something similar has happened before, I tell myself this happened before and it wasn't real. I don't always believe myself...

There isn't an easy fix, but the drugs don't work well for me and I am very sensitive to side effects. (I have physical health problems too and have problems with side effects from those drugs as well.)

I would say, if your health is good and the meds help, stay on the lowest dose possible. Learn to recognise signs of being mentally unwell and try to find things that help. I try to do things that help with my mood, because my worst psychotic symptoms come with the depression. (Mania is a whole other nightmare, but at least it feels good for a while.)
I feel you on the side affects. Ugh!! I struggle with therapy most i think because, in my experience , it's been statistic based. I'm ALL over the place mentally and usually end up stumping them because they're couseling me based on what helps the "average" person or has the most positive response. I have never felt like they ever tried to get to know me what would help me. So far I've been able to find and apply a slew of positive coping skills into my daily life. Most important I have learned that I AM worth it!! I have an amazing life thats alot like riding the tallest roller coaster thats 10 miles long running thru a haunted house 😂 I have some pretty shitty ass days but tomorrow is always a new day 😁 I am worried that one day the psychotic symptoms will be to much and I will have to find a way to afford professional help and muster up the energy for the hunt, but right now I'm trying to live my best life and seek every inch of happiness I can 😉
 
W

Worriedyin

Well-known member
Joined
Oct 2, 2019
Messages
66
Location
Scotland
Meds do help many people, for others they don't seem to work as well, or the side effects are too bad. Psychiatrists are recommended to keep the doseage to the lowest effective level and not use too many drugs together (polypharmacy). I have sometimes been on five drugs at once, which is ridiculous. I was told one drug would "activate" the others. If a drug only works at a level when it leaves you in a trance or zombified state, what is the point?

I had one mood stabiliser that did help, except I had about twenty (yes 20) "minor" side effects that had a major effect on my life. I had already had heart problems from one antipsychotic. Then my hair fell out and I was incontinent! I came off the drugs including the antipsychotic, and found I had also developed tardive dyskinesia. I was in despair. I had a major rethink.

It isn't easy managing without meds, but it didn't work well for me when I took them. I do still get professional help. I have managed to stay out of hospital nearly three years. I am usually depressed, sometimes mixed state. I have hallucinations quite often, but unless they are really terrible (and they have been sometimes) I cope with them, not always well. Delusions are hardest because they feel real. I rely on two people I trust to tell me when they think something is not right. I also see a psychologist, and try to be open about whatever is going on. Also, if something similar has happened before, I tell myself this happened before and it wasn't real. I don't always believe myself...

There isn't an easy fix, but the drugs don't work well for me and I am very sensitive to side effects. (I have physical health problems too and have problems with side effects from those drugs as well.)

I would say, if your health is good and the meds help, stay on the lowest dose possible. Learn to recognise signs of being mentally unwell and try to find things that help. I try to do things that help with my mood, because my worst psychotic symptoms come with the depression. (Mania is a whole other nightmare, but at least it feels good for a while.)
The meds definitely help(ed) but I guess I won't know if I'm prone to psychosis without them unless I come off them. I feel like I'm too tired for full time work at the moment on a low dose so that's the biggest thing.

I'm definitely acutely aware of my psychology at the moment and being really vigilant about potential signs of becoming unwell but i feel pretty safe while I'm on medication.
 
S

Simeona

Member
Joined
Oct 10, 2019
Messages
6
Location
Macedonia
Hello everyone. I have been dealing with psychosis for 10 months now. I'm unable to walk, think or feel. I have been taking antipsychotic medicine for 7 months and for three months i've been injected with the antipsychotic xeplion. I don't have any delusions or hallucinations any more but i have been unable to think or walk for the past 4 months. Has anyone gone through anything similar or experience the same symptom? If so please can you share your story with me? How long did the psychosis last? How did it make you feel? What helped you to recover?
 
L

linus

Well-known member
Joined
Mar 27, 2019
Messages
500
Location
Eastern Europe
Why do you say you are in a psychotic episode? It is true that the negative symptoms are the life blocking ones, but there should be some positive ones to conclude the diagnosis. Is this a first episode for you? How did you enter this “state of mind”?
 
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