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    If you'd like to talk with people who know what it's like

Disability Living Allowance.

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Sarey

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Mar 6, 2010
Messages
135
I'm so stupid, I posted on my other user account that I didn't want the name of.

Okay, so I'm going to talk about Disability Living Allowance.

I'm in the process of my M.E being confirmed, I was diagnosed last year with it, and it needs to be confirmed, unfortunately, I have a shit doctor, once again, so I've wrote a letter to him & I see him tomorrow, so I'll give him this letter, & hopefully he'll be able to fill in one of the forms on my DLA papers & confirm I have M.E so I can claim Disability for it(finally, after a year and nearly 4 months of suffering!)

I'm in the process of applying for DLA(for not only my medical illness, but also my mental health illnesses/disorders & emotional instability, all of which are severe) & I'll be filling in the forms over the next few days, they are very long & I'm getting worse physically, & mentally I'm struggling severely, so it'll take me quite a while to fill them all in & get it all sorted.

I've discovered I'm eligable for Higher rate for Mobility & Middle-Higher rate for Care.

This means I'll be able to get a wheelchair from NHS for free & permanently if I'm on Higher rate for Mobility.

This would mean so much more freedom for me.

I'd also be getting an income, which would help me a lot financially, as I can't work, or go to college, or anything due to my severe health.

I'm going to be using this thread for the following;



  • Updating about the process of confirming my diagnosis
  • Updating about the process of filling the DLA forms in, how I felt filling them in, any doubts/concerns, my feelings about it all, etc
  • Updating about the process of the DLA being reviewed and hopefully accepted
  • Updating (if it's accepted) about what type of allowance I'll be getting, and what level of care/mobility I'm going to be at
  • Updating about doctor appointments, how they went, what happened, how I feel about what's happened, etc


Thanks for reading, I hope I can get support & any suggestions from this thread.

x
 
raven

raven

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Feb 27, 2010
Messages
761
Location
Bristol
I hope your DLA comes through soon. I get some money from DLA and remember finding the forms a real headache to fill in. Just take it one question at a time.

*supportive hugs*

raven
 
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Sarey

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Joined
Mar 6, 2010
Messages
135
Thank you Raven.

Yes, I'll be sure to take it one question at a time.
They are pages long!
I'm not looking forward to filling them in... at all.

Wish me luck with filling them in as soon as I can!
 
L

Lady Summer Isles

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NOBODY KNOWS FOR SURE
You can get help filling them in from either CAB or an advocacy service. My local cmht helped me with mine as I'd put off doing it for years. Good luck with it, it sounds like you really need it and it does make a big difference.
Lady T
 
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Sarey

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Joined
Mar 6, 2010
Messages
135
If that involves going out, I can't do that at the moment.

I'll fill them in myself, I was told to put the worst case scenario, and only speaking about the really bad days so they know how bad it can get.

My M.E specialist (she's not on my case anymore though) told me to fill it in as if it was a very bad day.

And she said to be very clear and specific, not just "yes or no" answers.

 
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Sarey

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Mar 6, 2010
Messages
135
Okay, my mother is going to write my answers out.
 
DiagnosisBipolar2

DiagnosisBipolar2

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May 25, 2009
Messages
261
Location
Wiltshire
How out of interest, have you discovered you are entitled to HRM and MRC?

I'm afraid it is up to the DWP as to what you may or may not be entitled too and they are a law unto themself!

I wish you good luck with your claim regardless.
 
Libra1

Libra1

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Jan 12, 2008
Messages
515
Location
West Midlands
Hi Sarey, sorry to read that you are suffering from ME and other illnesses :(

You may find www.benefitsandwork.co.uk website an excellent resource for help/support with your Dla forms, if you are unable to leave the house.

You do need to be a paying member of B & W to access the resources - but well worth the investment of ?£19 approx for a years' membership. I have found them really helpful :)

The information you have been given, re: completing your forms by describing your worse/bad days is incorrect. ME can be a fluctuating condition.

