• Hi. It’s great to see you. Welcome!

    Our forum members are people, maybe like yourself, who experience mental health difficulties or who have had them at some point in their life. Amongst our membership there is a wealth of expertise that has been developed through having to deal with mental health issues.

    We are an actively moderated forum with a team of experienced moderators. We also have a specialist safety team that works extra hard to keep the forum safe for visitors and members.

    Register now to access many more features and forums!

Chronic dizziness, spinning, and anxiety/panic.... I finally got a diagnosis!!!!

I

irishgirl85

New member
Joined
Jul 25, 2019
Messages
2
Location
St Louis
I am new to this forum. Hello! I was compelled to join because for the last few years I was suffering from (I thought) some kind of severe anxiety disorder. I had it ALL... anxiety, feeling like head would explode from stress, head buzzing, vertigo (the room spinning, and I had to lay down for days or even weeks at a time). A lot of nausea. Feeling like the road was rushing ahead of me when I'd bring my car to a stop. My face and neck prickling like someone rubbed sandpaper on it.
These episodes would come out of the blue, often triggered by stress but not always. It's debilitating.

I was FINALLY just diagnosed by a balance/dizziness specialist, and it's like all the pieces to the puzzle have come together. I wanted to share the name of this bizarre condition, in case others here are suffering without answers, too. It's called VESTIBULAR migraine.... no, it is not the headache variety!!!!! There are two very different kinds of migraines: one is headache pain, the other is just severe dizziness and anxiety (often NO headache), and followed by panic attacks and fears/feelings that you are going crazy and nobody cares. It's an invisible sickness and nobody understands you.

The diagnosis just changed my life. All of the weird symptoms which no doctor can diagnose, fit the description for vestibular migraine 100%, and I was told it's one of the most MIS-diagnosed diseases out there. I thank God for the lady who helped diagnose me, and now I'm on the path to healing.

I'm just here to share, in case it helps someone. Do your research. Chances are your doctor WILL NOT KNOW what you have, and will classify it as generalized anxiety disorder. If you have experienced any of what I described, I'd beg you (because I care) to Google search "vestibular migraine" and you may be shocked to find out this is what you have.

Having a name is giving yourself power to get help and feel better. Lots of love, anxiety warriors!
 
I

irishgirl85

New member
Joined
Jul 25, 2019
Messages
2
Location
St Louis
Thought I'd copy/paste a list of common symptoms for vestibular migraine, as quick reference for you.

  • Dizziness
  • Motion intolerance regarding the eyes, body, or head
  • Spontaneous vertigo attacks often with vomiting and nausea
  • Feeling disoriented
  • Anxiety and panic attacks
  • Diminished ability to focus the eyes
  • Sound sensitivity and tinnitus (ringing in the ears)
  • Balance loss and ataxia (weak legs is common)
  • Neck pain with associated muscle spasms in the upper cervical spine musculature
  • Altered cognition
 
Top