Hi everyone, my name is Lea Kielinen and I've been a sufferer of Conversion Disorder and PNES (psychogenic non-epileptic seizures) since 2008. It's been a long battle with many symptoms rearing their ugly head. It took a long time for me to get diagnosed with Conversion Disorder, but once I was, and was comfortable with my diagnosis, I realized how little help there is out there for others like us. There is so little help!!!! I started a blog justmekielinen.blogspot.com to start describing in my own words what living with CD is like. After a couple of months and receiving innumerable amounts of support from others, I started a Facebook support group called "Just Me - Conversion Disorder" for others to connect as well.
The days can be very lonely and exhausting while living with this disorder. I have found writing to be my outlet for not only support but to keep my sanity. I found this forum through another website featuring Conversion Disorder and thought WOOHOO other people!! They understand!! I've read through some of the entries and can relate so much to the writers of these posts that I needed to reach back. Since starting my blog and support group, I have become determined to try my best to help others out there like us and hope that through this forum I can reach more people and we can come together as a community of support. Not only do I suffer from CD, but I have OCD, Interstitial Cystitis, Fibromyalgia, Depression and a severe anxiety disorder - which goes hand in hand with conversion Disorder. This forum is wonderful in its execution and am glad to find Conversion Disorder a forum for others to compare notes. There is so little out there in terms of research, information and least of all support that I hope to connect with more people and be a source of information through my blog. I'm not by any means an expert, I only write what I know and feel. I hope you will take the time to check it out, or we can start a conversation here!