Disability Living Allowance.

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Sarey

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#1
I'm so stupid, I posted on my other user account that I didn't want the name of.

Okay, so I'm going to talk about Disability Living Allowance.

I'm in the process of my M.E being confirmed, I was diagnosed last year with it, and it needs to be confirmed, unfortunately, I have a shit doctor, once again, so I've wrote a letter to him & I see him tomorrow, so I'll give him this letter, & hopefully he'll be able to fill in one of the forms on my DLA papers & confirm I have M.E so I can claim Disability for it(finally, after a year and nearly 4 months of suffering!)

I'm in the process of applying for DLA(for not only my medical illness, but also my mental health illnesses/disorders & emotional instability, all of which are severe) & I'll be filling in the forms over the next few days, they are very long & I'm getting worse physically, & mentally I'm struggling severely, so it'll take me quite a while to fill them all in & get it all sorted.

I've discovered I'm eligable for Higher rate for Mobility & Middle-Higher rate for Care.

This means I'll be able to get a wheelchair from NHS for free & permanently if I'm on Higher rate for Mobility.

This would mean so much more freedom for me.

I'd also be getting an income, which would help me a lot financially, as I can't work, or go to college, or anything due to my severe health.

I'm going to be using this thread for the following;



  • Updating about the process of confirming my diagnosis
  • Updating about the process of filling the DLA forms in, how I felt filling them in, any doubts/concerns, my feelings about it all, etc
  • Updating about the process of the DLA being reviewed and hopefully accepted
  • Updating (if it's accepted) about what type of allowance I'll be getting, and what level of care/mobility I'm going to be at
  • Updating about doctor appointments, how they went, what happened, how I feel about what's happened, etc


Thanks for reading, I hope I can get support & any suggestions from this thread.

x
 
raven

raven

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#2
I hope your DLA comes through soon. I get some money from DLA and remember finding the forms a real headache to fill in. Just take it one question at a time.

*supportive hugs*

raven
 
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Sarey

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#3
Thank you Raven.

Yes, I'll be sure to take it one question at a time.
They are pages long!
I'm not looking forward to filling them in... at all.

Wish me luck with filling them in as soon as I can!
 
L

Lady Summer Isles

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#4
You can get help filling them in from either CAB or an advocacy service. My local cmht helped me with mine as I'd put off doing it for years. Good luck with it, it sounds like you really need it and it does make a big difference.
Lady T
 
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Sarey

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#5
If that involves going out, I can't do that at the moment.

I'll fill them in myself, I was told to put the worst case scenario, and only speaking about the really bad days so they know how bad it can get.

My M.E specialist (she's not on my case anymore though) told me to fill it in as if it was a very bad day.

And she said to be very clear and specific, not just "yes or no" answers.

 
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Sarey

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#6
Okay, my mother is going to write my answers out.
 
DiagnosisBipolar2

DiagnosisBipolar2

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#7
How out of interest, have you discovered you are entitled to HRM and MRC?

I'm afraid it is up to the DWP as to what you may or may not be entitled too and they are a law unto themself!

I wish you good luck with your claim regardless.
 
Libra1

Libra1

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#8
Hi Sarey, sorry to read that you are suffering from ME and other illnesses :(

You may find www.benefitsandwork.co.uk website an excellent resource for help/support with your Dla forms, if you are unable to leave the house.

You do need to be a paying member of B & W to access the resources - but well worth the investment of ?£19 approx for a years' membership. I have found them really helpful :)

The information you have been given, re: completing your forms by describing your worse/bad days is incorrect. ME can be a fluctuating condition.

I would suggest you kept a daily diary for about a week, of things you can do, are unable to do without help and really struggle with daily.

Hope all goes well with your form filling :hug:
 
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Sarey

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#9
I read the website & I saw the requirements for the rates.

I do not appreciate being doubted with how ill I am and what I know I am entitled to, I think I know, it explains the requirements, and I meet them.

I'm entitled to higher mobility care as I have moderate-severe trouble walking, and some days, cannot walk barely at all, and am in bed all day, everyday.
That's one requirement.
I'm entitled to middle-higher care as I need help during the day and during the night most if not all days.
That's one of the requirements.

Take a look for yourself.

Goodbye now.


And above, it is NOT incorrect, I was told this by an M.E specialist, you need to write it as the worst case scenario, AND you need to write that it is a fluctuating condition, but you still need to write as if it was a bad day. It even says that.
 
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DiagnosisBipolar2

DiagnosisBipolar2

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#10
I read the website & I saw the requirements for the rates.

I do not appreciate being doubted with how ill I am and what I know I am entitled to, I think I know, it explains the requirements, and I meet them.

I'm entitled to higher mobility care as I have moderate-severe trouble walking, and some days, cannot walk barely at all, and am in bed all day, everyday.
That's one requirement.
I'm entitled to middle-higher care as I need help during the day and during the night most if not all days.
That's one of the requirements.




And above, it is NOT incorrect, I was told this by an M.E specialist, you need to write it as the worst case scenario, AND you need to write that it is a fluctuating condition, but you still need to write as if it was a bad day. It even says that.
Firstly I wasn't doubting you; merley making you aware of the fact that what one should be entitled to and what one actually is entitled too can be very different things!! The DWP are a law unto themselves and it's just good to be aware of that when applying.

Best of luck with your application.
 
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Sarey

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#11
That asshat doctor just discriminated me.

I can't do this now.

URGH.
 
dib4uk

dib4uk

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#12
That asshat doctor just discriminated me.

I can't do this now.