I would suggest you kept a daily diary for about a week, of things you can do, are unable to do without help and really struggle with daily.

Hope all goes well with your form filling :hug:
 
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Sarey

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Mar 6, 2010
Messages
135
I read the website & I saw the requirements for the rates.

I do not appreciate being doubted with how ill I am and what I know I am entitled to, I think I know, it explains the requirements, and I meet them.

I'm entitled to higher mobility care as I have moderate-severe trouble walking, and some days, cannot walk barely at all, and am in bed all day, everyday.
That's one requirement.
I'm entitled to middle-higher care as I need help during the day and during the night most if not all days.
That's one of the requirements.

Take a look for yourself.

Goodbye now.


And above, it is NOT incorrect, I was told this by an M.E specialist, you need to write it as the worst case scenario, AND you need to write that it is a fluctuating condition, but you still need to write as if it was a bad day. It even says that.
 
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DiagnosisBipolar2

DiagnosisBipolar2

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261
Location
Wiltshire
I read the website & I saw the requirements for the rates.

I do not appreciate being doubted with how ill I am and what I know I am entitled to, I think I know, it explains the requirements, and I meet them.

I'm entitled to higher mobility care as I have moderate-severe trouble walking, and some days, cannot walk barely at all, and am in bed all day, everyday.
That's one requirement.
I'm entitled to middle-higher care as I need help during the day and during the night most if not all days.
That's one of the requirements.




And above, it is NOT incorrect, I was told this by an M.E specialist, you need to write it as the worst case scenario, AND you need to write that it is a fluctuating condition, but you still need to write as if it was a bad day. It even says that.
Firstly I wasn't doubting you; merley making you aware of the fact that what one should be entitled to and what one actually is entitled too can be very different things!! The DWP are a law unto themselves and it's just good to be aware of that when applying.

Best of luck with your application.
 
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Sarey

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Mar 6, 2010
Messages
135
That asshat doctor just discriminated me.

I can't do this now.

URGH.
 
dib4uk

dib4uk

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Jul 23, 2009
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south london,england
That asshat doctor just discriminated me.

I can't do this now.

URGH.
I understand where your coming from and how frustrated you are. It took me a long time to finally get my dla so dont be put off by silly useless doctors, just keep at it and maybe they will change their mind, still fill in the forms and see where you go from there.
 
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Sarey

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Mar 6, 2010
Messages
135
I'm not saying I'm not sending in my DLA, I'm saying he won't confirm the diagnosis & he is discriminating me & patronizing me & it has seriously upset me.

I cannot get help for my M.E if I don't get the diagnosis confirmed, & I need so much help right now, & now I may only be able to get DLA for my MH illnesses/disorders, not my M.E.

I'll still write about it, & I hope they'll do something.

But this doctor has pissed me off & I'm sick of it.

He has some nerve to tell me the shit he did.

He has no fucking clue how severe this is.

URGH.
 
dib4uk

dib4uk

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Location
south london,england
I'm not saying I'm not sending in my DLA, I'm saying he won't confirm the diagnosis & he is discriminating me & patronizing me & it has seriously upset me.

I cannot get help for my M.E if I don't get the diagnosis confirmed, & I need so much help right now, & now I may only be able to get DLA for my MH illnesses/disorders, not my M.E.

I'll still write about it, & I hope they'll do something.

But this doctor has pissed me off & I'm sick of it.

He has some nerve to tell me the shit he did.

He has no fucking clue how severe this is.

URGH.

Ok thanks for correcting me and making it more clearer, if thats the case ask for a second opinion and if that doesnt help much, then change your doctors, its horrible being treated like a second class citizen and doctors need to listen to their paitience.
 
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Sarey

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Mar 6, 2010
Messages
135
I can't change doctors, and I don't think I can even get a second opinion.

No idea how to go about one but I know I need a referral from my GP, and that isn't going to happen.
 
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