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Disabled person with multiple diagnoses here for mutual support!

nomask

nomask

Member
Joined
Mar 20, 2019
Messages
23
Location
USA
Hello. I've been looking for communities to feel safe around, and came across this one. I've had mental illness all my life and also developmental issues. Anxiety has always been a big problem for me. At a young age, I got diagnosed with OCD, GAD, MDD, and PTSD. Pdocs have always only really wanted to focus on depression. As an adult, I have even more diagnoses now and others have worsened. I now also have severe social anxiety (it may affect how I interact), Psychosis-NOS, and my OCD has become a living nightmare. Some things I'm too hesitant to open up about.

Currently, I'm not sure what's worse for me. My mental state has been not something I can put into words for over a year now. I'm doing badly and heavily dissociated 24/7. I've had some events happen in the last 4 years that further complicated my already complicated life.

  • It started with a psychotic episode that still affects me now and then I started having physiological symptoms that aren't as relevant here. Doctors and psychiatrists weren't the most helpful. For a long time I was repeatedly told I'm probably just super depressed despite it being on record I have moderate depression, not major.
  • I've been trying different antipsychotics for these few years and having a wild time finding out that I react badly to them. No longer trying to take them. They worsened my mental health, caused temporary movement disorders, and are suspected to be the cause of me developing an inner ear/vestibular disorder around that time.
  • It was only last year that I was finally given Psychosis Not Otherwise Specified as a diagnosis. It took me giving up and accepting no one cared for it to happen, oddly enough.
  • I still am being told my physical disability is just depression and anxiety by doctors. I'm not buying it, I think they just don't believe me but I've learned when to accept defeat and it isn't worth raising my blood pressure over anymore. I just have to manage on my own.

Based on my own experience and what I've learned from studying in order to help myself, I will do my best to give advice to others when I can! If you relate to any of this, I'd love to hear from you because I feel rather alone. Sorry this is long.
 
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Yodagirl

Well-known member
Joined
Mar 9, 2019
Messages
626
Location
Georgia USA
Hello and :welcome:
I have suffered for as long as I can recall with MDD and Gad. Just last month I was diagnosed with Bipolar 1 disorder. I feel like I tried every depression meds and never had a benefit from them. My psychiatrist put me on a mood stabilizer last month and it’s done wonders for me! Have you ever been on a mood stabilizer?
 
nomask

nomask

Member
Joined
Mar 20, 2019
Messages
23
Location
USA
Hello and :welcome:
I have suffered for as long as I can recall with MDD and Gad. Just last month I was diagnosed with Bipolar 1 disorder. I feel like I tried every depression meds and never had a benefit from them. My psychiatrist put me on a mood stabilizer last month and it’s done wonders for me! Have you ever been on a mood stabilizer?
Hello, thank you! I actually am on a mood stabilizer right now. My current pdoc couldn't stand the idea of me not being on anything, so she has me on Depakote. Though it's currently not considered a therapeutic dose, as I talked about I react to meds weird and I already do feel some benefit from it.. Or maybe that's just placebo? Dunno. It tastes really bad so I've struggled to go up more on it. :/
 
Y

Yodagirl

Well-known member
Joined
Mar 9, 2019
Messages
626
Location
Georgia USA
I’m on lamotrigine and like I said it’s really done wonders for me. For the first time in my life I’m feeling “Normal “ I hope you have success on your mood stabilizer as well! :hug:
 
nomask

nomask

Member
Joined
Mar 20, 2019
Messages
23
Location
USA
I’m on lamotrigine and like I said it’s really done wonders for me. For the first time in my life I’m feeling “Normal “ I hope you have success on your mood stabilizer as well! :hug:
That's great, I'm glad for you! And thank you, I definitely hope I can eventually feel "Normal" one day, too!
 
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