URGH.
I understand where your coming from and how frustrated you are. It took me a long time to finally get my dla so dont be put off by silly useless doctors, just keep at it and maybe they will change their mind, still fill in the forms and see where you go from there.
 
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Sarey

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#13
I'm not saying I'm not sending in my DLA, I'm saying he won't confirm the diagnosis & he is discriminating me & patronizing me & it has seriously upset me.

I cannot get help for my M.E if I don't get the diagnosis confirmed, & I need so much help right now, & now I may only be able to get DLA for my MH illnesses/disorders, not my M.E.

I'll still write about it, & I hope they'll do something.

But this doctor has pissed me off & I'm sick of it.

He has some nerve to tell me the shit he did.

He has no fucking clue how severe this is.

URGH.
 
dib4uk

dib4uk

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#14
I'm not saying I'm not sending in my DLA, I'm saying he won't confirm the diagnosis & he is discriminating me & patronizing me & it has seriously upset me.

I cannot get help for my M.E if I don't get the diagnosis confirmed, & I need so much help right now, & now I may only be able to get DLA for my MH illnesses/disorders, not my M.E.

I'll still write about it, & I hope they'll do something.

But this doctor has pissed me off & I'm sick of it.

He has some nerve to tell me the shit he did.

He has no fucking clue how severe this is.

URGH.

Ok thanks for correcting me and making it more clearer, if thats the case ask for a second opinion and if that doesnt help much, then change your doctors, its horrible being treated like a second class citizen and doctors need to listen to their paitience.
 
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Sarey

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#15
I can't change doctors, and I don't think I can even get a second opinion.

No idea how to go about one but I know I need a referral from my GP, and that isn't going to happen.
 
Cherry.Candy

Cherry.Candy

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#16
So because your GP wont diagnose you with M.E your taking that as discriminating against you.

Obviously your gp has doubts about whether you have the diagnosis or not if he/she wont diagnose it?

Did you think about asking?

Why cant you see another doctor?
 
daffy

daffy

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#17
sorry your finding it difficult to get your illness confirmed. My sister had simiilar problems. Lots of gps dont believe there is such an illness. It took my sister years before she could get any help.

Have you seen a consultant for a diagnosis, if so he should have informed your gp .If not contact your surgery and ask them get to get confirmation.Its very difficult for a gp to diagnose ME as most of the tests have to be done in hospital.

Hope you get it it sorted
 
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Sarey

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#18
Cherry no, because of OTHER stuff that happened with this doctor(NOT MY GP), he discriminated me & he patronized me, not because he won't diagnose me.
 
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Sarey

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#19
My GP is an arrogant prick.
Most doctors I've seen are very arrogant & pathetic due to the fact I have MH problems, they don't seem to look past that & blame it on them.
I've had MH problems all my life, I've been ill since 2008, I think I know when something is up & it's not due to my MH.

I've seen plenty of doctors since I got ill, I've had dozens of tests done, blood tests, ECG's, urine tests, x rays, I was kept in for 3 days over Xmas when I first got ill, I've been to hospital about 8 times altogether, & I've seen my GP more than 20 times about this.
He doesn't care.
No one seems to give a damn.

I am now back at square one.

He discriminated & patronized me by what he said to me & how he treated me, it was extremely upsetting & it angered me a lot, I'd rather not go over it, at all, thinking about it angers me, so I want to put that in the past & keep trying to get this damn M.E diagnosis confirmed & get treatment for it & get a wheelchair somehow & get DLA sorted somehow.

If you had read what I said, you'd see I didn't say he discriminated & patronized me because he didn't confirm my diagnosis, it was what he said to me & how he treated me & how he acted towards me, you'd also see that I never said he was my GP.

I cannot see another GP because I can't transfer to a different place, and there is only one GP at our clinic.

I hope both my GP & that doctor gets fired, he's awful for that job, absolutely disgusting how he treated me.

He doesn't want to diagnose it because of my MH problems, he didn't seem to have any good reason at all for not diagnosing me, & he didn't seem to even listen to me about my symptoms, & he patronized me & he did discriminate me.
I was extremely insulted by what he said to me, but like I said, rather not discuss it, I can't deal with being angry right now.

I think I do have M.E, and my M.E Specialist thinks I have it too, she diagnosed me with it last year, & then she discharged me because I need my diagnosis confirmed, so I was referred to this asshole who to me, is an ignorant, arrogant, stuck up prick who I hope gets fired from this job.

Now, I'll still fill in my DLA forms for my severe MH problems & learning problems & emotionally instability problems, & I will still fill in about my M.E, because right now, with or without a diagnosis being confirmed, I believe I have M.E, and I need some sort of treatment for this, I need effective painkillers, a wheelchair, some sort of income, I need so much help for my health, both physical & mental, so I'm still going to fill it in with everything it asks for, including my medical health problems.

I'm very angry right now, not only because of this, but because of what someone has said to me in another thread, it's very insulting & upsetting, & I don't even know why I bother trying to help anyone & put my input in.

Whatever though, I think I'll probably leave this forum soon, I can't be doing with the stress.
(which everyone knows makes M.E worse & mental health worse.)
 
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Sarey

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#20
As I was saying, I'm going to fill in some more of the forms today, & I'll hopefully be able to send them off by next week, which would be pretty good, because I desperately need help with my health & some sort of income.

I am going to be going to a clinic tomorrow, I've just called them up & arranged an appointment to rent a wheelchair out, as I'm desperate to get out, & start my photography again, so I'll update tomorrow about how that went. (y)
 
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